Tag Archives: UltraInflamX

Latest Visit – New Treatment

19 May

New Treatment

I took the long drive to Redwood City to see my LLMD on Monday. When I arrived in his office my doctor told me I was positive for Lyme, Bartonella, Babesia and a mysterious intestinal parasite.

I was currently taking Doxycycline. I was told not to take the Doxy when I got home. The doctor told me he wants to start an aggressive treatment and this treatment needed my okay so legally he could start it.

The con is that if I catch pneumonia in the next few years my doctor fears there will be no antibiotic to help cure me. I have already had elderly pneumonia at a young age that nearly killed me. The pills I will be taking are for pneumonia and my body will get used to them therefore in the future they will not fight off pneumonia. Plus with already having elderly pneumonia I double my chances of facing death with catching pneumonia again.

The doctor wants to kill of the Bartonella and Babesia first before moving to treating the Lyme itself. He  is also treating the intestinal parasite at the same time.

Here is my new treatment:

Mepron (1tsp per day) *FYI this stuff costs $1658.00 without insurance

Zithromax 500mg (1 per day)

Rifampin 300mg (two pills per day)

Artemisinin (2 caps twice per day)

Immunovir / IMN-V (20 drops twice per day)

SyImmune

Sygest

Adrenal Essence

Probiotics

Fish Oil

Intestimax

UltraInflamX


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Tip – UltraInflamX

30 Mar

 

 

 

 

 

 

 

 

 


UltraInflamX

I know the powdered drinks can taste horrible and are hard to get down. I was using orange juice and water  to mix with the UltraInflamX tropical flavor. I didn’t really care for the taste of the tropical flavor. My doctor said try not to use acidic or sugar flavored drinks to mix it with.

I now have the Chocolate-Orange flavor of UltraInflamX. Much easy to get down and it doesn’t taste so bad when I mix it with Intestimax. I mixed it with 1/3 water and 2/3 Vanilla flavored Almond Milk. That was the best combination yet. Very easy to swallow and not a lot of after taste.

So I highly recommend the Chocolate-Orange flavored UltraInflamX if you like chocolate flavoring. Since I cannot have dairy while taking my Doxycycline, I chose Almond Milk or you can substitute with Silk.

New Treatment – Follow Up Visit

29 Mar

Follow Up

Today my parents drove me to Redwood City which is almost a 2 hour drive from my house. Today was a follow up to my first 3 week treatment of Zithromax and blood results.

The blood tests came back normal but I don’t have a copy of the results so I can’t share which ones. I did however test + for band 31. The doctor strongly believes I have Babesia. To treat the Babesia I will be taking Artemisinin.

Since I did not show much sign of improvement and didn’t suffer too much from a herx reaction I was put on a stronger antibiotic. The new pills prescribed will cause a lot more diarrhea and cramping. The new pills are Doxycycline 100mg twice per day.

I also had another blood draw and a stool sample is needed to detect if I have Babesia. Another $900 out of pocket that the insurance company will not cover.

My new treatment plan:

  • Doxycycline – 100mg (2 pills twice per day totaling 400mg)
  • Probiotics – 25billion (2 per day)
  • VLS III Probiotic – 225 billion live probiotic bacteria (2-4 per day)
  • Artemisinin – 400mg (1 per day)
  • Adrenal Essence (2 per day)
  • Intestimax (Powder drink)
  • UltraInflamX (Powder drink)
  • SyGest for GERD
  • Vita Greens

Day 10 – Not too bad

17 Mar

Day 10

The stomach cramps and stabbing pain from the Zithromax (Azithromycin) are gone. I think my body is getting used to taking them. I was up all night going to the bathroom and what little sleep was interrupted throughout the morning.

I went to the pharmacy today to pick up a few prescriptions and found out that my Lyme doctor did not authorize my Zithromax for the second week in a row. I called his office and nobody returned my call. So I am paying $234 for 21 pills of the Zithromax which my insurance would probably cover if the doctor would sign the papers and fax them back.

While at the pharmacy I nearly fell by the checkout line in front of a few customers. It was a little embarrassing. In the past three days I have almost fell in the bathroom twice, into my car once and now almost fell in the store. I don’t know if it is the medication or if my legs are weak. I am also not sure if it was the Lyme or the Fibromyalgia causing the trips and falls. It is almost like my right leg gives out on me and I have t catch my balance.

The powdered drinks are going down a little easier. I still can’t take them with water which is recommended. I did do some shopping online and found the powder for $64 – $70 and they have other flavors like chocolate-orange and banana. I’m not a big fan of the tropical florescent orange powder. I also started taking Vita-mineral Greens as of yesterday.

If anyone has tried the other flavors of UltraInflamX please let me know if they are any good.

Tips

12 Mar

Tips



(Update) Orange juice seems to be the best choice to mix the powder with. I can actually drink the mixture now without gagging.


The Lyme disease treatment calls for drinking some powdered drinks that are not very tasty. I take UltraInflamX and Intestimax together mixed  into one drink. It tastes like a tropical drink with shrimp flavor. The ingredient in one of them is crab and shrimp shells.

I was told to mix the powder with water and then try to drink it down. The first day i tried the water and nearly gagged every sip. The second day I tried mixing the powders with orange juice (Simply Orange) and that wasn’t bad. The third day I tried mixing it with blueberry and pomegranate juice, not bad but not great. After experimenting I found the orange juice to be the best combination.

I would also recommend having a absolutely full stomach when taking the Zithromax. The fuller the better. I even ate after taking the pill and it helped ease the stabbing pains.

More to come……

Day One – Getting my life back

9 Mar


by Bryan Sanders March 09, 2011


Day One

Hello world,

My name is Bryan and I was just diagnosed with Lyme disease. I am 35 years old and single (boo). I do also suffer, and I do mean suffer, from Fibromyalgia which is a real syndrome. I have many other medical issues but I will get into those at another time.

I am believed to have been given Lyme disease  in either the early 1980’s or late 1990’s when I was bitten by deer ticks numerous times. There were two ticks that I know of that their heads were left in my body. I did not get the usual rash at the time. Lyme caused a snowball effect during my life and new medical issues popped up almost every few years. Lyme disease can hide in your cells and tissue and surface later in life as in my case.

Yesterday, I went on a long exhausting trip  to see a Lyme specialist in Redwood City, CA. After a 2 hour consultation I was diagnosed with having Borreli (Lyme Disease) and two coinfections called Babesiosi and Bartonella. The news was overwhelming but I am finally happy to know why I am progressively getting worse each month and having new symptoms.

Today I started the treatment which is considered aggressive. I am taking Zithromax (macrolide antibiotic) which is usually only taken for 5 days but in my case I am taking it for 3 weeks. I will need antibiotics for years or possibly the rest of my life. I am in the later stages of Lyme disease. I find it difficult to walk, think, read, write or do most of the things we take for granted.

Gulp

After taking all of the pills I have listed below and the nasty powdered drinks I feel fine so far. I do have sharp stomach pains but that was to be expected. So far I have no diarrhea and don’t feel the need to go. I know soon I will have to make my new home in the bathroom. There is also the possibility of a Herxheimer reaction. Yeah, not so fun.

I am hopeful and my goal is to feel better by next year. The aggressive treatment plan can cause more pain and agony and possible vision loss, involuntary movements and the possibility I will not be able to continue my blog. If I fall silent you will know why.

The next step is to maybe have a pick line inserted into my arm to my heart. I have another follow-up in 3 weeks and I will keep you updated. I am not the best writer in the world but this is a personal journal for me as well as me sharing my experiences with you. If you have any questions or just want to chat feel free to comment.

FYI

The visit and prescriptions are costly. For some reason my insurance and I believe all insurance carriers do not cover Lyme disease. Therefore I spent $1200 out-of-pocket just for the first visit and first treatment plan.

Today I started taking the following:

  • Zithromax (1 cap daily for 3 weeks)
  • Probiotics (2 caps twice per day of 25 billion CFUs)
  • UltraInflamX (powder)
  • Intestimax (powder, taste like seafood and made of shrimp shells)
  • Adrenal Essence (2 caps twice per day)
  • Vitamineral greens (pill)

*I would like to mention that dyslexia is my latest symptom so bare with any spelling errors or misused words.