Tag Archives: Meriva 500

LLMD Visit – New Treatment; IV, Lupus, Mold…

22 Nov

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LLMD Visit – New Treatment; IV, Lupus, Mold…

Woke up at 7am (my usual bedtime or near it) after one hour of sleep to head on the long car ride to see my LLMD. There was a lot of traffic due to the holiday travelers.So I ended up getting home at 5:30PM, talk about a long day. The car ride made me sick, the 3 hour IV made me feel worse. I had a blood clot my first day on IV. That is the reason I never had a Picc or Port since I am a clotter (MTHFR).

I saw my main LLMD and one of the first things he said was “I think you also have Lupus but it’s not RA“. So good news bad news I guess. I went to ask if I could stop all oral antibiotic for at least 6 months to give my body a rest. Well after a talk with the LLMD I am still on antibiotic and will be for a while. He says I am real sick and not getting better so he is worried. He said it will be a long road.

So the doc came up with a new treatment and asked that I get tested for mold health issues since he thinks I have those also. What fits all of these puzzles and positives tests I have every time I visit is that I was exposed to black mold for years, lupus runs in the family, bit by ticks, but by thousands of mosquitoes in one day…etc. So I am never in shock when I hear I am positive for something.

I will be starting a peripheral IV for at least 3 months that I know of. I will switching from Clindamycin oral to Clindamycin IV. I am stopping A-Bab for now. Treatment below.

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New Treatment:

Clindamycin IV (2 times per day)

Minocin (6 per day)

Coartem (8 per day) pulsing

A-Myco (20 drops 2x a day)

A-Bart (40 drops a day)

Cryptolepis (20 drops a day)

Meriva 500 (2 per day)

 

*plus my usual supplements like; Vit C/D3, Fish Oil, Chanca Piedra, Milk Thistle….etc.

 

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Blood Results – Mycoplasma pneumoniae, Chlamydophila pneumoniae & ANA

16 Oct

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Blood Results – Mycoplasma pneumoniae, Chlamydophila pneumoniae & ANA

 

Phone Call From LLMD

I had my phone appointment today with my LLMD and I received my blood test results finally. First we went over that my Babesia is far from dying off and it’s really angry and my Bartonella is causing havoc again. I will continue treatment for Bab and Bart and add in a new RX which I will list below. I am having the usual low oxygen/air-hunger, soaking night sweats, and my ankle pain is back along with the hundreds of other symptoms.

So for now my main focus is killing off (if that is possible) my Babesia and Bartonella along with other bugs while still treating the Lyme disease. As I have mentioned before and the name still slips my mind but I have the strain of Babesia which is harder to kill than the other species. After two years of antibiotics and no progress for Lyme, Bab or Bart you start to wonder if they will ever go away.

I took notes while on the phone but my fatigue was so bad so I hope I can read my notes. I am stopping Suprax, continue Clindamycin, adding this and pulsing that which I will try to mention below.

Although I have all of this I still enjoy the beauty of life and what I have. It is truly the little things that mean so much to me. Fall, football and the holidays are here so I am happy. Now if I can only find a girlfriend to keep me warm during these cold months I will be all set.

 

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Blood Test Results

 

I tested recently for my routine CBC but I also tested for Mycoplasma pneumoniae and Chlamydophila pneumoniae which I have always assumed I have had for 30 years and I finally have Medicare so I could afford to test for it. The CBC and routine blood work are to check my enzymes and organs and see how they are holding up while on antibiotics which everyone should do monthly or bi-monthly. We also tested my blood for my thyroid such as T3 and for my Anti-nuclear antibody (ANA) count.

 

So like always I received all bad news on the results.

  • Mycoplasma pneumoniae – Positive
  • Chlamydophila pneumoniae – Positive
  • T3 count – High
  • ANA – High

 

I have Hypothyroidism so my thyroid is slow and counts are usually low so having a high T3 sounds like my thyroid is out of whack. This is nothing that worries me but my T3 has never been high and my LLMD said a new study says having a high T3 (while so sick) is good so we will let it remain high.

My ANA count being high can mean a lot of different things. My primary doctors have always suspected I have Lupus since it runs in the family so it could be Lupus. It could also mean Rheumatoid Arthritis (RA) which is what my pediatrician told my mom I would have when I got older when I was a child. I had Osteomyelitis when I was a baby and I lived in the hospital with an IV in my ankle bone marrow for a few months. The high ANA count could also be from fighting an infection which I am so it may be nothing but just joint pain. We are not really sure what to make of it.

Mycoplasma pneumoniae and Chlamydophila pneumoniae both can cause pneumonia, lung issues and possible lung cancer. In 1999 I literally nearly died from elderly pneumonia. I had only 10% of one lung left to breath with. At that time the doctors all said “how the heck did you get elderly pneumonia at your age of 24 years old?”. Now I know why since I have been living with both of these pneumonia causing bugs in me for years. My primary doctors have never tested me for either pneumoniae and never followed up after I had pneumonia.

So today wasn’t really unexpected news since I knew all along I have way more than I have tested for so far. I feel as if I am a walking petri dish so I figure there are more bugs I haven’t tested for yet. It just feels like getting kicked when you are already down when every time you have a test they find a new problem and never good news. So more bugs to kill off, time to get my SK boots on!

 

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Treatment Plan:

A-Bart (20 drops twice a day – herbal dropper for Bartonella)

A-Bab (herbal dropper for Babesia)

Cryptolepis (3 droppers full – herbal dropper for Babesia)

Ketoconazole 2% (apply to Candida area)

Clindamycin 300mg (2 pills 2 times daily for Babesia)

Coartem (4 caps twice a day for 2 weeks, pulsing 3/3 – used for Babesia/Malaria)

Biaxin (for my 2 pneumoniae bugs)

Coartem (for inflammation, Lupus, RA and Malaria)

Artemisinin (for Babesia and parasites)

Meriva 500 (2 pills twice a day for inflammation)

Fluconazole 200mg (1 pill per day for candida/yeast caused by abx)

Folapro (for my MTHFR)

Glutathione (for my MTHFR)

VSL#3 (continue taking 3-4 times daily to keep from getting C-Diff)

Florastor (probiotic to help with abx)

Cholestyramine (a binder to help with intestinal issues)

*I will continue to take Milk Thistle, Chanca Piedra (which are both important for cleaning out the liver/kidneys), 600 mg DHA, Vit B-Complex, Vit C, Vit B12, and a few other supplements.

Stopped This Med:

Suprax 400mg (1 pill daily)

 

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My Current Med Prices Using Medicare

17 Sep

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My Current Med Prices On Medicare

This is my first month on Medicare (yay fianlly!) so I thought I would share some of my costs for medication. I have a higher-priced Blue Shield of California PDP (Part D, Prescription Drug Plan). As you may or may not know when you get social security disability you get Medicare within 2 years. You will then need to choose if you want to keep or upgrade your Original Medicare and you will need to pick a prescription plan most likely (which is not automatically included).

Everyone is different and have different situations but for me I am single, no other insurance, and do not qualify for any SSA or other prescription savings programs. So I need everything I can get. By the way you do not get Dental with Medicare unless you choose some high price insurance plan from a third party (I believe). I cannot afford Dental or a higher priced plan other than “Original Medicare”.  So for me my total cost to have and continue with Original Medicare and my Part D prescription plan are $210 a month. I guess it beats my old $625 a month Cobra plan when I had zero income for 3 years.

I chose my plan based on the pricing for Mepron since I know I will be on it again one day. Most plans want $1000 – $1500 for one bottle but with my plan I think it will cost me around $325 out of pocket. I am no Medicare expert so do your homework and try to read the packet they send you. There is a great online tool they will send you to choose through Part D plans and compare.

I rambled on sorry…. so here are my costs so far while on Medicare, hope this helps you in some way to know what to expect at the pharmacy.

 

My Costs (remember your cost depends on your Part D plan)

 

  • Clindamycin HCL 300 MG (180 qty) – $7.00 out-of-pocket
  • Suprax 400 MG (30 qty) – $75.00 out-of-pocket (I’m told they retail for $600)
  • Fluconazole 200 MG (30 qty ) – $7.00 out-of-pocket
  • Lyme Formula Memory Tonic and Meriva-500$152.00 out-of-pocket (not covered)

 

 

*I buy all my prescriptions from CVS Pharmacy and through my LLMD office.

 

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LLMD Visit Today – New Treatment

11 Sep

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LLMD Visit – New Treatment For Sept – Nov

Had to be up early which is about my usual bedtime and take a long car ride to see my LLMD today. We sat and discussed a few things that have been getting worse for me lately. The first thing was my severe night sweats which we had discussed before. The second being my male part having a candida outbreak a few months ago and the third was my brain which is getting worse each month. We also talked about my Chronic Fatigue Syndrome (CFS) and many other issues.

Babesia

All of those I mentioned above my doctor and have talked about nearly 2 years ago. The issues above have been getting worse so I brought them up again. I know many people who have nearly recovered from Babesia yet mine seems to get worse. I believe I have the strain which is harder to kill. After 1000’s of mosquito bites in one day and numerous tick bites I could have different strains of Babesia in my body.

Babesia is what is causing my night sweats which continually soak my bed daily. It makes it hard to get what little sleep I can without getting the chills from the moisture and not sticking to my sheets. I will be taking a new antibiotic for Babesia and stopping the herbal tinctures such as A-bab and Cryptolepis for now. I have already did my share of Mepron and Malarone. I will list the new abx below.

Genital Candida Outbreak

Yes this was/is as horrible as it sounds. I will not go into detail but believe me there was/is a lot of pain, discomfort and bleeding. The genital candida can look and act like genital herpes but remember Lyme can cause all sorts of herpes in your body. I have not had sex in forever so I knew I could rule that out and had a good idea it was yeast/candida from all the antibiotics I have been taking. The problem was I lost my insurance 2 days before the outbreak occurred and I couldn’t see my LLMD for 2 months after.

I treated the outbreak with various ointments and Nystatin cream. I can share that my manhood looked like a dogs chew toy and this was not fun to deal with on top of everything else. I am back to normal and about 98% healed. I will be taking some pill and rubbing a new cream on daily for the next month. I will list those below.

Cognitive Problems

I have been feeling like I am getting Alzheimer’s lately. I have had the cognitive problems for years but recently my dyslexia started getting even more jumbled and my memory is worse. I have also been having more trouble finding words to say and all of the usual brain issues. This is said to be caused by inflammation of the brain and poor blood circulation. I was given a new tincture and pill which I will share below.

Arthritis 

We also talked about my arthritis getting worse but my LLMD does not write my prescriptions for my pain pills so there is not much he can do. He just recommended some anti-inflammatories. I am getting so stiff it is hard to walk. The arthritis is pretty much all over my body.

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Blood Labs

I am getting my usual blood work done to check my organs but I am also checking for Mycoplasma and Chlamydophila Pneumoniae. I suspect I have both since I did nearly die from pneumonia and have had some lung issues. After listening to my lungs today the doctor order these tests which makes me think he suspects I have them also. The will also be checking my Anti-Nuclear Antibody (ANA) which we have tested for many times in the past. Maybe he thinks I have Lupus again? Lupus does run in my family and I thought I had Lupus before I was diagnosed with Fibromyalgia and Lyme….etc. (CBC, CMP 14, Thyroid, Myco, Chlamydia)

 

My New Treatment

Ketoconazole 2% (apply to Candida area)

Clindamycin 300mg (2 pills 3x daily for Babesia)

Suprax 400mg (1 pill daily)

Meriva 500 (2 pills twice a day)

Fluconazole 200mg (1 pill per day)

Folapro (MTHFR)

Glutathione (MTHFR)

VSL#3 (continue to keep from getting C-Diff)

Florastor (probiotic to help with abx)

*I will continue to take Milk Thistle, Chanca Piedra (which are both important for cleaning out the liver/kidneys), Krill Oil, Vit B-Complex, Vit C, Artemisinin, Vit B12, and a few other supplements.

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