Tag Archives: LLND

Advanced-Lab Lyme Culture (Blood Test)

2 Mar



Advanced-Lab Lyme Culture (Blood Test)

I just wanted to quickly answer some questions I see often asked about the lyme culture test. The Advanced-Lab Lyme Culture (spirochete test) is what is called a “direct” lyme blood test. The other lyme tests are “indirect” and can be very inaccurate. I am told and guaranteed that the Lyme culture is nearly 98% accurate, no false-positives, and the test is very easy to read and understand, it will either say “positive” or “negative” and it comes with pictures (2″x2″) of the spirochetes grown in your blood if positive. There are no bands to figure out on this one.

The reason I highly recommend this test is because after 3 years of many Western Blot tests which were “INT/IND” or “Negative” and after treatment I was beginning to think my Lyme may have been in hiding but I was still disabled. I couldn’t understand how I could feel so horrible in a living hell yet my blood work would show nothing. Doctors would belittle me and say there is “no lyme in California blah blah” So I took the lyme culture as a peace of mind to know for sure if I had lyme disease and for proof to show to all the doctors who laughed with that “I told you so” look on their face when my Western Blot was negative.

So many people ask if it is worth it and I say yes it is. It is the most accurate test that I know of. All of my doctors including primary (IDSA) doctors even believe I have chronic lyme now. All of my LLMDs swear by the test and I no longer have to keep testing for lyme hoping to catch it in my blood.This was really a game-changer for me and my case so I hope it may help some others. If your primary has a problem with the test you can get advanced-lab to write you a letter by email that says “there are no false positives, it’s accurate and they stand by their test…etc”.


The cost was $500 when it first came out (Dr B was also doing free tests when it was brand new) but it costs $700 last year when I had mine. I have Medicare and they do not cover it. I am not sure if any other insurance may reimburse you.

Where Do I Get The Test?

Your doctor or LLMD will have to order the test kit or have it on-hand so call the office and ask if they have it in stock or offer the test before you waste your time/energy driving there. Only certain offices will have the test kits so if your LLMD does have it then try a nature path or any other doctor that deals with lyme. My test was from a LLND not from my regular LLMD office. But that office no longer takes Medicare patients so I cannot go back to see him.

How Long Does It Take For Results?

This questions depends on your case of lyme. The fastest turn-around on getting the test results back is 10 days which I am told isn’t common so I think this means very active lyme or the lyme has been in your body forever (I’m not sure though). Most commonly results can take a month up to a few months I believe to get back. So you will need to be patient with this test.They are trying to grow spirochetes in your blood.

My test came back in only 10 days, I received a phone call from my doctor with the “bad news” then was mailed a letter from my LLND’s office that was from advanced-lab showing the positive results with a picture of 3-4 spirochetes in my blood. They even glow lyme green.

Special Instructions:

I cannot remember all the details but I know they only do the test on certain days and at certain times of the day so Fed Ex can pick up and get the blood out on time to ship it overnight ASAP after the test (if it is late you will need to do the blood work over again). The phlebotomist will need to read the instructions carefully and get the vials just right. You can’t be on antibiotics for 30 days before the test (I think it was 30 days or 2 weeks). I can’t remember if I had to stop other meds just for the day or fast but they will let you know at the office.

*I am not a doctor and I do not promote any companies, I am only expressing my personal opinion and what details I can remember. I could be wrong about some of the things I wrote but these are all things I have heard from advanced-lab their self via email or straight from my LLMDs mouth. This is also from personal experience.

Good luck and I hope you get the results you want! Stay strong lymies!




12 Jul

picc for procedure



I am at the point right now where I am really sick and feeling like my old self before starting treatment. I was told by my LLMD and LLND that I need a PICC line again. I really cannot afford a PICC (the IV meds) and last time I could never find anyone willing to change my dressing. Plus I had daily clotting and my blood is not the best for IV’s. I could barely push the heparin through most time and the IV would back up and get air in the line since I clotted.

I hear doing IV antibiotics when I have had Lyme for 30 years is not really proven to help anyway and that the Rife is the only thing that can possibly work? So I am at the point where I don’t know if I should go back on a protocol, get the PICC and go broke or stay on the oral antibiotics for now.

It is the not knowing that really gets to you with lyme disease. What works for one may not work for another. So far not one thing has made me feel any better, given me any energy or any kind of hope that it is working. But I will not give up I just don’t know what to do right now, I am too exhausted to think about it. lol











Advanced-Lab Blood Culture Results: Positive

14 Jun


Advanced-Lab Blood Culture Results: Positive

First let me start this story by saying I went to the ER last night for dehydration and severe pain. They heard me mention lyme and they pretty much gave me saline and 2 pills and sent me home saying my blood was normal and I need to see my primary not them. I hate my primary and I will be switching (she was the one who swore I had HIV and doesn’t believe in lyme). So I went home from the ER feeling just as horrible and they didn’t even ask if I felt better. My pain killers after 5 years have stopped working and my next option is pain patches since I have tried all the severe pain meds already. Yay for the ER.


It hasn’t even been 3 weeks since my blood was taken for the Advanced-Lab Blood Culture and my LLND called yesterday and said he had some news. So this morning my mom made the call as I overheard the results of many blood tests. First test was the culture and he said it was “positive and they were able to grow some spiros and my lyme is still active”. My IgA1 and IgA2 Antibodies are low. My white blood cells lymphocytes (cd8) are low also.

So after 3 years of INT/Neg Western Blots which I knew were inaccurate I finally got the positive. Also after 2 years of aggressive treatment my lyme is still having a party in my body. My LLND who hates Picc and abx treatment suggested I go back on a Picc and abx asap.

Feeling horrible so that’s all I can manage to write for now……………..

Stay strong everyone and don’t give up!



Visit To New Secondary Lyme Doc LLND

2 Apr

Puzzled male shrugging wearing lab coat


Visit To New Lyme Doc LLND

Do you ever leave your doctor’s office feeling like you have accomplished nothing and wonder why you even used all your spoons for the day on the visit? That was this visit today. I left feeling like “here we go again”. The picture above looks just like how my doctors face looked. This is why I was hesitant to see anyone besides an LLMD.

My LLMD is pretty far away and always booked so I have been searching for a closer doctor who treats Lyme just for the bad days and a place to get refills easier. I found an LLND after hearing good things about him. He was trained under my current LLMD. This LLND also takes my Medicare so that was a huge plus. 80% of my bills will be reimbursed.

So….the doctor walks in and introduces himself and then asks me (Mr. No brains or memory) to tell him all about me and my medical history. Of course I have my mom there as always but he wants to know from me. I am sitting there struggling to find words or talk and forgetting dates. I finally told him “I have no idea what day or month it is so this is really hard”, he didn’t seem to care. I also forgot to take my pain meds for the day so I was squirming in my chair bitting my lip in pain.

He was taking notes and wanted very specific dates of for example; “what month/year did your IBS start”….etc. I can see how this is helpful info and he needs to know but between myself and my mom we had to guess on everything. Then if we were off by 3-4 months he would say “wait you just told me Dec of 2008 but this was Jan of 2009 so I am confused”. I wanted to say “just ballpark range it, I don’t know!!”

The point of this trip was to see why I have lost my ability to walk (which has improved slightly), if lyme is the cause of the issue, and also to get different pain meds such as the fentanyl patch and refill xanax. Well being a nature path he was unwilling to fill any prescriptions. He also said he’s only treated 6-8 patients with antibiotics for Lyme and he was not willing to help me with that he would just send me back to my LLMD.

His advice on the walking issue was to “see my primary doctor or neuro” …well duh but they do not believe in Lyme that’s why I came to you! His advice on getting my prescriptions was to “see my primary doctor”. I asked his advice on what supplements he recommends that would benefit me being so ill that I do not already tale on my long lost I handed him…. his response “why are you taking two forms of turmeric”. So basically no answer.  Thanks for nothing.

He wanted all new blood work for everything and didn’t really care that my LLMD said I have chronic lyme, babesia, bartonella he wants to have his own tests done. I almost felt like he was an IDSA doctor. I mean I know he believes me but he wants solid proof before he treats me with whatever meds (supplements) he says he can help get me “normal” again. His nurses said he “works miracles” and I have heard he does so that is the only reason I am trying him out.

My quality of life is poor and feeling like dying daily and never seeing the outside world is no way to live. When I tell the doctors how I live I know they think I am exaggerating but I am not. My day can be summed up in one sentence; I wake up, walk to the living room to lay in my chair to watch tv, eat dinner, and then go to bed and lay there until I fall sleep if I can…period.

The pros: The doctor did rule out any mold issues. He also said my herniated discs in my c-spine and back are most likely from lyme disease which confirmed what my LLMD told me. He ordered too many blood tests to write here or remember so there will be a ton of results in 3 weeks to go over. He did say he can help me with my thyroid.

So once again I left another doctor office feeling just as lost and confused as always. I hope he will find something solid in my blood work and he will at least try to help me instead of sending me back to my LLMD. He is the same guy I called 6 months ago for an appointment and he said I was “too complicated to treat”. I told him this time I just want to try his methods of treatment out if he could just give me an appointment but I can tell he doesn’t want to treat me.

Now all of the above sounds like a bad day but to me I look at the positive from the day. I was able to get out of the house, the clouds in the sky were beautiful and I got some fresh air. So it wasn’t a bad day at all. Took a shot of the car ride and sky and was able to edit the picture below. Enjoy the little things and always try to smile.


clouds sac


– Have a wonderful week and hugs to all of you in pain and feeling alone.




You Think You May Have Lyme Disease – Now What Do You Do?

12 Apr

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