Tag Archives: Clindamycin

Visit To PCP – Chronic Lyme Added To Records Finally

24 Jul

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Visit To PCP – Chronic Lyme Added To Records Finally

Just like all Lyme patients go through I failed to find any doctors within my medical center who would believe Lyme disease as one of my illnesses. I was always told that “Lyme disease does not exist in California” and most doctorS rolled their eyes at me. They always made me feel like all my illnesses were made up, I wanted pills or I was being a big baby about my symptoms.

A couple months ago my Nuero Surgeon started the ball rolling by telling me he believes my Lyme disease was causing all my pain and spinal issues. My PCP (primary care doctor) had already told me she doesn’t believe I have Lyme and said she thinks I had just Fibro, CFS and Lupus. She was pretty firm and made me pull my PICC and made me feel like I was wasting my time with thinking I had Lyme.

My mom sent a copy of my positive Advanced-Lab Lyme culture to my PCP recently and she changed her attitude and is willing to help me now. Yesterday I had to visit her to fill out pain management forms so she could fill the prescriptions recommended by my pain doctors. She was very nice and was treating me like “you poor guy you’ve had Lyme 30 years and there is no cure”.

She seemed different and more gentle with me verus older appoinments where she told me I was making up my lupus rashes and yelling at me for not responding quick enough to questions. She actually put “chronic Lyme disease” in my medical records. To my surprise she said “please stop Clindamycin it does not do a thing for Lyme and it is really bad for your body and gut”. So she started me on a maintenance dose of Doxycycline which she said she would keep me on “for life” which I think she meant for a long time. She said it won’t cure me but it will help keep the spirochetes calm.

I was prescribed the Butrans patches and next month I will get the Marinol. Then each month I up my dose of Butrans. So far the patches are not covered and cost about $185 per month. I am waiting to get them covered.

It felt good to finally have a PCP say the words ” you have chronic Lyme disease” and feel like someone believes me outside of the LLMD/LLND offices. Now when I go to the ER it will be on my medical records and I may get more respect and admitted instead of being sent home with no help.

Score one for the Lyme team!

 

 

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Update: Homeopathic Borrelia Treatment Finished

30 Mar

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Update: Homeopathic Borrelia Treatment Finished

I thought I would share my experience now that I have finished this treatment. If you want to know more about the treatment and where to buy it click HERE.

My memory is not the best but I believe by vial 3-4 I was herxing. This was not my usual “omg I am dying” severe herx I get while on antibiotics but it was a herx. I feel it was working. By vials 5-10 no herxing and no improvement. I can say this may work for some and maybe since I am considered a “complicated case” but my LLMD and my new LLNP that this was not aggressive enough? So I say for $49 it is worth a try.

I started back on Clindamycin and Minocycline right after since I was losing my ability to walk and really having a tough time. Within 3 days back on antibiotics I had a severe herx and spend all night in bed with my head splitting open and crying. I was so close to going to the ER but as I have said before they never help me and roll their eyes and yell at me when I mention Lyme or antibiotics. So I used all my detox methods and hoped for the best.

I am having a horrible few weeks (ore horrible than the usual horrible lol) and I cannot wait to see my new LLNP. I tried to get in earlier but he is booked as usual. I have no idea how I am writing this now but I needed a distraction from all of this.

 

– I want to wish all of you Lyme warriors a Happy Easter!! Remember to find just the smallest reason to smile through the pain and know that better days are ahead. Never give up the fight.

 

 

 

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Back On Antibiotics – Herxing

26 Feb

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Back On Antibiotics – Herxing

I couldn’t handle being off of antibiotics any longer. I wanted to give my body a rest after the candida scare and after the Picc and clotting. My PCP recommended taking a break also so I went with it but on my own. After (insert number of days here because I forget) I have been of antibiotics my symptoms were getting worse.

Here is some pretty solid proof that 10 days of antibiotics does not kill or “cure” chronic lyme disease and tick-borne diseases stupid IDSA/CDC. I have been on 2 years of aggressive treatment and I am nearly just as bad as when I started 2 years ago.  I would say I have progressed 5% – 10% at the most but now after stopping antibiotics I am going 2 steps back.

My neuro problems such as the turrets twitching in my head, tremors, vertigo and other issues seemed to calm down a lot better while on antibiotics. Now that I have been off I noticed they started to increase each day until recently when I had them all back full force. My head will nod on it’s own about 3-4 times (turrets twitch).

My tremors which were calm for the first time in 16 years are back and shakier than ever. My POTS and blood monitor reading is more tachy now and my reading today was 140/101 with 89 pulse and 96% oxygen. I was low with bradycardia last year and in the 50’s range. It is getting tough to walk again and I am more bedridden. The vertigo has increased (besides what mino did) and I run into walls no matter where I walk. I have to hold onto walls and objects to walk.

My brain fog and cognitive issues are also getting worse. I have no idea what day/month/year it is. I was starting to stutter daily which has never happened to me. Still have dyslexia. I cannot remember names, faces or words at all. I now just tell a story and say “that one thing” a lot. I already had bad memory short term and long term. Things were just getting worse.

So this week I started back on Suprax and Coartem. I will be back on oral Clindamycin and Minocycline soon. So far I have only herxed one time (which is as I write this). My head is splitting open, migraine and feeing very warm. But I had to get back on the antibiotics since I was in a lot more pain in my bones, muscles and body. My “stone man” was increasingly worse. I am having cold spots and neuropathy down my spine.

I have listed all of my symptoms on a previous post and there are 100’s so I won’t list them here but they are all still with me. I was hoping to go out for walks when Spring gets here but that is looking like it may not happen with this pain, vertigo and dizziness.

I will also be trying a Homeopathic treatment that should be coming in the mail real soon and I may post about it. I am also thinking about trying rifing again one day. Need to stop these bugs from having a party in my body.

I will try to update as much as I can but I haven’t had many “good” days. I hope all of my spoonie and Lymie friends are having better luck in your lyme healing journey. Keep up the fight and never ever give up life is too beautiful and there are many good days ahead. Take care for now friends.

 

– I will continue to spread Lyme awareness in Jeremiah’s name. He will be missed.

 

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Blood Results – Mycoplasma pneumoniae, Chlamydophila pneumoniae & ANA

16 Oct

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Blood Results – Mycoplasma pneumoniae, Chlamydophila pneumoniae & ANA

 

Phone Call From LLMD

I had my phone appointment today with my LLMD and I received my blood test results finally. First we went over that my Babesia is far from dying off and it’s really angry and my Bartonella is causing havoc again. I will continue treatment for Bab and Bart and add in a new RX which I will list below. I am having the usual low oxygen/air-hunger, soaking night sweats, and my ankle pain is back along with the hundreds of other symptoms.

So for now my main focus is killing off (if that is possible) my Babesia and Bartonella along with other bugs while still treating the Lyme disease. As I have mentioned before and the name still slips my mind but I have the strain of Babesia which is harder to kill than the other species. After two years of antibiotics and no progress for Lyme, Bab or Bart you start to wonder if they will ever go away.

I took notes while on the phone but my fatigue was so bad so I hope I can read my notes. I am stopping Suprax, continue Clindamycin, adding this and pulsing that which I will try to mention below.

Although I have all of this I still enjoy the beauty of life and what I have. It is truly the little things that mean so much to me. Fall, football and the holidays are here so I am happy. Now if I can only find a girlfriend to keep me warm during these cold months I will be all set.

 

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Blood Test Results

 

I tested recently for my routine CBC but I also tested for Mycoplasma pneumoniae and Chlamydophila pneumoniae which I have always assumed I have had for 30 years and I finally have Medicare so I could afford to test for it. The CBC and routine blood work are to check my enzymes and organs and see how they are holding up while on antibiotics which everyone should do monthly or bi-monthly. We also tested my blood for my thyroid such as T3 and for my Anti-nuclear antibody (ANA) count.

 

So like always I received all bad news on the results.

  • Mycoplasma pneumoniae – Positive
  • Chlamydophila pneumoniae – Positive
  • T3 count – High
  • ANA – High

 

I have Hypothyroidism so my thyroid is slow and counts are usually low so having a high T3 sounds like my thyroid is out of whack. This is nothing that worries me but my T3 has never been high and my LLMD said a new study says having a high T3 (while so sick) is good so we will let it remain high.

My ANA count being high can mean a lot of different things. My primary doctors have always suspected I have Lupus since it runs in the family so it could be Lupus. It could also mean Rheumatoid Arthritis (RA) which is what my pediatrician told my mom I would have when I got older when I was a child. I had Osteomyelitis when I was a baby and I lived in the hospital with an IV in my ankle bone marrow for a few months. The high ANA count could also be from fighting an infection which I am so it may be nothing but just joint pain. We are not really sure what to make of it.

Mycoplasma pneumoniae and Chlamydophila pneumoniae both can cause pneumonia, lung issues and possible lung cancer. In 1999 I literally nearly died from elderly pneumonia. I had only 10% of one lung left to breath with. At that time the doctors all said “how the heck did you get elderly pneumonia at your age of 24 years old?”. Now I know why since I have been living with both of these pneumonia causing bugs in me for years. My primary doctors have never tested me for either pneumoniae and never followed up after I had pneumonia.

So today wasn’t really unexpected news since I knew all along I have way more than I have tested for so far. I feel as if I am a walking petri dish so I figure there are more bugs I haven’t tested for yet. It just feels like getting kicked when you are already down when every time you have a test they find a new problem and never good news. So more bugs to kill off, time to get my SK boots on!

 

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Treatment Plan:

A-Bart (20 drops twice a day – herbal dropper for Bartonella)

A-Bab (herbal dropper for Babesia)

Cryptolepis (3 droppers full – herbal dropper for Babesia)

Ketoconazole 2% (apply to Candida area)

Clindamycin 300mg (2 pills 2 times daily for Babesia)

Coartem (4 caps twice a day for 2 weeks, pulsing 3/3 – used for Babesia/Malaria)

Biaxin (for my 2 pneumoniae bugs)

Coartem (for inflammation, Lupus, RA and Malaria)

Artemisinin (for Babesia and parasites)

Meriva 500 (2 pills twice a day for inflammation)

Fluconazole 200mg (1 pill per day for candida/yeast caused by abx)

Folapro (for my MTHFR)

Glutathione (for my MTHFR)

VSL#3 (continue taking 3-4 times daily to keep from getting C-Diff)

Florastor (probiotic to help with abx)

Cholestyramine (a binder to help with intestinal issues)

*I will continue to take Milk Thistle, Chanca Piedra (which are both important for cleaning out the liver/kidneys), 600 mg DHA, Vit B-Complex, Vit C, Vit B12, and a few other supplements.

Stopped This Med:

Suprax 400mg (1 pill daily)

 

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LLMD Visit Today – New Treatment

11 Sep

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LLMD Visit – New Treatment For Sept – Nov

Had to be up early which is about my usual bedtime and take a long car ride to see my LLMD today. We sat and discussed a few things that have been getting worse for me lately. The first thing was my severe night sweats which we had discussed before. The second being my male part having a candida outbreak a few months ago and the third was my brain which is getting worse each month. We also talked about my Chronic Fatigue Syndrome (CFS) and many other issues.

Babesia

All of those I mentioned above my doctor and have talked about nearly 2 years ago. The issues above have been getting worse so I brought them up again. I know many people who have nearly recovered from Babesia yet mine seems to get worse. I believe I have the strain which is harder to kill. After 1000’s of mosquito bites in one day and numerous tick bites I could have different strains of Babesia in my body.

Babesia is what is causing my night sweats which continually soak my bed daily. It makes it hard to get what little sleep I can without getting the chills from the moisture and not sticking to my sheets. I will be taking a new antibiotic for Babesia and stopping the herbal tinctures such as A-bab and Cryptolepis for now. I have already did my share of Mepron and Malarone. I will list the new abx below.

Genital Candida Outbreak

Yes this was/is as horrible as it sounds. I will not go into detail but believe me there was/is a lot of pain, discomfort and bleeding. The genital candida can look and act like genital herpes but remember Lyme can cause all sorts of herpes in your body. I have not had sex in forever so I knew I could rule that out and had a good idea it was yeast/candida from all the antibiotics I have been taking. The problem was I lost my insurance 2 days before the outbreak occurred and I couldn’t see my LLMD for 2 months after.

I treated the outbreak with various ointments and Nystatin cream. I can share that my manhood looked like a dogs chew toy and this was not fun to deal with on top of everything else. I am back to normal and about 98% healed. I will be taking some pill and rubbing a new cream on daily for the next month. I will list those below.

Cognitive Problems

I have been feeling like I am getting Alzheimer’s lately. I have had the cognitive problems for years but recently my dyslexia started getting even more jumbled and my memory is worse. I have also been having more trouble finding words to say and all of the usual brain issues. This is said to be caused by inflammation of the brain and poor blood circulation. I was given a new tincture and pill which I will share below.

Arthritis 

We also talked about my arthritis getting worse but my LLMD does not write my prescriptions for my pain pills so there is not much he can do. He just recommended some anti-inflammatories. I am getting so stiff it is hard to walk. The arthritis is pretty much all over my body.

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Blood Labs

I am getting my usual blood work done to check my organs but I am also checking for Mycoplasma and Chlamydophila Pneumoniae. I suspect I have both since I did nearly die from pneumonia and have had some lung issues. After listening to my lungs today the doctor order these tests which makes me think he suspects I have them also. The will also be checking my Anti-Nuclear Antibody (ANA) which we have tested for many times in the past. Maybe he thinks I have Lupus again? Lupus does run in my family and I thought I had Lupus before I was diagnosed with Fibromyalgia and Lyme….etc. (CBC, CMP 14, Thyroid, Myco, Chlamydia)

 

My New Treatment

Ketoconazole 2% (apply to Candida area)

Clindamycin 300mg (2 pills 3x daily for Babesia)

Suprax 400mg (1 pill daily)

Meriva 500 (2 pills twice a day)

Fluconazole 200mg (1 pill per day)

Folapro (MTHFR)

Glutathione (MTHFR)

VSL#3 (continue to keep from getting C-Diff)

Florastor (probiotic to help with abx)

*I will continue to take Milk Thistle, Chanca Piedra (which are both important for cleaning out the liver/kidneys), Krill Oil, Vit B-Complex, Vit C, Artemisinin, Vit B12, and a few other supplements.

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