Tag Archives: candida

What Has Improved In Nearly 3 Years Of Treatment

19 Dec

Confused-Man

What Has Improved In Nearly 3 Years Of Treatment

As the new year is getting closer I was trying to think of all of the medical issues with Lyme and all my other illnesses that has improved since treatment. To tell you the truth not much has changed or improved and some things got worse. I have tried oral, IV, injection antibiotics, herbal protocols, diets, holistic….. and the results were never any good.

In the past 3 years I think the only thing that made me feel well enough to walk around the block for 2 days was Mepron. But my Babesia is still alive and well. Other than that I spend everyday locked up in my house under blankets and hydrating with a lot of fluids.

What symptoms have improved?

  • Lost The Ability To Walk/ Spine: One of the scariest moments for me was last year when I woke up and went to get out of bed and could not walk. I would walk “like I had no spine” as the neuro told me. It took all my concentration to walk from my room to the couch. I bought a wheelchair and thought I would never walk again. I was due for spinal surgery when I found out the lyme was messing up my spine so surgery would not help. It took about 3-4 weeks but I started to get the feeling back in my lumbar and legs and was able to walk again. I am not safe by any means it can come back at any time but I am thankful I can walk again.
  • Facial electric shock: The electric shock feeling I described in a earlier blog post years ago has gone away. Every time I took my first bite of any food or drink I would get this painful electric shock from the bottom of my chin up to the top of my ears. I believe it was my lymph nodes in my face that were swollen and sensitive.
  • Epstein Barr Virus: I was diagnosed with this many times and positive on blood work at the ER. The doc said I had chronic EBV or Mono. After taking Byron White EBV formula I am now negative but not sure for how long.
  • Chronic Strep Throat: This one was bad and I felt like I had razor blades cutting my throat everyday for years on and off. It was very hard to swallow or eat spicy/acidic/salty foods. It would go away and come back weeks later. Knock on wood I haven’t had strep throat in about 8 months.
  • Mouth Sores: I would always have mouth sores inside my mouth and on my tongue. This may have been from the thrush/candida I had and maybe from the antibiotics but it has also gone away around the time the strep throat did.
  • Red Bumps On Forehead: One of the first things to go away during treatment was the hundreds of red dots on my forehead that made my forehead feel like sandpaper. We thought it was parasites and the Ivermectin finished them off but there was no solid answer of what caused it.
  • Ankle Pain From Bart: Bartonella used to be a lot worse and my ankles felt like they were split open with an axe. I would cry myself to sleep at night. After treating for Bart my ankle pain is now about a 5-6 on the pain scale. Much better.
  • Seizures/Turrets: I used to have small seizures and turrets twitches in my neck/head. Both of those have improved and I don’t twitch as much.
  • Candida/C-diff: Antibiotics and aggressive treatment gave me both of these which both were horrible. The candida turned into an external flesh eating monster and did a lot of damage I do not want to speak of or relive. That is why now I am not doing a lot of antibiotics anymore. Both have gone away but the candida is showing up on tests.

What Are My New Symptoms?

  • Body Rash: I broke out in a rash all over my body from my thighs to my upper torso. Not one doctor could tell me what it is or what caused it but after 7 months it is starting to go away. The rash was like chicken pox but with red bumps that looked like pimples.
  • New Coinfection Proto: My LLMD thinks for sure I have a new coinfection that was missed before. I forget the name we are still testing for it.

That’s about all my brain can think of or remember but not much has improved after 3 years and my lyme is still very active. So when the CDC says it can be cured in 2 weeks do not believe them. I’ve had lyme almost my whole life though so it will take forever before it goes into remission.

I hope all of you chronic illness warriors have a safe and merry Christmas. Keep fighting and never give up hope.

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Back On Antibiotics – Herxing

26 Feb

antibiotic

 

Back On Antibiotics – Herxing

I couldn’t handle being off of antibiotics any longer. I wanted to give my body a rest after the candida scare and after the Picc and clotting. My PCP recommended taking a break also so I went with it but on my own. After (insert number of days here because I forget) I have been of antibiotics my symptoms were getting worse.

Here is some pretty solid proof that 10 days of antibiotics does not kill or “cure” chronic lyme disease and tick-borne diseases stupid IDSA/CDC. I have been on 2 years of aggressive treatment and I am nearly just as bad as when I started 2 years ago.  I would say I have progressed 5% – 10% at the most but now after stopping antibiotics I am going 2 steps back.

My neuro problems such as the turrets twitching in my head, tremors, vertigo and other issues seemed to calm down a lot better while on antibiotics. Now that I have been off I noticed they started to increase each day until recently when I had them all back full force. My head will nod on it’s own about 3-4 times (turrets twitch).

My tremors which were calm for the first time in 16 years are back and shakier than ever. My POTS and blood monitor reading is more tachy now and my reading today was 140/101 with 89 pulse and 96% oxygen. I was low with bradycardia last year and in the 50’s range. It is getting tough to walk again and I am more bedridden. The vertigo has increased (besides what mino did) and I run into walls no matter where I walk. I have to hold onto walls and objects to walk.

My brain fog and cognitive issues are also getting worse. I have no idea what day/month/year it is. I was starting to stutter daily which has never happened to me. Still have dyslexia. I cannot remember names, faces or words at all. I now just tell a story and say “that one thing” a lot. I already had bad memory short term and long term. Things were just getting worse.

So this week I started back on Suprax and Coartem. I will be back on oral Clindamycin and Minocycline soon. So far I have only herxed one time (which is as I write this). My head is splitting open, migraine and feeing very warm. But I had to get back on the antibiotics since I was in a lot more pain in my bones, muscles and body. My “stone man” was increasingly worse. I am having cold spots and neuropathy down my spine.

I have listed all of my symptoms on a previous post and there are 100’s so I won’t list them here but they are all still with me. I was hoping to go out for walks when Spring gets here but that is looking like it may not happen with this pain, vertigo and dizziness.

I will also be trying a Homeopathic treatment that should be coming in the mail real soon and I may post about it. I am also thinking about trying rifing again one day. Need to stop these bugs from having a party in my body.

I will try to update as much as I can but I haven’t had many “good” days. I hope all of my spoonie and Lymie friends are having better luck in your lyme healing journey. Keep up the fight and never ever give up life is too beautiful and there are many good days ahead. Take care for now friends.

 

– I will continue to spread Lyme awareness in Jeremiah’s name. He will be missed.

 

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Neuro Flare – Vertigo, Tipsy, Off-Balance, Tachy, Brady, POTS, Candida…

15 Feb

slip-man-hi

 

Neuro Flare – Vertigo, Tipsy, Off-Balance, Tachy, Brady, POTS, Candida, Insomnia…

First off … Happy Valentines Day to all of those who are lucky enough to have someone in your life who cares for you and you found love.

My Valentines was a rough one. First it started with my old friend insomnia keeping me up all night and all month nearly. Many people use the word ‘insomnia’ to describe staying up one hour past bed their bed time but to us true sufferers it means we stay up for days with little to no sleep at all. I couldn’t take staring at the ceiling in bed anymore so I got up and laid in my chair watching NCIS reruns all day. Then the tremors started getting worse.

I put on my PulseOX and my heart numbers fluctuated between 100’s (tachycardia) and shot down to the 50’s (bradycardia) within 2 seconds then back up/down and repeat. This is common when suffering from Postural Orthostatic Tachycardia Syndrome (POTS) which I have been DX’d with. My Oxygen levels went from 98% (normal) and went down to 89% (bad) just reaching for the remote and stayed at 89% setting the alarm off. I wasn’t too short of breath though.

More towards the evening the Neuro problems started to get worse then usual. I felt as if I was on a boat in choppy waters. I would stand up and look like I was starting a new dance craze. The best way to describe how I was walking is like a really drunk person in a wet suit with flippers on indoors. I’m sure it looked funny but it wasn’t fun. Vertigo set in so my depth perception was off and I was really dizzy, tipsy, off-balance and had all three types of vertigo at once; pseudovertigo, subjective and objective.

“There are three types of vertigo. The first is known as objectiveand describes when the patient has the sensation that objects in the environment are moving; the second is known as subjectiveand refers to when the patient feels as if he or she is moving, and the third is known as pseudovertigo,an intensive sensation of rotation inside the patient’s head.”

My usual “stone man” set in about 6pm as I have describe this before in an earlier blog post. To keep it short I feel like I turn to stone or rust up and can’t move in severe pain. It happens like clock work every night. The only thing that takes the edge off is my pain killers and time. My stomach started to ache about this time and I had sharp pains and bubble guts. It was more of a Candida issue and not the pain of C-diff which I had last year. Won’t go into detail on that or TMI. ha ha

Here it is 1 AM and things are finally starting to settle. I still feel very tachy in my chest and in my nerves. I truly believe stopping antibiotics has allowed Lyme and coinfections like my Babesia to thrive again. I will be starting a schedule to go back on antibiotics soon, I just don’t want that C-Diff or Candida outbreak again so a lot of probiotics it is. I think this proves that my Lyme disease and coinfections are very real and still active after 2 years of aggressive antibiotics treatment, injections, Picc … etc which the CDC (not a fan) says Lyme is cured with up to 10 days of antibiotic treatment (lies).

Not complaining in this post really I just like to share my real experiences and my daily life  to help others and answer questions. I am at peace with all my illnesses and I am an optimist who just wants to spread awareness. Hope everyone had a better day/night and that your lyme/chronic illness healing journey is going well. Take care for now…

 

 

 

 

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LLMD Visit Today – New Treatment

11 Sep

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LLMD Visit – New Treatment For Sept – Nov

Had to be up early which is about my usual bedtime and take a long car ride to see my LLMD today. We sat and discussed a few things that have been getting worse for me lately. The first thing was my severe night sweats which we had discussed before. The second being my male part having a candida outbreak a few months ago and the third was my brain which is getting worse each month. We also talked about my Chronic Fatigue Syndrome (CFS) and many other issues.

Babesia

All of those I mentioned above my doctor and have talked about nearly 2 years ago. The issues above have been getting worse so I brought them up again. I know many people who have nearly recovered from Babesia yet mine seems to get worse. I believe I have the strain which is harder to kill. After 1000’s of mosquito bites in one day and numerous tick bites I could have different strains of Babesia in my body.

Babesia is what is causing my night sweats which continually soak my bed daily. It makes it hard to get what little sleep I can without getting the chills from the moisture and not sticking to my sheets. I will be taking a new antibiotic for Babesia and stopping the herbal tinctures such as A-bab and Cryptolepis for now. I have already did my share of Mepron and Malarone. I will list the new abx below.

Genital Candida Outbreak

Yes this was/is as horrible as it sounds. I will not go into detail but believe me there was/is a lot of pain, discomfort and bleeding. The genital candida can look and act like genital herpes but remember Lyme can cause all sorts of herpes in your body. I have not had sex in forever so I knew I could rule that out and had a good idea it was yeast/candida from all the antibiotics I have been taking. The problem was I lost my insurance 2 days before the outbreak occurred and I couldn’t see my LLMD for 2 months after.

I treated the outbreak with various ointments and Nystatin cream. I can share that my manhood looked like a dogs chew toy and this was not fun to deal with on top of everything else. I am back to normal and about 98% healed. I will be taking some pill and rubbing a new cream on daily for the next month. I will list those below.

Cognitive Problems

I have been feeling like I am getting Alzheimer’s lately. I have had the cognitive problems for years but recently my dyslexia started getting even more jumbled and my memory is worse. I have also been having more trouble finding words to say and all of the usual brain issues. This is said to be caused by inflammation of the brain and poor blood circulation. I was given a new tincture and pill which I will share below.

Arthritis 

We also talked about my arthritis getting worse but my LLMD does not write my prescriptions for my pain pills so there is not much he can do. He just recommended some anti-inflammatories. I am getting so stiff it is hard to walk. The arthritis is pretty much all over my body.

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Blood Labs

I am getting my usual blood work done to check my organs but I am also checking for Mycoplasma and Chlamydophila Pneumoniae. I suspect I have both since I did nearly die from pneumonia and have had some lung issues. After listening to my lungs today the doctor order these tests which makes me think he suspects I have them also. The will also be checking my Anti-Nuclear Antibody (ANA) which we have tested for many times in the past. Maybe he thinks I have Lupus again? Lupus does run in my family and I thought I had Lupus before I was diagnosed with Fibromyalgia and Lyme….etc. (CBC, CMP 14, Thyroid, Myco, Chlamydia)

 

My New Treatment

Ketoconazole 2% (apply to Candida area)

Clindamycin 300mg (2 pills 3x daily for Babesia)

Suprax 400mg (1 pill daily)

Meriva 500 (2 pills twice a day)

Fluconazole 200mg (1 pill per day)

Folapro (MTHFR)

Glutathione (MTHFR)

VSL#3 (continue to keep from getting C-Diff)

Florastor (probiotic to help with abx)

*I will continue to take Milk Thistle, Chanca Piedra (which are both important for cleaning out the liver/kidneys), Krill Oil, Vit B-Complex, Vit C, Artemisinin, Vit B12, and a few other supplements.

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