First Visit To Primary Doctor
After losing my good insurance I used to have while employed I was put on many county and state insurances that only allowed me to go to free clinics. For the last 3 years I was unable to follow up with my doctors I have been going to for the past 10-20 years. Plus with Lyme your primary, rheum, specialists do not believe in chronic lyme so it makes you not want to see one.
Now that i have Medicare I needed to establish a primary doctor so when I visit the ER I can say I have a doctor and I need someone besides my LLMD to check up on thyroid issues and all the other non-lyme issues.
So as usual I had such a wonderful visit with my new doctor. She walks in and says “why do you have an IV in your arm!”. Then she asks me what medical issues I have an I got the usual responses. I told her about my chronic lyme and she tells me how she knows I do not have chronic lyme (even though she knows nothing about me). She tried to convince me how chronic lyme is very rare and people that have it have heart attacks only so that is why I do not have it.
She asked me “so why do you think you have lyme disease what are you symptoms”….as I am sitting their in pain and can barely talk, think or speak. So I said which of the hundreds of my symptoms do you want to know about. So I name a few and her reply was “these are all very common symptoms”.
I tried to mention my MTHFR double mutation, mold issues, mycoplasma…etc and she says those are all nothing to worry about and you don’t need medicine for them. I mentioned Babesia, Bartonella which she ignored.
So she wants to test me for HIV, Hep C, Syphilis… all these have symptoms I don’t have and they don’t have hundreds of symptoms just numerous ones. So I can already tell that my tests will be negative. She said my high ANA’s (Lupus) were also probably just a fluke and I don’t have Lupus either. She says I just have Fibromyalgia and CFS (as I already know I have).
The problem is that I have way more symptoms on top of my Fibromyaglia (FMS) and Chronic Fatigue Syndrome (CFS) that are not FMS and CFS related but doctors don’t like when you bring up symptoms or know things they do not. She thinks I am new to being ill when I have 30 years experience and too many idiot doctors to count who misdiagnosed me or treated me wrong.
I hate going to the doctor because they make you feel like you are just being a big baby and your pain is not as bad as you think. They make you feel lazy and fat. She tells me I need to exercise which is easy to say when you are not dizzy and running into things, in pain 24/7 … etc.
She referred me to another rheumatologist. Here we go again with the run around. She made me take my IV out and took me off all my Lyme meds because she said the meds I am on are all the worst and will damage my body. She said the IV will ruin my vein. Which I agreed with so I allowed her to take the IV out and stop the meds. After my Candida scare a while back I don’t want to go through that again, I almost lost a part of me.
I know doctors and LLMD’s don’t get along and mock each other but I am not a fan of either. My LLMD knows I am broke yet they push all these expensive meds on me and they get pricier each month. I never get a break from all the antibiotic and my body is paying for it with c-diff and candida…etc. I am not some lab rat and if I want to take a break it is my body.
On the other hand primary doctors are uneducated and they lack compassion. They read one thing about lyme in a book in college and that is what they live by. Who cares that you are sick and in pain and have proof you have lyme they know better than you and make you feel stupid.
Primary doctors always piss me off within 2 minutes of talking where I do not want to talk or fight anymore with them. I let them do their blood tests and think they know what is wrong with me. They never think outside the box or try to be like Dr House on TV and find out the real problem. When they give up trying to find out what is wrong with me they just make up some bullshit story and blame it all on Fibromyalgia. “Oh your arm fell off and you have 105 fever every night well then it’s either depression, Fibro or in your head”. Sigh
I am so lost right now and I DO NOT trust any doctors at all. I have yet to meet one who listens to me, feels my pain or knows what I am going through. They always just assume when you say you are in pain that you have the same tiny pains every other person has. I literally feel like I am dying I am not just using the word “dying” incorrectly!