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People Who Have Died From Lyme Disease – Rest In Peace

2 Apr

candle memory

 

People Who Have Died From Lyme Disease (as of April 2013)

I often get asked if Lyme disease is chronic or can be fatal. Well here is a web site that may help put things into perspective. Click HERE to see the long list. *This list could be longer and names may be missing.

 

Day Of Reflection

The Lyme community via Facebook will be holding a moment of silence for our loved ones and fellow warriors lost. “One day of reflection and one hour of silence from 6pm to 7pm (Eastern Standard Time) on May 1, 2013 for all those who have lost their lives due to Lyme Disease.”

 

People Who Died of Lyme Disease:

**I would like to add my friend Jeremiah Katches to the list below. We miss you.

Michael Cunningham
Jon Pierre Lavallee, 46
Frank John Ferrigno, 48
C. Gordon Smith, 67 Moonface Bear, 35
James Roderick Mason
Kimberly Carol McEachern, 42 Kathryn H. Brown, 85
Kim Wood, 48
Lynette McKinney, 64
CT Girl, 7 Years Old
Brett Anthony Paul, 31
Joseph F. Lyons
Freida R. Gaultney
Preston H. Longino
Dr. Basil Roebuck
J. Howard Marshall Jr.
Isabella Radestock
Dr. Carole Alton
Martin F. Dumke
Dr. Sterling Edgar Walton
Sue Ellen Helms, 55
Jodi Lynn Swift, 35
Norman Jenkins Ryker Jr.
Julian B. Backus, 52
Joan Maura Friedenberg, 53
Steve Nelson, 38
George Nijboer
Dr. Stephen Gumport
Ann H. McChesney, 58
Clarissa Tilghman Yost, 95
Piet Van Leer, 82
Thomas W. Hughes, 51
JHopkins Autopsy #26488
JHopkins Autopsy #46758
Michael Hinsberger, 53
John Miskiv
Jonathan Bleefield
Craig Moon, 46
Florence Desillier
Shelli Grossnickle
Patrick F. Bogdanovich
Darlene Joyce Deyo, 50
Robert Benton Senior
David Frederick Rosenau, 59
Patricia Bauman, 73
Amanda Schmidt, 11
Glenn Edward Killion, 36
Kevin Ring, 37
David Lee Thomas, 18
Miss Christina Marie Lambeth, 19
Kathy Cavert, 51
Dr. John Drulle
Gayla Diane Keyes, 52
Shirley Forsman
Everett ‘Ed’ Francis Ives, 53
Lynette McKinney, 64
Beverly Stanton, 53
Rena McNulty
Dr. William ‘Bill’ Nichols
Brian Pierson, 47
John W. McGrath, 75
Larry Dolan, 56
Dillon Jamison King, 37
Deiby Ashkenasy, 23
Beth Coen, 46
Richard Robley, 47
Owen Klepper
Simuel L. Danny Hogan
Elizabeth Burke Laubach Claflin
Kendall Wooten, 22
Ellen Agnes Loughlin, 56
Lori Lynn Widlund, 42
June Atkins, 77
Richard T. Mullin
Travis Wilson, 23
Professor Alasdair Crockett
Ellen Havican Watson, 20
Jesse Jonah Goldsmith Morgan, 35
Dr. Edward Stanley Arnold
Pat Pepper, 58
Gordon P. Grafton, Jr., 46
Dr. Michael G. Linebaugh
Christopher Peter Thomas, 46
Peter Edgar Hare
William Henry Boesche, 41
Robert Lee Runion, 77
Chester A. Mellen
Barry Horton, 55
David A. McHoul, 63
Arlene DeLaurier
Jamie Forschner, 5
Dr. Jane Colfax
Sharon Ann Gross, 41
Joyce Marie Woods, 46
Jenny Umphress, 21
Scott Brazil, 50
David A. Butler, 73
Gilbert Thornton Perkins, 77
Theresa Jean Wells Clay, 45
Timothy Alan Selepec, 46
Catherine Klapak, 44
Dr. John Bleiweiss
Martha Bradley, 68
Gayle R. Hogan, 66
Paul Fjare
Larry Bennett, 50
Michael Wilson
Adam Rowett, 18
Gloria Jean Baglio
William A. ”Bill” Mattson, 62
Catherine Klapak, 44
James Sanders, 55
DeWayne Murphy, 34
Mike Thomas, 48
Barry Horton
Robert Michael Hanson, 49
Edwin John Parssinen, 86
Peter Anthony Banducci, 45
Diane Varsi, 54
Randy Stevens, Jr., 6 minutes
Stewart H. Dowell, 62
John Thomas Pitner, 28
Rude, Charles Lee, 54
Jerry Balistreri, 51
Stanley V. Piser, 90
James W. Loughran, 63
Doris Grade
Rick Fincham, 44
Ted Paul Richard Hoggard, 21
Terri Dahl Fishel-Hokit, 61
Brian Hirsch, 43
Hilary Skinner, 43
Dr. Corey Brian Schmidt, 53
Carlton Tucker, 38
Kenneth Hagen, 39
David Cole, 65
Polly Todd
Richard Holtry
Bonnie Borntrager
Dana Hathaway, 51
Paula Rae Lipkin, 52
Robert Silverman, 45
Ronald S. Ferris, 55
Michele Rose-Clair
Sarah Minor, 44
Helenette Suchocki, 67
Tim Snow, 44 *
Kevin Smith *
Watt Carter
Susan Hawkes-Koons, 57
Theresa Nelson, 38
Terry Allen Wood, 48
Luther Conant, 51
Carmen Charles Casciani, 64
Alfredo Mathew Jr. , 59
Ann Vesonder, 46 *
Karen Sullivan, 48 *
Hartley Everette Jackson, 87
Chantal Seaman, 62 *
Donna O’Toole, 35
Katherine Alderson Crowe, 77
Peter Vyselaar*
Linda Fuller, 57
George Wendell White Jr. , 83
John A. Every
Stephen Dolan, 30
James Andrew Anderson, 58
Dennis Stephen Johnson, 58
Richard Delano Thoner
Philip J. LaMonico, 69
Guy Sumner, 66
Thomas Roberts
John Martini
Betty Jo Hemphill, 52
Betty Jo Loubier, 45
Gail V. Fichtl Walling, 49
P. Kevin Missett , 52
& Elizabeth Graham Missett, 58
Vickie Crawford, 55
Nina Bonderman Tarnofsky, 80
Balsorah Lamar Savely Miller, 64
Kimberly Ann Cooper, 37
Kathleen E. Schuyler, 52
Harry Hartner, 62
Vincent Sota, 47
Vincent Paletta, 61
Robert J. DiBattisto, 64
Robert J. Hoffman, 48
Jim Sazani, 59
Ginette Ellen Jones, 39
Barry Gordon, 52
Debbie Selberg, 52
David A. Butler, 73
Stacy Lynn Grow, 28
Marion A. Hastings, 68
Eleanor J. Kuhar, 81
Leslie Clifford Kiggins, 77
John N. Gamble
Benjamin O. Carter, 68
Michael G. Schulte, 69
Robert J. Thompson, 49
Stephen A. Herring, 42
Rebecca Rose Boone-Britt, 55
Rebecca Marie Jarrell Nichols, 50
Harry Phillips Sullins, 73
Thomas B. Brown, 83
Logan Kock
Frances X. Bender, 56
Imogene R. Schultz *
Bill Chinnock, 59
Teresa McGilley Redlingshafer, 72
Duane H. Johnson, 65
James Paine Koch
Eric von Schmidt, 75
Shirley E. Wolfenden, 75
Maggie McCorkle
Priscilla Moulton Shafer, 73
Judith Ross Boynton, 54
Deborah O’Connor DeMarco, 40
Raymond J. Krueger, 79
Holly Kulikoski
Richard M. Scott, 86
Donald J. Simpson
Germaine”Gigi” Chamberlain
Christine M. Rizzo
Joseph Gregory Padner, 48
Lonnie Benedict, 45
Patricia F. Gerstner, 56
Frances L. Jacob, 75
Robert M. Silver
Michael John Fried, 65
Anna Gorbsky Hladchuk
Leonard J. Spooner
Paul Butler *
Samuel Butler *
Jane May Chapman, 45
Dr. Edward L. McNeil, 81
Dr. James Alan Yarbrough, 54
Col. Bryce H. Wagner, 62
Britteny Gallgher, 17
Robert Dawson, 55
Shirley Moore, 67
Steve Cheek, 52
Sarah Elizabeth Pawson, 41
Barbara Lynn Fitzmaurice, 56
Robert Chilton
Drusilla Davis Howey, 68
Jacqueline Lewis Hacker, 55
Suzanne Spear Lawrence
Jimmy Duarte, 70
Gustav R. Persson, 62,
Patricia Ann Holloway, 71
Mary Frampton, 76
Shirley E. Wolfenden, 75
Michael Coers, 62
Robert J. Hoffmann, 48
Harry Burke, 82
Rose – Karen Johnson Rose
Bruno C. Malvezzi, 87
Robert Earl Wicker, 56
Steven F. Wells, 45
Sheldon Willis “Tex” Stout II, 66
Joseph Vocino
Lloyd Ebert, 101
Emily Powell, 15
Gregory Joseph Deneault, 45
Arda Manoukian, 50
Susan Starchuk, 62
Michael “Mike” Wilnau, 53
Lothar Bachmann, 65
John Douglas Powell, 64
Gianetto, Joseph F.
Charlene L. Kaijala, 52
Mike Gregory, 43
Russell Paul Reach, 49,
Harry E. Waechter
Buck R Benoist , 66

For more information and obituaries of these beautiful people, please visit…

http://www.angelfire.com/planet/lymedisease/Lyme/Memorial.html

 

 

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What Lyme Looks Like: Photos Of Some Of My 2 Years Of Lyme Treatment

28 Mar

 

What Lyme Looks Like: Photos Of Some Of My 2 Years Of Lyme Treatment

This is what 2 years of Lyme treatment looks like for most with chronic lyme disease. This photo is only some of my meds, injections and a small portion of IV stuff. I couldn’t find the huge box of IV stuff. Plus early in my treatment I forgot to save my pill bottles. I always wanted to post photos of this so that is why I saved most just as a visual reference to what us Lymies go through and take to try and have even one “decent” day or quality of life.

By the way out of all of these meds only maybe 1 or 2 made me feel “okay” for a day or two enough to walk outside and smell the fresh air. Just being honest. I won’t give up hope though it took my aunt 8 years of antibiotics before she felt any relief and she’s only had lyme for 20 years to my 30 so I expect maybe 8-10 years?

 

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pills 1

pills 2

pills 3

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Lyme Video: Worldwide Lyme Protest – Australia 2013

21 Mar

Worldwide Lyme Protest – Australia 2013

Just some of the many Australians Suffering with Lyme disease but just like most doctors and US states, they do not believe Lyme exists there. Have a look.

Shared From: YouTube – AustLymeProtests

Where To Send A Tick For Testing

18 Mar

deer_tick_nj_3.13383824_std

 

A Tick Bit Me, Someone I Know Or My Pet Where Can I have It Tested?

I am often asked by people I meet “where can I send a tick I pulled off of myself to have it tested to see if it is a carrier for lyme disease or any other TBD“. I always tell them to send the tick dead or alive to IGeneX for testing. However I read an article HERE about a new test for only $40. After researching the web site for the other lab I read about I see various prices and testing which I will share below.

If you are scared and not sure whether you should have a tick tested that say bit your loved one I would recommend sending it in for a peace of mind and closure. You can never be too safe with ticks and I think paying the $40-$60 is worth it so later you are not paying $4000-$6000 a month for meds and watching them suffer from this horrible disease. I’m sure there are other places you can send the ticks and I know one place has slipped my mind but I don’t have the energy to search for it.

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ESU Wildlife DNA Laboratory

Contact Information

ESU Innovation Center
(570) 422-7892
(570) 422-3724 (Fax)
Director
ESU Wildlife DNA Laboratory

Jane Huffman
jhuffman@esu.edu
(570)422-7891
Web Site
 
 
 

Tick Testing Click Here

Lyme-Aid Kit Click Here

Tick Testing

The tick is tested for an infectious agent using a sensitive DNA based screening technique known as Polymerase Chain Reaction (PCR).

The tick can be submitted dead or alive.

The test result of the tick screen does not rule out or confirm the presence of the agent or exposure to the patient.

The result is intended to provide you and your physician or veterinarian with important information, when combined with other information, to help determine risk of exposure and subsequent clinical treatment and follow–up.

Diagnostic Panel I (DP01)

  • Disease: Lyme, Ehrlichiosis, Babesiosis, Bartonellosis
  • Agent: Borrelia burgdorferi, Anaplasma phagocytephilia, Babesia microti, Bartonella henselae
  • Fee: $175.00/Tick

Lyme

  • Disease: Lyme Disease
  • Agent: Borrelia burgdorferi
  • Fee: $75.00/Tick

EHRL

  • Disease: Ehrlichiosis
  • Agent: Anaplasma phagocytophilia
  • Fee: $75.00/Tick

BABE

  • Disease: Babesiosis
  • Agent: Babesia microti
  • Fee: $75.00/Tick

BART

  • Disease: Bartonellosis
  • Agent: Bartonella henselae
  • Fee: $75.00/Tick

Diagnostic Panel II (DP02)

  • Disease: Rocky Mountain Spotted Fever, Tularemia
  • Agent: Rickettsia rickettsii, Francisella tularensis
  • Fee: $100.00/Tick

RMSF

  • Disease: Rocky Mountain Spotted Fever
  • Agent: Rickettsia rickettsii
  • Fee: $75.00/Tick

TULA

  • Disease: Tularemia
  • Agent: Francisella tularensis
  • Fee: $75.00/Tick

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IGenX

Contact Information

IGeneX, Inc.
795 San Antonio Rd
Palo Alto, CA 94303
800/832-3200 Fax: 650/424-1196

Rest In Peace – Friend And Fellow Lyme Warrior

17 Feb

Jeremiah K

 

Rest In Peace – Friend and Lyme Warrior

I literally just heard the news so I am at a loss for words. It’s been a rough week and this really saddened me to the breaking point.

Jeremiah Katches was a good friend, father, husband, photographer, lyme disease sufferer and lover of life’s beauty. He was one of the only Lyme disease sufferers I knew who was near by in California. We never had a chance to meet in person because one of us was always too ill and neither of us could leave the house.

I just talked to Jeremiah on Thursday night and by Friday he was gone.  His last message was “I love u brother an don’t give up fighting …. I’ll keep u in my prayers an pray so hard something changes for u for the best”. That is the kind of person he was, always caring and thoughtful even in his suffering.

I wish doctors could help us and that even a psychologist could use their services for free to help those who are crying for help. Jeremiah was crying out for help the last few days and nobody responded to him. I had no idea until I just read his twitter. So sad and I feel like I could have helped had I known.

The first day I met Jeremiah he was always so supportive and optimistic. He talked to me about becoming a famous photographer. I hope his pain and suffering are gone and he knows that he was loved by many.

Jeremiah had been suffering from lyme and coinfections and he was vomiting frequently and had really bad insomnia like I do. I do not know how he passed away but i do know he was in a lot of pain the last few days and lyme was breaking his body down.

My thoughts and prayers are with his family, wife and two daughters. Rest in peace brother, I love you too….

 

Here is the last message from Jeremiah the day before his passing which I think speaks for us all and speaks volumes. May his death open more eyes and make people more aware:

 

“This disease like u said is destroying our lives an it doesn’t seem like anyone cares anymore. Not even our dr’s. I’m trying to stay positive just like I’m sure u are but it’s so hard to do when no one takes us serious. I’ll keep u in my prayers an pray so hard something changes for u for the best.”

 

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Read More About Jeremiah And His Story Below:

 

From lymedisease.org – HERE

From inannahouse.org – HERE

 

or visit these links (copy/paste)

 

http://lymedisease.org/news/touchedbylyme/another-fallen-lyme-warrior.html

http://www.inannahouse.org/july-2012.html

 

Sign A Petition For Jeremiah HERE

https://www.change.org/petitions/house-committee-on-veterans-affairs-allow-veterans-to-receive-prompt-and-adequate-medical-care

 

 

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Daryl Hall Lyme Disease Interview Pt 2 – Fox News

14 Feb

 

https://www.youtube.com/watch?feature=player_embedded&v=wwY26RIWSpU

 

Another interview with rock legend Daryl Hall about his Lyme disease and coinfections. I love when famous people can get the word out for us and spread awareness. Thank you Daryl.

 

-2013

Tell Katie Couric Your Lyme Story

18 Jan

Katie K Lyme

Katie Asks:

What was your worst health scare?

‘You know Brooke Burke-Charvet as the Dancing With the Stars winner-turned-host, Frankie Muniz as Malcolm in Malcolm in the Middle and Randy Jackson as American Idol’s top “dawg” judge, but today on the show they open up to me about the health scares that changed everything. At age 26, Frankie suffered a “mini stroke” while riding his motorcycle, Brooke recently underwent a thyroidectomy after finding out she had thyroid cancer and Randy received a wake up call ten years ago when he was told he had diabetes. What was your worst health scare and how has your life changed since?’

 

Click HERE To Tell Katie Couric Your Story

 

or copy/paste to visit the link below

 

http://www.katiecouric.com/lets-talk/what-was-your-worst-health-scare/?fb_comment_id=fbc_404694796272857_2852939_405314586210878#f2c10d947c

 

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