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Babesia – Red Dots Breaking Out Again

17 Jan
babs red dots

Neck: notice to two new red Babesia dots but there are many others barely visible to the eye and not noticeable in this picture.

 

Babesia – Red Dots Breaking Out Again

Juts yesterday I noticed the small, blood red, pin-prick sized Babesia marks are starting to break out again. I had these same tiny marks start to break out last year (or the year before) while on a combo of Mepron, Zithromax and Artemisinin.

Yes these red marks are common and many people get them and a PCP, Rheum or dermatologist will tell you they are not Babesia but these marks are tinier than the common ones.

A common red mark is misshaped or pretty visible to the eye whereas the Babesia marks are usual round, barely visible and very bright, blood-red. Plus with the common ones they start to pop up infrequently and over time as you age where the Babesia marks seem to show up in clusters after taking meds. I am told tis is because the bugs are trying to reach the skin for oxygen (this could be wrong).

Last time I broke out I knew I had never seen such a red mark on me before. Then about 2 weeks into Mepron use I could feel the bugs dying off and the tiny red dots started breaking out from my shoulders all the way to my forearms and some on my body. The new ones are breaking out from my neck down.

There is one on my neck that is a lot larger than usual and that is how I noticed the break out. I then looked in the mirror and barely could make out many new ones running down my neck to my check and shoulders. I have 20/18 (don’t ask me how my eyes are always dry from lyme and I’m lucky I still have good vision) so it is easier for me to see them. If you have poor vision you probably wont notice them.

To red more on Babesia and the red marks visit the well known Lyme doc, Dr. Jones page that is packed full of info below:

 

Click HERE for DR. Jones’ Page

 

 

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Blood Results – Mycoplasma pneumoniae, Chlamydophila pneumoniae & ANA

16 Oct

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Blood Results – Mycoplasma pneumoniae, Chlamydophila pneumoniae & ANA

 

Phone Call From LLMD

I had my phone appointment today with my LLMD and I received my blood test results finally. First we went over that my Babesia is far from dying off and it’s really angry and my Bartonella is causing havoc again. I will continue treatment for Bab and Bart and add in a new RX which I will list below. I am having the usual low oxygen/air-hunger, soaking night sweats, and my ankle pain is back along with the hundreds of other symptoms.

So for now my main focus is killing off (if that is possible) my Babesia and Bartonella along with other bugs while still treating the Lyme disease. As I have mentioned before and the name still slips my mind but I have the strain of Babesia which is harder to kill than the other species. After two years of antibiotics and no progress for Lyme, Bab or Bart you start to wonder if they will ever go away.

I took notes while on the phone but my fatigue was so bad so I hope I can read my notes. I am stopping Suprax, continue Clindamycin, adding this and pulsing that which I will try to mention below.

Although I have all of this I still enjoy the beauty of life and what I have. It is truly the little things that mean so much to me. Fall, football and the holidays are here so I am happy. Now if I can only find a girlfriend to keep me warm during these cold months I will be all set.

 

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Blood Test Results

 

I tested recently for my routine CBC but I also tested for Mycoplasma pneumoniae and Chlamydophila pneumoniae which I have always assumed I have had for 30 years and I finally have Medicare so I could afford to test for it. The CBC and routine blood work are to check my enzymes and organs and see how they are holding up while on antibiotics which everyone should do monthly or bi-monthly. We also tested my blood for my thyroid such as T3 and for my Anti-nuclear antibody (ANA) count.

 

So like always I received all bad news on the results.

  • Mycoplasma pneumoniae – Positive
  • Chlamydophila pneumoniae – Positive
  • T3 count – High
  • ANA – High

 

I have Hypothyroidism so my thyroid is slow and counts are usually low so having a high T3 sounds like my thyroid is out of whack. This is nothing that worries me but my T3 has never been high and my LLMD said a new study says having a high T3 (while so sick) is good so we will let it remain high.

My ANA count being high can mean a lot of different things. My primary doctors have always suspected I have Lupus since it runs in the family so it could be Lupus. It could also mean Rheumatoid Arthritis (RA) which is what my pediatrician told my mom I would have when I got older when I was a child. I had Osteomyelitis when I was a baby and I lived in the hospital with an IV in my ankle bone marrow for a few months. The high ANA count could also be from fighting an infection which I am so it may be nothing but just joint pain. We are not really sure what to make of it.

Mycoplasma pneumoniae and Chlamydophila pneumoniae both can cause pneumonia, lung issues and possible lung cancer. In 1999 I literally nearly died from elderly pneumonia. I had only 10% of one lung left to breath with. At that time the doctors all said “how the heck did you get elderly pneumonia at your age of 24 years old?”. Now I know why since I have been living with both of these pneumonia causing bugs in me for years. My primary doctors have never tested me for either pneumoniae and never followed up after I had pneumonia.

So today wasn’t really unexpected news since I knew all along I have way more than I have tested for so far. I feel as if I am a walking petri dish so I figure there are more bugs I haven’t tested for yet. It just feels like getting kicked when you are already down when every time you have a test they find a new problem and never good news. So more bugs to kill off, time to get my SK boots on!

 

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Treatment Plan:

A-Bart (20 drops twice a day – herbal dropper for Bartonella)

A-Bab (herbal dropper for Babesia)

Cryptolepis (3 droppers full – herbal dropper for Babesia)

Ketoconazole 2% (apply to Candida area)

Clindamycin 300mg (2 pills 2 times daily for Babesia)

Coartem (4 caps twice a day for 2 weeks, pulsing 3/3 – used for Babesia/Malaria)

Biaxin (for my 2 pneumoniae bugs)

Coartem (for inflammation, Lupus, RA and Malaria)

Artemisinin (for Babesia and parasites)

Meriva 500 (2 pills twice a day for inflammation)

Fluconazole 200mg (1 pill per day for candida/yeast caused by abx)

Folapro (for my MTHFR)

Glutathione (for my MTHFR)

VSL#3 (continue taking 3-4 times daily to keep from getting C-Diff)

Florastor (probiotic to help with abx)

Cholestyramine (a binder to help with intestinal issues)

*I will continue to take Milk Thistle, Chanca Piedra (which are both important for cleaning out the liver/kidneys), 600 mg DHA, Vit B-Complex, Vit C, Vit B12, and a few other supplements.

Stopped This Med:

Suprax 400mg (1 pill daily)

 

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Artemisinin SOD

6 Jul

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Artemisinin SOD – Researched Nutritionals

I was using Artemisinin from Allergy Research Group for the past year but at my last visit my LLMD had me order this new one. I like this new one a lot better because not only does it have the Artemisinin in it but it also has other stuff to help get rid of parasites, immune support and calm inflammation at the same time.You will need a special code to order it and not everybody will be able to get a hold of some. I highly recommend it and so does my doctor.

If you like and want to find the Artemisinin for cheaper prices then shop around. Many use VitaCost which I always find is always higher than what I buy all of my supplements for. I found the Allergy Research Group Artemisinin online at 2 for $35.oo by using Google and then the “shopping” tab. I think I ordered it through pure formulas. That was on a sale and the price have gone back to normal. I prefer to buy my most of my supplements through Swanson and Amazon.

The ingredients in this artemisinin are as follows:

  • Artemisinin
    • 98.5% pure artemisia anua (sweet wormwood), the purest form of artemisinin for greatest efficacy & immune support
    • promotes healthy levels of NF kappa B
  • Pro SOD Complex™
    • clinically researched BCM-95 Curcumin for highest absorption and to support healthy inflammation levels
    • Quercetin to promote healthy levels of NF kappa B
    • Decaffeinated Green Tea Extract to nurture the body’s ability to promote healthy levels of SOD to fight reactive oxygen species
    • Black Walnut Hull to advance the body’s natural ability to fight parasites

**If you would like to buy this product you can ONLY do so from an LLMD office or by getting your LLMD/LLND’s name and signing up on the web site below. You need a “physicians code” or you cannot order it.

ORDER Artemisinin SODHERE

or by this link

http://www.researchednutritionals.com/store/item.cfm?code=CRN135

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Artemisinin SOD (From Researched Nutritionals Web Site)

Purest Artemisinin plus support for the body’s inflammation & anti-parasitic systems

Artemisinin SOD™ combines pure artemisinin for immune support, green tea extract to promote healthy levels of SOD (superoxide dismutase), curcumin and quercetin for their healthy impact on inflammation and resulting inhibitory affect on NF kappa B, and black walnut hull to arm the body’s anti-parasitic arsenal.

This product was formulated for doctors looking to support the patient’s ability to maintain healthy levels of Superoxide Dismutase (SOD) and Nuclear Factor kappa B (NF kappa B), while also supporting the body’s natural ability to fight parasites.

Superoxide dismutase (SOD) is a naturally occurring enzyme that protects the body against oxidative stress by scavenging excess superoxide. The body’s ability to minimize oxidative stress is essential in protecting cell membranes, essential proteins and DNA from damage. SOD, for example, may be up to 3,500 times more potent than vitamin C in quenching the dangerous superoxide radical. Antioxidant enzymes like SOD decline markedly with advancing age, leading to an accumulation of free radicals and oxidative damage.

Nuclear Factor kappa Beta (NFkB)is a naturally occurring protein that acts as a switch to turn inflammation on and off in the body. Scientists describe NFkB as a “smoke sensor” that detects dangerous threats like free radicals and infectious agents. In response to these threats, NFkB turns on the genes that produce inflammation. As we age, NFkB expression in the body increases, provoking widespread chronic inflammation.

Each serving contains:

  • Artemisinin
    • 98.5% pure artemisia anua (sweet wormwood), the purest form of artemisinin for greatest efficacy & immune support
    • promotes healthy levels of NF kappa B
  • Pro SOD Complex™
    • clinically researched BCM-95 Curcumin for highest absorption and to support healthy inflammation levels
    • Quercetin to promote healthy levels of NF kappa B
    • Decaffeinated Green Tea Extract to nurture the body’s ability to promote healthy levels of SOD to fight reactive oxygen species
    • Black Walnut Hull to advance the body’s natural ability to fight parasites

Suggested Use: As a dietary supplement, adults take 1 or 2 capsules one or two times daily, away from food and iron or as directed by your health care practitioner.

Free of artificial flavors & preservatives, sugar, starch, milk, lactose, casein, gluten, wheat, yeast, tree nuts, fish, sodium.

Caution: Not indicated for pregnant or nursing women. Long term administration (greater than one month) should be monitored by health care practitioner and include liver enzymes and hemoglobin testing. Detoxification reactions may be experienced by some individuals.

Researched Nutritionals’ products are only available through health care professionals. If your doctor has asked you to order, please call Customer Service Mon-Fri 8:00AM-5:00PM Pacific Time at 800 755 3402. More detailed information and purchasing is available on line for health care professionals who have registered and signed in: Click here

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Some Of My Symptoms – From Head To Toe

1 Jul

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My Daily Symptoms From Head To Toe:

A lot of people ask me about my symptoms. I can say after reading the long check list at my doctor’s office and reading all the symptoms associated with Lyme and co’s from numerous web sites that I have 98% of all the symptoms. The only symptoms I don’t have are breast pain, lactation and menstrual symptoms for obvious reasons (I’m a male).

I will start from head to toe and try to remember and list my symptoms. Almost all of these are daily except the ones that aren’t say “often”:

Head:

Brain pressure

Headaches

Migraines (often)

Ears ringing, buzzing, popping

Sensitive to noises/sound

Facial pain

Sensitive teeth to hot and cold

Extremely sensitive mouth, can’t eat anything unless it is warm or room temp (hot and normal food temp will burn my skin in my mouth and cold I cannot handle)

Cuts in gums

Swollen glands under jaw

Shocking pain for each new bite of food

Eyes hurt

Floaters in eyes

Blurry vision/double vision

Dry eyes

Sensitive to movement

Cysts form on face like zits

Parasites on forehead like 100’s of zits

Dizziness

Dry nose and loss of smell

Loss of taste (often)

Herpes/Cold sores on mouth

Sores in mouth and on tongue

Strep throat (often)

Some hair loss

Tippy feeling (my body sways all four directions)

Nightmares

Depression

Anxiety

Sensitive to smell

Insomnia

CFS

Seeing spots (bright orange and black)

Passing out

Feeling like I’m drunk or high on drugs

Cognitive issues:

All the normal cognitive issues

Long-term memory loss (lost most childhood, teen and 20’s and 30’s memories)

Short-term memory loss (usually after 24 hours I forget)

Dyslexia (from Lyme or Fibro)

Brain fog

Loss for words

Can’t read

Hard to write

Hard to speak (often)

Neck:

Swollen neck lymph glands

2 herniated discs (caused by Lyme)

Spinal stenosis

Burning skin, numb skin, tingling skin

Chronic pain

Neuropthy

Radiculopathy

Stiff neck

Sore bones and muscles

Pops, Cracks of neck

Turrets twitches (bobble head)

Shoulders and arms:

Some of my worst chronic pain in muscles and bones (Fibro and Lyme)

Stiff shoulders

Limited mobility of limbs

Numb, burning, tingling skin

Sensitive to touch

Chest and Ribs:

Pain and soreness in ribs

Muscle pain in chest/breast area

Heart skips/palps

Shortness of breath/ air hunger

Back:

This is where most of the worst pain is (Fibro and Lyme)

Old surgery scars are always inflamed and sensitive

Stiff back

Back pain

Pain down spine

Muscle and bone pain

Bartonella zits on back

Bartonella stretch marks

Stomach:

IBS

Stomach pain

Sensitive belly button

Stretch marks from Bartonella

Vomiting

Nausea

Waist down to toes:

Chronic knee pain is the worst of my pains

Hard to bend legs

Hard to walk

Sciatic nerve pain

Ankles always hurt

Bottom of feet sore

Swelling

Redness in skin (feet, thighs)

Pops, cracks, locking of knees

Chronic hip pain

Pain in hip if I lay on my side even on cushions from the pressure

Muscle pain

Paraesthesia (tingling, numbness, limbs fall asleep)

Sea legs

RLS

Very sensitive knees (with reflex hammer)

Knees freeze up and stop working in very cold temperatures

Feet are very sensitive to heat like hot pavement or wearing flip flops hurts

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Here’s an older list from last year. Some may repeat. I know I left out many symptoms since there are 100’s but of course I am struggling to remember them all. I will try to add as I go.

My daily Lyme disease symptoms (some more sever than others):

 

Head, Face, Neck

 

  • Pressure in head
  • Headache, mild or severe
  • Migraines
  • Twitching of facial or other muscles
  • Facial flushing
  • Stiff or painful neck
  • Sore throat, clearing throat a lot, phlegm ( flem ), hoarseness, runny nose

Eyes/Vision

  • Double or blurry vision
  • Increased floating spots
  • Pain in eyes, or swelling around eyes
  • Oversensitivity to light (daily)
  • Flashing lights/Peripheral waves/phantom images in corner of eyes

Ears/Hearing

  • Decreased hearing in one or both ears, plugged ears
  • Buzzing in ears
  • Pain in ears, oversensitivity to sounds
  • Ringing in one or both ears

Digestive and Excretory Systems

  • Diarrhea
  • Constipation
  • Irritable bladder (trouble starting, stopping) or Interstitial cystitis
  • Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)

Musculoskeletal System

  • Bone pain, joint pain or swelling, carpal tunnel syndrome
  • Stiffness of joints, back, neck, tennis elbow
  • Muscle pain or cramps, (Fibromyalgia)

Respiratory and Circulatory Systems

  • Shortness of breath, can’t get full/satisfying breath, cough
  • Chest pain or rib soreness
  • Night sweats or unexplained chills
  • Heart palpitations or extra beats
  • Endocarditis, Heart blockage

Neurologic System

  • Tremors or unexplained shaking
  • Burning or stabbing sensations in the body
  • Fatigue, Chronic Fatigue Syndrome, Weakness, peripheral neuropathy or partial paralysis
  • Pressure in the head
  • Numbness in body, tingling, pinpricks
  • Poor balance, dizziness, difficulty walking
  • Increased motion sickness
  • Lightheadedness, wooziness

Psychological well-being

  • Irritability
  • Unusual depression
  • Disorientation (getting or feeling lost)
  • Feeling as if you are losing your mind
  • Over-emotional reactions, crying easily
  • Never enough sleep or insomnia
  • Difficulty falling or staying asleep
  • Panic attacks, anxiety

Mental Capability

  • Memory loss (short or long term)
  • Confusion, difficulty in thinking
  • Difficulty with concentration or reading
  • Going to the wrong place
  • Speech difficulty (slurred or slow)
  • Stammering speech, stuttering
  • Forgetting how to perform simple tasks

Reproduction and Sexuality

  • Loss of sex drive

General Well-being

  • Malaise
  • Extremely sensitive to cold and heat in body and mouth
  • Neck glands cause shocking pains
  • Phantom smells
  • Extreme fatigue
  • Unexplained weight gain, loss
  • Swollen neck glands/lymph nodes
  • Unexplained fevers (high or low grade)
  • Symptoms seem to change, come and go
  • Pain migrates (moves) to different body parts
  • Early on, experienced a “flu-like” illness, after which you have not since felt well.
  • Low body temperature

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Here is my Fibromyalgia symptoms list before being diagnosed also with Lyme and co’s. I had all 15 pressure points and 3 specialists and a family doctor diagnosed me with Fibromyalgia but knew I had more. As you can see the symptoms are the same as Lyme but there are differences such as Fibro Flares that can occur more frequently than Lyme flares and hurt more of just the muscles where Lyme and co’s is muscle and bone and then there are the pressure points.

My Fibromyalgia Symptoms (Daily – Pain scale 8-10):

 

  • Widespread Pain (All known pressure points)
  • Morning Stiffness
  • Fatigue, lethargy
  • Vision Problems
  • Nausea
  • Sleep Disorders
  • Dizziness
  • Chronic Headaches
  • Cold and Flu like Symptoms
  • Joint, bone and muscle pain and stiffness
  • “Fibrofog”: Cognitive or Memory Impairment
  • Skin Complaints
  • Chest Symptoms (tightness in chest, chest pain)
  • Anxiety, depression, panic attacks
  • Muscle Twitches and Weakness
  • Memory Loss
  • Back/spine area in sever pain daily
  • Hands, feet and legs fall asleep or go numb
  • Feeling of death
  • Can’t walk due to sever pain in legs, knee joints and shaking legs
  • Cannot write with a pen on paper due to carpal tunnel and hands in pain or cramping up
  • Hard to speak at times
  • IBS
  • Sensitivity to noise, bright lights, medications, certain foods, heat and especially cold or air conditioning
  • Reduced tolerance for exercise and muscle pain after exercise
  • A feeling of swelling (without actual swelling) in the hands and feet
  • Weakness in the limbs
  • Heavy feeling throughout body and in my limbs as if my arms weigh 50lbs each.

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Here is a symptoms list I compiled over the years. May be duplicates:

Lyme Disease Symptoms List

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1. Unexplained fevers, sweats, chills, or flushing

2. Unexplained weight change–loss or gain

3. Fatigue, tiredness, poor stamina

4. Unexplained hair loss

5. Swollen glands: list areas____

6. Sore throat

7. Testicular pain/pelvic pain

8. Unexplained menstrual irregularity

9. Unexplained milk production: breast pain

10.Irritable bladder or bladder dysfunction

11.Sexual dysfunction or loss of libido

12.Upset stomach

13.Change in bowel function-constipation, diarrhea

14.Chest pain or rib soreness

15.Shortness of breath, cough

16.Heart palpitations, pulse skips, heart block

17.Any history of a heart murmur or valve prolapse?

18.Joint pain or swelling: list joints_____________

19.Stiffness of the joints, neck, or back

20.Muscle pain or cramps

21.Twitching of the face or other muscles

22.Headache

23.Neck creeks and cracks, neck stiffness, neck pain

24.Tingling, numbness, burning or stabbing sensations, shooting pains

25.Facial paralysis (Bell’s Palsy)

26.Eyes/Vision: double, blurry, increased floaters, light sensitivity

27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity

28.lncreased motion sickness, vertigo, poor balance

29.Lightheadedness, wooziness

30.Tremor

31.Confusion, difficulty in thinking

32.Diffculty with concentration, reading

33.Forgetfuiness, poor short term memory

34.Disorientation: getting lost, going to wrong places

35.Difficulty with speech or writing

36.Mood swings, irritability, depression

37.Disturbed sleep-too much, too little, early awakening

38.Exaggerated symptoms or worse hangover from alcohol

The following signs/symptoms may be present in those infected with Babesiosis:

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Fatigue

Arthralgias

Myalgia

Drenching sweats

Headaches

Emotional lability

Depression

Dark urine

Splenomegaly

Dizziness

Nausea and vomiting

Cough

Dyspnea

Fever

Chills

Hepatosplenomegaly

Jaundice

Malaise

Shortness of breath

Bleeding tendencies, bruising

Thrombocytopenia

Hemoglobinuria

Hyperesthesia

Pulmonary edema

Encephalopathy

Low to normal range leukocyte counts

Possible elevated levels of dehydrogenase, bilirubin,

transaminase*

Anorexia

Approximately 25%- 66% of Babesia patients are known to be co-infected with Lyme disease. These symptoms may continue for long periods of time, decrease, then return. A low Babesiosis titer (IgG) often indicates a chronic infection.

An acute or current infection may show a higher reading on the IgM test initially. There are over 100 species of Babesia in the United States but only ONE or TWO species are currently checked by commercial labs.

BARTONELLA SYMPTOMS

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GENERAL: Fatigue, Restlessness, Combative behavior, Myalgias, Malaise, Liver and/or Spleen

involvement, Abdominal pain, Infectious Mononucleosis-like Syndrome, Granulomatous Hepatitis

BRAIN: Encephalopathy may occur 1-6 weeks after the initial infection and is fairly common in patients

with Bartonella.

Note: Approximately 50 percent of patients who develop Encephalopathy can be affected

by seizures (from focal to generalized, and from brief and self-limited to status epilepticus). Headaches, Cognitive Dysfunction, and CNS Lesions may be evident.

RASH AND LYMPHADENITIS: Erythematous papules (red splotches or slightly raised red spots) may

develop. Such papules occasionally occur on the lower limbs but are more common on the upper limbs, the

head, and neck. The papules may appear on the skin or mucous membranes.

Bartonella may also cause subcutaneous nodules, with some bone involvement possible. The nodules may show some hyperpigmentation, be tender, fester, and/or be enlarged or swollen, but not always.

EYES: Conjunctivitis, Bartonella Neuroretinitis, Loss of Vision, Flame Shaped Hemorrhages, Branch

Retinal Artery Occlusion with Vision Loss, Cotton Wool Exudates, Parinaud’s Oculoglandular Syndrome,

and Papilledema.

BONES AND MUSCLES: Osteomyelitis, Myositis, Osteolytic Lesions (softening of bone), Myelitis,

Radiculitis, Transverse Myelitis, Arthritis, Chronic Demyelinating Polyneuropathy.

HEART: Endocarditis, Cardiomegaly.

BABESIA SYMPTOMS: (these are just the ones I have but there are a few more)

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generalized weakness
intermittent fever (low grade)
fatigue
insomnia
gastrointestinal (GI) symptoms like nausea, vomiting, diarrhea, and belly pain
headaches
muscle pain
joint pain
unusual weight gain
decreased appetite
sensitivity to light, touch, sound, or smells
shortness of breath – air hunger
night sweats and hot flashes
chills
arm and leg pain
swollen spleen
dark urine

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New Treatment – June 2012

25 Jun

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LLMD Visit – June 2012

Took a long, exhausting car ride to my LLMD today. I was put on a new treatment as expected. I am staying away from the heavy dose of the usual antibiotics for now since I have no insurance until September and to take a break from antibiotics. I asked for herbal treatment and that is what I have received.

I will be on only one antibiotic which I have already been on before so it’s no big deal. I seem to do pretty good on herbal treatments and do not herx or have huge die off. So I hope this one works a little better and kills these bugs.

(On a side note; the visit cost me $625.00 out-of-pocket and insurance does not help cover any of these meds or the doctor visit for those unfamiliar with what us Lymies go through with insurance)

 

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MTHFR!

I also finally got the results of my MTHFR test back and it was not god news as I hoped. I have tested positive for both mutant genes but I do not have a copy of the test to share the specific genes and information just yet. I will share that information when I get a copy of the test.

 

What is MTHFR?

“Methylenetetrahydrofolate reductase (MTHFR) is an enzyme that in humans is encoded by the MTHFR gene.[2] Methylenetetrahydrofolate reductase catalyzes the conversion of 5,10-methylenetetrahydrofolate to 5-methyltetrahydrofolate, a cosubstrate for homocysteine remethylation to methionine. Genetic variation in this gene influences susceptibility to occlusive vascular disease, neural tube defects, colon cancer and acute leukemia, and mutations in this gene are associated with methylenetetrahydrofolate reductase deficiency.”

 

Basically my body is and has not been producing a correct enzyme which can give me risks of getting blood clots, occlusive vascular disease, neural tube defects, colon cancer and acute leukemia. In other words I have to take 2 more pills for life along with my thyroid pill. Each mutation of the gene can be handed down from one parent each or one may mutate on its own. Or so I am told, I’m still new to this.

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Updated Treatment Plan:

Chiropractor (for herniated discs in my neck causing neuropathy)

A-BartByron White Formulas (20 drops twice per day – for Bartonella)

A-Bab – Byron White Formulas (20 drops twice per day – for Babesia)

Cryptolepis (20-30 drops per day for Babesia)

A-EB/H6 – Byron White Formulas (20 drops twice a day – for chronic Epstein-Barr virus)

Florazin (for possible fungal infection in mouth)

Nystatin (for possible fungal infection in mouth)

Artemisinin (5 days on 5 off – usual dose for parasites)

Mimosa – (from compound pharmacy -1 three times daily for parasites besides worms)

Septra DS (1 twice a day -only antibiotic I am on)

Florapro (1 per day – for my MTHFR mutant genes)

Acetylated Glutathione (1 twice a day – for my MTHFR mutant genes)

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Supplements:

Milk Thistle

Chanca Piedra

Ribose

Krill Oil

Super B Complex

B12

Vit D3

Calcium

Magnesium

Chromium Picolinate

CoQ10

Butchers Broom

Horsetail Grass

Coconut Oil

Colostrum – LD

Folic Acid

and many more…….

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How To Get Mepron Covered By Insurance And Tips

28 May

 

How To Get Mepron Covered By Insurance & Tips

Mepron

If you suffer from a nasty little parasite that is feeding off of your red blood cells called Babesia then you will most likely be prescribed Mepron. Mepron (Atovaquone) is a semi-thick bright yellow suspension (liquid) that is taken orally. The liquid resembles paint and us Lymies call it by a few nicknames such as “yellow paint”.

Mepron can temporally stain clothing, kitchen sinks, counter tops or just about anything it touches. Be sure to brush your teeth after sipping it down. The average dose myself and others I have spoken to take daily is 1 tsp twice per day. You should usally be taking Zithomax (Azithromycin) with Mepron. Mepron should always be taken with at least 20-30 grams of good fats.

 

Some good FATS you should eat before taking your Mepron:

  • 1 Egg = 5 grams
  • Cashew/Almond Butter – 1 tbs = 10 grams
  • Sesame Butter – 1 tbs = 8 grams
  • 1 Avocado = 30 grams (recommended – I make guacamole with fresh garlic and cilantro)
  • Coconut Oil – 1 tbs = 14 grams
  • Kefir – 1 cup = 8.75 grams
  • Almonds (raw) – 1/4 cup = 11.5 grams (recommended)
  • Cheese – 1 slice = 9 grams
  • 100g of cod liver oil – 99g of fat
  • 100g of cold smoked salmon – 8g of fat
  • 100g of hot smoked halibut – 5-17g of fat
  • 100g of butter – 70-82g of fat

 

*You can also eat chicken or sausage if you prefer but you will need to eat many pieces of chicken or many links of sausage. There are many other choices but these are some of the better ones.

 

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How To Get Merpon Covered Or For Free

 

Step One:

I was denied insurance coverage of Mepron last year while trying to get my prescription filled. I was told the Mepron would cost me about $1,500 out-of-pocket if I needed to buy it. After shopping around many pharmacies I found the cheapest price was $975 which is still way too much for any Lymie.

Here is how I got 2 bottles of Mepron covered. My insurance company denied Mepron not only because of the cost but because there are alternatives such as Malarone. Malarone does not work as good as Mepron.

I called my insurance company and they told me they were willing to cover it only if they knew that is the only brand/med that will work for my illness. So they asked that my doctor (LLMD) call them and verbally tell them that only recommends Mepron and that it is the only medicine that will help me.

This took maybe two months of back and forth on the phone. My doctor would say he already called and my insurance would say they never received the call. So don’t give up. By the third try the insurance case worker and my doctor were on the same page and they agreed to cover only 2 months worth (2 bottles). I have since been denied any new prescriptions for Mepron.

 

Step Two:

*This step may only work if you have little to no health insurance. Most likely they will approve you if you have no insurance.

The makers of Mepron (GlaxoSmithKline) have a program to help patients get Mepron. You can find information about this program either from your LLMD, Online or call them on the phone. The program is called Bridges To Access.

I filled out an application and mailed it in. A really nice lady called me back weeks later and told me I was denied.The reason I was denied was because I have insurance. She told me if my insurance was a certain kind it may qualify me but I had the kind that was not qualified. They are really helpful and nice and willing to work with you so don’t be afraid to call them

Click this link HERE and find out if you qualify for the program. I hear those who do qualify get at least 2-3 bottles for free. Good luck.

 

Step Three:

Ask around to other Lymies. Many of us have a whole pharmacy at home and expiring meds. There are social networks such as Facebook or Twitter to ask around. Usually people are willing to send you the bottle for free and they may even pay for shipping if you are in debt. If you know where to look there are groups for med exchanges. Yahoo Lyme groups are also good to ask around on.

I hope these tips will help you get your Mepron. I had so much trouble getting mine covered and I know many of you do too. If you have any tips leave a comment and I will add them into this posting with your name. Thank you.

 

PLEASE READ –> check my comments below for generous people who are willing to ship you their Mepron.

 

(Update)

I was able to get two more bottles for free in November, 2012 from a fellow Lymie via a group and I just paid shipping. Very nice person and helped save me $100’s-$1000’s!

 

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Interesting Mepron Info

I found this link interesting. Look at some of the studies and side effects on this PDF file for Mepron:

http://us.gsk.com/products/assets/us_mepron.pdf

 

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Babesia And Night Sweats

15 May

Water Bed

I don’t own a water bed but most of the time it feels like I do. I have been battling severe night sweats for about 23 years now. I was always an excessive sweater even on a cool day. My doctors told me my body just “cools down by sweating” even though I would sweat in the rain or snow. I now know a little annoying parasite called Babesia is the reason behind all of the sweating and air hunger.

I remember as a teenager thinking “how will I ever get a girlfriend or get married if I soak the bed with sweat every night”. Later in life this did turn out to be somewhat of an issue with my girlfriend. No cuddling at night for me. I’m single now so it is no longer an issue I guess.

I cannot count how many times I have woke up after 1 hour of sleep or 6 hours at the most to find myself in a puddle of sweat. My sheets and mattress are soaked to the core. I have even sweated through the sheets on a night that was 30-50 degrees in my old crappy house.

I can feel constant beads of sweat on my forehead and dripping down my body. If I take the sheets off and lay under the ceiling fan I get the chills. So I can never win. I get the chills often but sweats the most. I dread summer and I stay out of the sun and hot places.

When I used to work as a manager I had to wear button up shirts with a tie. I would always have sweat marks all over my shirts no matter what time of the year it was and even when I wasn’t doing anything physical. It was embarrassing and looked unprofessional.

I will say that my sweat has no odor to it and it is almost like plain old water. I have been on Babesia meds for a year and a half. This stupid parasite just wont die. One day I hope to wake up like a normal person in my nice dry cozy bed. Let’s hope this happens soon.

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