Update: MRI Results, C-Spine Stenosis Surgery Needed 

17 Oct

MRI Results

Sorry I haven’t been active for a while. I lost a couple relatives since my last post, been sicker, and things have been hectic. We had the California fires breaking out and took in some family as fires broke out near us but we are all safe. My fevers have been higher, I’ve been very tired and things have been worse than my normal worse. Let me just say this MRI was very painful and I was crying and shaking bad. I have seizures where I can’t help but moving or jerking so to try and stay still and laying on that hard surface with my bad back it was pure terror. 
I posted about my spinal issues over the years and older MRI results. My new neurologist wanted me to get an update to see if things were worse. I lost the ability to walk a few years ago but regained the ability to walk. I have herniated, bulging, exploded discs, degenerative disc disease, cysts on my spine and spinal stenosis. Well the results weren’t good. My Primary Doctor saw them first and he cringed and said “ouch” a lot and told me he couldn’t continue to read the results because they were too much and my Neuro would be better at explaining them. 

I saw my neurologist today and he said “interesting”. But he says I need surgery no doubt and as soon as possible or I will be quadriplegic (lose feeling from the neck down). My spinal cord is being crushed in a few spots on my c-spine and lumbar spine but they need to fix the c-spine in C4-5 right away. I’m losing fluid around the cord and it’s being flattened so I’m hyper sensitive in my legs and losing feeling as well. One good fall and I could be paralyzed or dead. My friends dad had stenosis he didn’t know about, fell off a small set of stairs, was paralyzed from the neck down and passed weeks later. My doctor doesn’t want that to happen to me. 

So I will be seeing Neuro surgeon numbers 2 and 3 one here in town and one at UCSF to get many opinions. I have about 4 or 5 neurologists and 3 Neuro surgeons now and some said to wait fir surgery years ago but now with the bad news they may all agree on surgery. My case is difficult because of my primary immunodeficiency, auto immune, MTHFR double mutation, lupus…etc so my risk of death is higher than the normal person and my risk of infection is very high since I’ve been on every antibiotic I may be tolerant to all. So the surgery was delayed all these years due to the high risks but now it looks like I’m having surgery very soon. I’ve dreaded this day for years. 

My poor mom is getting foot surgery in two weeks so this will be hard with just my parents and I and taking care of my niece. Plus having to drive 3-4 hours to UCSF while I puke all down the freeway won’t be fun. I get car sick very easy. I just got to stay strong and push through this like I always do. My Medi-Cal (Medicaid) was denied because of many errors the county made and then put the blame on the patient so I recently paid a surgery bill and can’t imagine how big this surgery bill will be! Wish me luck. I hope you all are doing better or finding good health care. Hang in there.!

5 Responses to “Update: MRI Results, C-Spine Stenosis Surgery Needed ”

  1. Deb Elder October 17, 2017 at 11:17 am #

    I just had this surgery myself last November. The removed my old fusion hardware, cleaned the overgrowth from both the back and front and fused yet another disc. Cool thing is I was fully fused with my 16 month x-ray, which should have taken me 9 to 12 months to achieve. My neurosurgeon was astonished, never in his more than 20 years had he seen a recovery like it. This even with my Lyme pathogens!

    How did I do it? Really pretty easy, Live Bee Venom Therapy. You see, I stung my lumbar all summer long to prepare the area. My goal to clear the area of pathogens and get it ready for surgery. I even snuck bees into the hospital to stings. The venom also lowered my recovery pain.

    Please ~ seriously consider BVT. It’s a remarkable option for everyone.
    Wishing you all the best in your upcoming surgery, I’d do mine again.

    • 49er Bryan October 17, 2017 at 11:47 pm #

      Thank you for sharing. Question, do you have limited function of your neck with the hardware on it? I know many can barely rotate their head. And did the go in from the front of your neck or back? My worry is I have woken up during two surgeries before so I hope I don’t wake during this one.

  2. Chris October 20, 2017 at 5:53 am #

    Feel better you and mom

    • Christy January 29, 2018 at 11:40 am #

      I hope this finds you well. My 16 year old son and I are homozygous MTHFR c677t. He and I both have a lot of spine problems(bulging discs, scoliosis, kyphosis, and I have stenosis and degenerative disc disease). He and I were having a lot of health problems (numbness, fatigue, brain fog, joint pain and inflammation, vision problems due to eye irritation and inflammation, etc…). We found out our new house had a mold problem due to leaking windows. Our builder bought the house back when the air quality test showed the house was unsafe to live in. My son and I also have leaky gut and all NSAIDS cause us to have GI bleeding. I think air quality, gut health, and detoxing are very important for homozygous MTHFR c677t. My husband and daughter are heterozygous and did not have the problems that my son and I had from living in the house with mold. We now have HEPA air purifiers in every room even though we no longer have a mold problem. We take Milk Thistle, drink water with lemon or apple cider vinegar, and use a sauna for detoxing. We do not take any medications except natural supplements for pain and joint health from The People’s Chemist and a few amino acids and vitamins. We avoid foods and drinks with folic acid, GMO’s, alcohol, high fructose corn syrup, artificial sweeteners, high sugar foods and try to limit processed foods and try to eat foods that heal “Leaky Gut”. I have been tested for everything. I had a positive ANA and was seeing a Rheumatologist. I do have Multiple Sclerosis. I have so many brain lesions, the MRI report just says numerous. I am no longer taking any thing for MS and no longer have any symptoms(hypersensitive feeling/numbness, fatigue, heat sensitivity, inflammation in joints and spine, etc…) I am now vegan after watching “What the Health” on Netfilx but the rest of my family is not. My son stayed with a friend over the weekend and drank soda and ate junk food all weekend. His stomach is so upset and his joints are hurting so bad that he stayed home from school today. He now has inflammation in his neck and says he gets an electric shock down his back when he bends his head down. I am not a doctor but I really believe that air quality, gut health, and detoxing our bodies is very important. Best Wishes

  3. soul October 31, 2017 at 8:58 am #

    This is off this topic above but I wasn’t sure how to send you a simple message…. I was diagnosed Lymes in 2000 (babesia wasn’t possible as the doctors told me I was simply “crazy” to think so, but they were dead wrong and I suffered for well over a decade until it was nearly too late – very glad coinfections are now in consideration) – many similar issues as you write about on your blog. I am now dealing with mast cell issues but didn’t see any link or information about mast cells on your blog. It was a HUGE wake up for me to learn of MCAS (mast cell activation syndrome) myself so I just wanted to share. Not that we want to have to look into yet another issue, but it has been a helpful area of study for me to find balance. Light n blessings to you and your family! Be as well as you can be.

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