Archive | February, 2017

Lyme Disease Commercial (Awareness) 

22 Feb

My “About Me” Update on Illnesses 

17 Feb

Added a few new diagnoses since I first started this blog. There are some illnesses I’m sure I’m forgetting on this photo and this doesn’t explain the hundreds of symptoms or acute issues I went to the hospital for or nearly died from like elderly pneumonia, aseptic meningitis…etc. I had mold issues but treated them and they are mild now. 

Septra, RLS, ECHO, Renal Duplex & More 

13 Feb

SEPTRA Causing Restless Leg Syndrome Increase?
Septra: Sulfamethoxazole / Trimethoprim, Common brands: Bactrim, Sulfatrim. I am doing a little test to see how I do pulsing three medications for Lyme instead of just doing my life-long “maintenance dose” of 100mg of Minocycline. My current Lyme doc and PCP have me doing Septra again, I’ve been on these meds a few times before. Due to my memory loss issues I couldn’t remember how I did on these meds or the side effects. The first week back on it I noticed for 3-4 days I couldn’t sleep at all due to Restless Leg Syndrome being increased. It was also causing the restlessness up into my spine. I was forced to get up and walk around after only getting maybe an hour of sleep each day. I couldn’t lay in bed due to the restlessness even though my brain and eyes were so exhausted I was ready to fall asleep walking.

The second noticeable side effect was diarrhea. I take VSL-3 and other probiotics but there is no stopping the IBS-D issues. As of lately my IBS-D has been changed to IBS-C due to OIC (morpheme causing constipation). So I went from one extreme to the next. I had severe IBS-D for 10-15 years but pain meds have helped block me up. I couldn’t tell you if one is better than the other. I’m pulsing Septra 5 days on and 5 days off with Minocycline and Tinidazole. I have no issues with Minocycline except extra dizziness. I also noticed my CFS is worse on Septra.
Echocardiogram & Renal Duplex 

I had a recent echocardiogram and haven’t received the results from my cardio doc yet but my PCP said I had a lot of “mild” issues. So I’m waiting until April for my heart monitor results and echo. I had a renal duplex today (sonogram of the kidneys and tubes). Didn’t get an results yet. Also did two blood labs. My cardiologist is trying to figure out what has caused my hypertension since I was 13, she thinks it may be genetic. The meds are helping to keep my BP near the “normal range” but I did have a long passing out episode this week again. My BP was 98/68 when that happened. My cardio doc thinks it’s my heart or seizures and not related to my POTS since it’s a different passing out issue.