I had a follow up visit with my primary Doctor last week. He was concerned of my long fainting, incoherent episodes. So I will be seeing a cardiologist in December for my heart issues, testing and monitoring my heart. I will be getting another brain MRI on Monday. If you follow me you know I had one years ago for a possible brain tumor and movement disorder. I will be getting tested for seizure testing and seeing a new neurologist since my old neuro and neuro surgeon aren’t in the area. I had more blood work and my cholesterol was high but doc thinks it’s hereditary since I don’t eat a lot of food of junk food.
I can’t remember all the testing but I will be also getting another tilt table test for my P.O.T.S. and it’s horrible. Last time I had that test I passed out which it was the test is for but I also puked the rest of the day and was more nauseated than normal. It really messes with my brain and makes me dizzy like an inner ear infection. I will also be getting a stress test but I cannot do the treadmill test since I’m barely able to walk as it is.so I’m not sure the other options. There was more testing but I cannot recall.
I lost another aunt today. It’s sad that my relatives are all passing away. Sometimes I fear I am dying and it’s hard to not think that when you feel so weak, tired and when I’m very ill.
When I have these fainting episodes that last a long time they are not like my pots passing out. With my pots I stand up, faint, wake up on the ground wondering how I got there, stand up and I’m fine. These other episodes I feel coming on slowly, my heart slows down (my heart hates being slow it’s always tachycardia), I start seeing tunnel vision, I hear people talking to me but the words are backwards so I can’t understand them, I can’t answer back, can’t move, hard to breathe, louder ringing in my ears, sound is like it is in a tin can and I can’t sit down I have to lay down right away or I pass out. I will lay where I’m at for a good 10-30 minutes before I finally start to feel a little better and words start sounding in English again. It’s scary and I feel like I’m dying. My doctor thinks it may be my heart or grand mal seizures. That’s what happened the day I fell and hit my head while in CT in the store below my apartment and I got a concussion and slept for three days with nobody to check on me.
I hope you all had a great thanksgiving and you find reasons to smile each day. If you stop and look around even on your worst day, life will give you something small but amazing to smile about. Take care my friends. Hope I can write more soon.