I finally got in to see my new LLMD here on the East Coast. I needed pain Med refills and to check on my heart and get fluids. The new doctor was awesome!! She looked at all my records and various LLMD’s reports and said “my god you are very sick and you’ve done every blood test or treatment I give here so I won’t lecture you or make you start all over”. That was great because I hate explaining all my illnesses and tests over and over then the doctor says “well I don’t trust these tests I need to run all my own” then you spend three weeks being drained of blood for tests, urine and feces samples…etc. I just want a doctor that works with my other doctor and will be open to things I want to try or tell me of new treatment that looks promising. She was just that, I was so happy to find a good doctor but now I’m moving back to Cali so it may not be for long. Plus this doctor is backed up until November already. She works with cancer parents and more.
The wellness center started by taking my BP which was 175/115. This may sound normal and most nurses think I’m nervous but I’m not. My BP will stay 175/115 for weeks, months. So the nurse double checked and checked my pulse 15 minutes later and she said “you are going to have a stroke you need fluids and BP meds ASAP”. So all the gals were worried I was going to have a stroke. I was having bad chest pains, tremors were worse and I had this funny zombie feeling like I was sleep walking or something.
They all treated me like a rockstar there. I was sat in a reclining chair, they gave me water and a lot of fluids (saline). It took about three hours for my BP to drop to 145/105. Then they let me go home. They told me I can come back anytime without an appointment for fluids so that’s great, no RX needed like most places. The doctor told me “you are my sickest patient I have here and very complicated and your records prove chronic late stage Lyme is real”. I hear the sickest and complicated thing a lot in doctors offices, they never know how to treat me or where to start due to so many conflicting illnesses.
I have been spiking higher fevers later into the night and soaking my pillow even more. I get the fever every evening everyday. Lyme fevers I guess. Not sure which illness to blame. I have been passing out and having chest pain daily. It is some costcodosis with soreness in the ribs but also feels like my chest is inflamed. I can barely walk down the stairs to get a sandwich on floor one without having to lay down and go back upstairs to my apartment. I’m very weak but my dad should be coming soon to help me pack and move. My parents just moved and got a new house so they have no spare money to help me. My cousin was nice enough to lend my dad her flyer miles. Bless her heart.