CFS/ME Is Finally Real & Renamed “SEID” & Yes Men Suffer Also 

7 Mar

I guess doctors finally believe in one invisible illness and studies have backed it and proven its real. Chronic Fatigue Syndrome (CFS or ME) is now being renamed “Systemic Exertion Intolerance Disease” (SEID). Doctors are said to finally be taking this seriously. That’s good news. 

I was watching Dr. Oz where they kept saying “women finally can feel relieved” or that only women have CFS/ME/SEID but that’s not true, men have it also and I am one of them. Kind of made me mad. They also did the same thing with Lupus saying only women have it yet men suffer from it also and I also have Lupus (SLE). Just because a majority of women have it doesn’t mean it’s only a female disease. So don’t believe everything you hear on TV or on the Internet. 

Just like Lyme disease is said to be an “easy cure” or it totally leaves your body after 10-14 days of antibiotics…..that’s total bull crap! They also say Lyme disease is not chronic, isn’t in other states or countries…blah blah all lies! The CDC and IDSA need to put the truth out there. Someone new to Lyme reads these things and gets false hopes of they may be told they don’t have Lyme only many years later to have Lyme get worse in their body and they are in a wheelchair, having seizures and cursing at the doctor years ago who told them they didn’t have Lyme. 

So I just wanted to add the fact that yes men have CFS/ME/SEID also. I have all if the symptoms and have been diagnosed with it from many primary doctors. They belived in it back when they diagnosed me but they always says there was nothing they could do to help. I tried daily self B12 injections (my B12 turned out to be high), I’ve tried everything but nothing can help the pure exhaustion, zero energy & lead weight feeling in your body. 

The only pro to having SEID is that it usually wins over my insomnia and I can sleep a lot better and longer. It’s a battle so my body is constantly confused. The insomnia wants to keep me awake while the SEID wants me to go to sleep, even while standing up sometimes. Just like my auto-immune disease and other diseases they are confusing my body and doing different things. This can be very exhausting to your body to have your immune constantly at war and your body at war with itself then adding Meds that are trying to help but add to it. 

I wanted to validate to my fellow male followers that yes your CFS is real and yes men have it too so don’t feel left out. Lol This is one step in the right direction for us sufferers and maybe some meds will be on the way that can help. It helps us feel validated. Now we need to get the other invisible illnesses studied and doctors to believe us/them. 

Have a better weekend warriors! Keep your head up, things will get better. 


2 Responses to “CFS/ME Is Finally Real & Renamed “SEID” & Yes Men Suffer Also ”

  1. Brian March 20, 2015 at 12:31 pm #

    Systemic Exertion Intolerance Disease, what a bunch of crap. Medical specialists like to appear highly knowledgeable, and they ‘invent’ a name that can be attributed to a multitude of illnesses–like MS, which is nothing more than Lyme Disease. These specialists obfuscate the real issues in their naivety, ignorance, ineptness. Let’s face it, most doctors are not qualified to be doctors.

    • 49er Bryan March 22, 2015 at 2:03 am #

      I know right? Let’s call it a name that makes you sound lazy. smh this country sucks

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