Memory Loss & Chronic Severe Pain Getting Worse

24 Jul

memory-puzzle

 

Memory Loss

One of the first signs that made me think I had Lyme disease was memory loss. I have both long-term and short-term memory loss for about 5+ years now. I take mangosteen, memory tonic, supplements and much more to help me with this issue but nothing seems to help.

My short-term memory seems to be getting worse. I always take notes in my phone for simple tasks or things people do and take for granted to remind myself what to do and when. I will email myself to re-remind me and still forget. I have been wanted to ask my mom for razor blades fr my shaving razor and everyday I forgot to ask her for bout a week even with notes and reminders.

My friend and I send songs to each other and I keep sending the same songs and then I feel bad I always repeat myself. But it feels new to me like I have never talked about it or heard the song before. I just hope this doesn’t last for life and I get Alzheimer’s or dementia early on in life. I hope this may help someone with lyme who is wondering if memory loss is related and may be scared. I cannot remember most of my life and I will forget what I did the day before or even had for dinner. But recently it just seems to me I will forget I forgot was I was forgetting.

 

 

Neuropathic-Pain

 

Chronic Severe Pain

I have been dealing with pain my whole life. I always thought everyone felt as crappy as I did and it was part of life and growing. When I was 20 years old I was told I had arthritis and chronic pain. The pain back then was mostly in my knees and hips. As lyme caused Fibromyalgia and other medical issues the pain was in my shoulder blades, neck, back, ankles…. etc. As I got sicker and bedridden 5 years ago the pain was from the bottom of my feet to the top of my head. It is a combination of muscle, bone, joint and nerve pain where some lymies will only have one or the other so every case of lyme is different and difficult to detect if you have it.

I have been on pain killers for about 20 years. I have tried every pill, liquid, patches, injections, infusions so right now I am out of options for pain meds. I still am waiting to get Ketamine and be knocked completely out that’s my last hope but I hear it only helps for the first 2-3 infusions. I am currently taking 150mg of Morphine (MS-Contin) per day, 40mg of Norco, medical marijuana, anti-inflammatory, senega root, and much more. They all help to take the edge off the pain but some nights they don’t touch the pain so I sit and try not to cry too much. You can’t even concentrate, hold a conversation, watch TV… or anything with severe pain.

Lately my pain seems to be getting worse and the last couple nights I was trying not to cry in front of my parents while watching tv with them. My dad will get upset if he talks to me and I don’t seem into his story but it’s hard to listen, comprehend or reply when you are overwhelmed in pain. I tried upping my senega root dose and one extra norco but it doesn’t seem to be helping. With my GP and digestive issues, IBS, I hate to switch pain killers since the cause back-up and constipation. I had some very horrible experiences with being backed-up too long and almost passing out on the toilet. Hoping I can try ketamine one day but one place wants way too much and the others won’t do ketamine for outsiders. My LLMD office should have it soon.

 

**Although everything may be dark and you see no light at the end of the tunnel, just keep your sails full and keep on going. We always have hope. Try to inspire someone today and make someone smile then you may smile seeing them happy. Have a much better day chronic illness family.

 

 

 

 

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4 Responses to “Memory Loss & Chronic Severe Pain Getting Worse”

  1. Noel Campbell July 24, 2014 at 5:23 pm #

    Dear Bryan

    Have you had a hair analysis to check out your memory problems which could be affected by heavy metal toxicity?

    We have eliminated pain in joints using Dr Holt’s 434MHz radio waves.

    Where do you live?

    • 49er Bryan July 25, 2014 at 12:15 am #

      Hi, yeah I have did a heavy metal test, mold tests…etc and treated for the issues. My heavy metals weren’t bad only a couple issues but not major. But the pills i took to draw the heavy metals out of my body for the test made me have a bad reaction. I have a ten unit type thing and a lyme zapper thingy the name is slipping me? Glad you are finding relief. I live in northern Cali. Thanks

  2. Kate July 25, 2014 at 3:36 am #

    I wish you would schedule an appointment with Eric Grigsby MD or a member of his staff at Napa Pain Institute 707-252-9660. They have numerous ways to help you manage your pain including pain pumps and stimulators. Thus you can receive meds through an electronic device and bypass the effects on your other organs.
    I personally credit them with giving me my life back after being confined to bed with chronic bone pain following diagnoses if Lupus, Lyme, Etc.
    The practice is staffed with professionals, MD’s, DO’s, PA’s and CNS men and women who are compassionate and have a plethora of tools to receive pain.
    Since your LLMD worked in Napa, she would be familiar with this practice and Dr, Grigsby and his reputation in the field of Pain Management.
    I hope you will consider a consultation.

    • 49er Bryan July 29, 2014 at 1:18 am #

      I will look them up thank you. The problem is I see UCSF and they want me on ketamine but only 2 pain offices do them but they are $11,000 at one and the other they do not take out of are patients. I will see what I can do with them though thank you.

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