One Item Every Lymie Should Have

20 Apr



One Item Every Lymie Should Have

If I could recommend one piece of medical equipment every lymie should have, it would be the pulse ox . My Lyme Sister recommended it to me. If you have lyme you most likely have coinfections including Babesia which steals our oxygen. We also have symptoms of air-hunger with having lyme.

Being chronically ill and so fatigued all the time it may be that you have low oxygen or your heart is off. This device will give you your oxygen and pulse on one little machine you put on your finger tip. I didn’t buy the brand above but just showing an average good ones to get. There are some lemon brands so make sure to read reviews before you buy it.









18 Responses to “One Item Every Lymie Should Have”

  1. sweetjolene April 21, 2014 at 4:01 am #

    Hi Bryan. Do you know what our oxygen readings should be? I would like to buy one but wouldn’t have any idea if a reading is good or bad or what to do about it…..
    Jo x

    • 49er Bryan April 21, 2014 at 5:10 pm #

      Depending on age or illnesses your oxygen should be in the mid-high 90’s. A normal range would be 97-99%. If you hit the 80’s then something is causing the lack of oxygen saturation in your blood so you need to see what the cause may be. If you are in the 70’s it means you have issues with your lungs or are deficient in oxygen so you will need a oxygen machine most likely if you stay in the 70’s- low 80’s. This is what I am told. Pulse should be between 60-80. If you hit the 100+ range the pulse ox will set off an alarm saying you are getting too high (tachycardia/hypertension) or if you are 60 and under you may be bradycardia. I am not a medical professional but this is what I learned over the years. So oxygen high 90’s and pulse 60-80.

      • sweetjolene April 23, 2014 at 11:29 am #

        I checked and my oxygen was 99 % and pulse 83. So pretty good. Unfortunately feel bloody terrible anyway! Grrr x

      • 49er Bryan April 24, 2014 at 12:24 am #

        Those are both great numbers! If your pulse ever reaches the 100’s or 40’s range and stays that way for months it can mean you have some heart issues or pots. I have hyper pots so my pulse used to stay on 120 or tachy. Hope you start improving and getting relief. I’m not feeling so great myself. HAVE A BETETR DAY

      • sweetjolene May 11, 2014 at 2:21 pm #

        Yes, I’ve now started getting a pulse of 120 odd in the morning first thing and in the 100s the rest of the day since I had botox shots for pain. My headaches have been excruciating, getting worse and worse…I want to tell my doctor but don’t know what she could suggest or do. Do you take anything for yours? I am extremely med sensitive.

      • 49er Bryan May 19, 2014 at 12:18 am #

        Hi sorry haven;t been well….. I take lisinopril i believe which is for the hyper tension and my heart is “normal” for now. I tried beta blockers but they make you feel even more sluggish. Good luck and let me know what your doctor recommends.

  2. Brian April 22, 2014 at 6:22 pm #

    49er, how long were u on bicillin, and….did it help u? How often did u take and did u take with orals?

    • 49er Bryan April 22, 2014 at 11:15 pm #

      I was on bicillin for 2 months at 3 injections per week up to 5 per week. It didn’t help me at all. I’ve had lyme for so long we found out nothing will help me so don’t be discouraged. I hope it will work for you.

  3. Brian April 22, 2014 at 9:38 pm #

    Will the “pulseoximeter” give me next week’s winning lotto numbers? 🙂

  4. April 30, 2014 at 10:03 pm #

    Bryan,,,,,,,,,,,never felt so bad as I did last night……Terrible headache Keep us posted we love to hear from you…………Bless you Sherry 🙂

  5. Sharon May 2, 2014 at 9:46 am #

    Hi Bryan
    You mentioned that your pulse used to stay around 120 and that you have hyper POTS. What medications or supplements has helped you with this? I just had Halter Monitor test and going for Echocardiogram test later today as baseline pulse 110-135 and goes up into 160 ‘s and 170’s with minimal exertion. Also what tests did you have done? I mentioned tilt table test and POTS to this cardiologist and he said that my blood pressure does not drop when I get stand up even though heart rate jumps way up so probably not POTS. Hope you get some pain relief soon and tycm!

    • 49er Bryan May 4, 2014 at 1:28 am #

      Hi Sharon, doctors are unfamiliar with POTS just as they are with lyme so it will take 1 out of 10 docs to diagnose you correctly. I had a tilt table and an EKG I believe. My rate was 165/110 or something high like that laying down and when I sat up it increased and then standing it increased rapidly then dropped causing the blacking out. The doctor at that time said I was “normal”. My lyme doctors diagnosed me and one other doc. The tilt table test and hot sauna room test are both horrible if you pass out a lot. One test they strip you naked and everyone is looking at you. They put talc powder on your body and put you in a hot room and turn up the temp until you pass out.

      I would get a second and third opinion. It sounds to me like you may have POTS or maybe just a tachy heart so you need good heart meds that work for you. With your pressure jumping up that can also be POTS there are different types. Some have low pulse that rises rapidly, some have high pulse that drops rapidly…etc. I can’t say it’s POTS 100% in your case. Do you pass out a lot or see stars when you stand or walk? Have a better pain free Sunday.

      • Sharon May 4, 2014 at 10:21 am #

        I get very dizzy when I stand up but have never passed out. My LLMD referred me for a tilt table test but cardiologist says I need this test. Sound site I need to at least get a second opinion. I wish we could know if any specialist like a cardiologist knows or instants Lyme Disease. I have gone on different forums and Lyme websites but no recommendations yet for a Lyme literate Cardiologist in MA. Thanks for your response as it is very helpful!

      • 49er Bryan May 5, 2014 at 12:36 am #

        The problem with dizziness is it can be caused by so many different medical issues and meds. If anything you need to get that heart rate fixed. I am taking a pill called LISINOPRIL (10MG) and my heart was always tachycardia/fast rate and high pulse for years. I tried beta blockers with no luck and finally I tried the pill I just mentioned and my heart went back to 128/82 and has stayed that way for over a month now from one pill. This is the first time in 5 years my heart has been somewhat normal. They feared I may have a stroke if my pulse and heart rate stayed that high. The number on the bottom (80) 120/80 is the one you don’t want to be too high. So if you are 120/120 then you need a heart med asap. I wish you luck. You may want to contact barb at and see if she can recommend a lyme friendly cardio doc. or tell her you are a lymie.

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