Advanced-Lab Lyme Culture (Blood Test)

2 Mar

logo

 

Advanced-Lab Lyme Culture (Blood Test)

I just wanted to quickly answer some questions I see often asked about the lyme culture test. The Advanced-Lab Lyme Culture (spirochete test) is what is called a “direct” lyme blood test. The other lyme tests are “indirect” and can be very inaccurate. I am told and guaranteed that the Lyme culture is nearly 98% accurate, no false-positives, and the test is very easy to read and understand, it will either say “positive” or “negative” and it comes with pictures (2″x2″) of the spirochetes grown in your blood if positive. There are no bands to figure out on this one.

The reason I highly recommend this test is because after 3 years of many Western Blot tests which were “INT/IND” or “Negative” and after treatment I was beginning to think my Lyme may have been in hiding but I was still disabled. I couldn’t understand how I could feel so horrible in a living hell yet my blood work would show nothing. Doctors would belittle me and say there is “no lyme in California blah blah” So I took the lyme culture as a peace of mind to know for sure if I had lyme disease and for proof to show to all the doctors who laughed with that “I told you so” look on their face when my Western Blot was negative.

So many people ask if it is worth it and I say yes it is. It is the most accurate test that I know of. All of my doctors including primary (IDSA) doctors even believe I have chronic lyme now. All of my LLMDs swear by the test and I no longer have to keep testing for lyme hoping to catch it in my blood.This was really a game-changer for me and my case so I hope it may help some others. If your primary has a problem with the test you can get advanced-lab to write you a letter by email that says “there are no false positives, it’s accurate and they stand by their test…etc”.

Cost?

The cost was $500 when it first came out (Dr B was also doing free tests when it was brand new) but it costs $700 last year when I had mine. I have Medicare and they do not cover it. I am not sure if any other insurance may reimburse you.

Where Do I Get The Test?

Your doctor or LLMD will have to order the test kit or have it on-hand so call the office and ask if they have it in stock or offer the test before you waste your time/energy driving there. Only certain offices will have the test kits so if your LLMD does have it then try a nature path or any other doctor that deals with lyme. My test was from a LLND not from my regular LLMD office. But that office no longer takes Medicare patients so I cannot go back to see him.

How Long Does It Take For Results?

This questions depends on your case of lyme. The fastest turn-around on getting the test results back is 10 days which I am told isn’t common so I think this means very active lyme or the lyme has been in your body forever (I’m not sure though). Most commonly results can take a month up to a few months I believe to get back. So you will need to be patient with this test.They are trying to grow spirochetes in your blood.

My test came back in only 10 days, I received a phone call from my doctor with the “bad news” then was mailed a letter from my LLND’s office that was from advanced-lab showing the positive results with a picture of 3-4 spirochetes in my blood. They even glow lyme green.

Special Instructions:

I cannot remember all the details but I know they only do the test on certain days and at certain times of the day so Fed Ex can pick up and get the blood out on time to ship it overnight ASAP after the test (if it is late you will need to do the blood work over again). The phlebotomist will need to read the instructions carefully and get the vials just right. You can’t be on antibiotics for 30 days before the test (I think it was 30 days or 2 weeks). I can’t remember if I had to stop other meds just for the day or fast but they will let you know at the office.

*I am not a doctor and I do not promote any companies, I am only expressing my personal opinion and what details I can remember. I could be wrong about some of the things I wrote but these are all things I have heard from advanced-lab their self via email or straight from my LLMDs mouth. This is also from personal experience.

Good luck and I hope you get the results you want! Stay strong lymies!

___________________________________________________________________

Advertisements

7 Responses to “Advanced-Lab Lyme Culture (Blood Test)”

  1. steve March 2, 2014 at 7:07 am #

    your saying that its not covered by medicare or probably any insurance company.But whats important is, is this accepted. as evidence that one has lyme and can then get treatment that would be covered by insurance. If its not accepted evidence then what would be the benefit, if you can’t get treatment?

    • 49erBry March 3, 2014 at 1:17 am #

      I understand what you are saying. But the western blot test although covered and accepted, the primary doctors know there are “false positives” so they have that in mind and use that against us any chance they get even if you are positive. My last primary looked at my advanced-lab (AL) positive test and the first thing he said is “I don’t believe you have lyme this test is only a false positive”. So I said “no look again this is not the western blot it is the advanced lab which has no false positives”! My brain hurts so I hope I make sense. The advantage to the AL is that it is accurate and no false positives although it may not be accepted just yet. But for me it has been a blessing and is accepted almost every visit with many docs except the one idiot doc who thought it was a western blot. I even had my worst doctor who is evil that said I did not have lyme accept the AL test and she even gave me doxycycline for as long as I needed it and was willing to help. At first she just thought I had HIV, said there was no lyme in Cali although I told her I have been treating for lyme for 3 years and been sick with it for 30 years. After I showed her the AL test she actually said “you poor thing okay I believe you now” I was in shock! I find this test a good way to educate IDSA or GP/PCPs also on the different tests. My mom says she thinks Medicare did reimburse the AL test. I cannot remember since my memory is so bad. Maybe it’s just my case but I wanted to share with others you may have success with it too.

  2. Justin March 2, 2014 at 7:08 am #

    Any word if this test is allowed in NY state yet or when it will be?

    >

    • 49erBry March 3, 2014 at 12:58 am #

      Last I heard they were not but that was months ago…

  3. Brian March 2, 2014 at 1:52 pm #

    I almost did the culture but decided on an igenex western blot which came back igenex positive.

    • 49erBry March 3, 2014 at 12:58 am #

      That’s good, then in your case there should be no need for the advanced-lab test. Hope doctors are helping you and you get some relief.

  4. Miss Diagnoses March 16, 2014 at 12:53 am #

    I also did IGenex recently with my LLMD and got CDC/NYS positive IgM, but negative IgG (actually IgG maybe was IGenex positive and CDC negative). I’m so new to all this and I don’t understand it yet. I was surprised that Medicare covers IGenex. A good thing too, because so many tests are illegal in New York State and we have so much Lyme here.
    Ugh, I can’t believe that idiot who told you there was no Lyme in Cali. My friend in the Bay Area got bitten at her own wedding, during the outdoor photo shoot. She got a bullseye the first day of the honeymoon.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: