Heavy Metal/Toxic Metal Testing (IV) & Butrans 15mcg

10 Oct

IV arm

 

Heavy Metal/Toxic Metal Testing (IV) & Butrans 15mcg

Yesterday I visited my newer LLMD for a heavy metal urine test. They are testing my body for any toxic metals that may be inside me such as mercury.  I was supposed to have this test years ago but this one is different than my other LLMD had. I used to work with metal and as a carpenter I would cut would that contained arsenic that I inhaled that made me feel sick. At that job they didn’t care about safety so I would inhale it and get stomach cramps and feel faint. So I may have some high metal levels.

So the test is 6 hours of urine collection. They give you 5-6 pills and 2 different meds injected in an IV to draw out the metals. The meds they gave me made my urine smell like sulfur. I worked in a refinery so I smelled a lot of sulfur when the trucks came to fill up their tanks, yuck.

So I sit down in the IV therapy room in the chair and the nurse explained to me how it all works. She explained to me how there are side effects that “only 10% of people get” and she swore to me I would not have any problems from the IV/Pills. I swore to her I always get side effects and I would be the 10%. The side effects are an allergic reaction which causes “fevers, chills, headaches…” which we already have with lyme anyway. She said if I got an allergic reaction it would show up between 6-8pm.

Well with my luck I got the allergic reaction to the IV/pills at around 6:30 pm (IV was at 2pm). I started with a fever then had the chills really bad and my hands were cold as ice. Then my usual daily pain (9-10 on the pain scale) became a 12. I was hurting so bad even my soft chair and bed felt like I was laying on a hard jagged surface. I felt like my flu like symptoms with lyme were going crazy.

I am still in more pain than usual. The fever and chills are gone but I still feel extra sick. I took 50mg of benadryl and tylenol to help with the reaction. I will never do that test again. The pain was so bad I cried pretty much all night and day and I am used to severe pain. It must have made my lyme mad my bones, muscles, joints, arthritis…every part of me hurt more than usual and I didn’t know that was possible.

It will be 3-4 weeks before I get the results.

 

butrans 15

After being out of my Butrans pain patch for 2 weeks thanks to my PCP I finally got my 15mcg in today. CVS, Walgreens don’t carry them so Walmart had to order them. There was a back and forth battle with insurance, the doctors, pharmacy to get them. I guess it’s a really high dose and not a common thing.

I don’t feel any big difference with these patches. They said I would but it makes me feel maybe 5-10% better as far as pain goes. For me there is no “high” or “loopy/feel good” feelings I really don’t notice I have it on. I’ve been on 5mcg and 10 mcg for a couple months now. I wish some pain killer would help but for now my 30 mg of Norco a day and Butrans 15 take the edge off.

 

 

Hope all you lyme warriors are hanging in there and finding better days.

 

 

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13 Responses to “Heavy Metal/Toxic Metal Testing (IV) & Butrans 15mcg”

  1. Doug (@JaxMaddox) October 10, 2013 at 9:31 pm #

    Ya, when you’re in a ton of pain there’s no high or even elevated mood to any painkiller. It just means less pain, sometimes.

  2. Lemons 'n Lyme October 10, 2013 at 9:44 pm #

    There was nothing they could do for the allergic reaction? Im sorry, that sounds rough 😦 I hope you start feeling better soon and that the results show something that may be treatable to help you feel better!

    • 49erBry October 10, 2013 at 10:16 pm #

      Thank you. They just said to take benadryl and tylenol but that didn’t really help. I almost went to the ER but they are never willing to help me. How are you doing?

      • Lemons 'n Lyme October 11, 2013 at 8:07 pm #

        The usual, I’m hanging in there. Lol! Just trying to keep fighting! 🙂

  3. Marie October 10, 2013 at 10:13 pm #

    I enjoy reading your posts . Is this the DPMS challenge test. My daughter ,aged 18 has neuro systems – seizures, fainting, chronic tiredness. I have been recommended to do this . Please advise .

    • 49erBry October 10, 2013 at 10:20 pm #

      It was an ICD-9? On the paper for the test it says Dr Data “urine toxic metal profile”. Has your daughter been tested for Dysautonomia in addition to Lyme disease? POTS can cause fainting.

    • Liisa October 11, 2013 at 8:03 pm #

      I have Lyme and had the DPMS challenge urine test but it only required oral meds prior to the test (and I did not have an adverse reaction.) Wow – lots of metals came back positive. However, my MD feels that the treatment to rid my body of metals could interfere with the Lyme treatment so I chose to try to get rid of Lyme first.

  4. SHERRY SMITH October 13, 2013 at 8:23 pm #

    Hang in there Bry,,,,,,,,,,,,,,,,,,,,,,,,,We are all so sick too and Never give up………….Jesus is with you every step of the way……………………….Love Sherry Smith 🙂 Praying for you………..we are all praying!

  5. vm October 20, 2013 at 11:53 am #

    Hi 49erBry,

    I have been reading your posts about Lyme for a while now. Thank you for making your incredible struggle known. I have been really sick for a long time, too. Your problems over the years seem to mirror mine – more than most other Lyme posts.

    Lots of Lyme people say that they get better with long-term anti-biotic use – I just got worse and worse. They told me it was a “Herx” and that it would go away eventually. My so-called “Herx’ has NEVER gone away. I no longer believe that it is the herx that is wrong with me.

    I am in such severe pain I cannot leave my house – I can barely leave my room. It is such strange pain – all up and down my spine and all over my body and it gets so bad that I am screaming and moaning on the floor. I, too, take many painkillers but they don’t even come close to covering the pain I’m in. What is up with that?

    They also told me it must be mold. But I took a mold test and found that I have barely any mold in my house.

    They told me it was Lyme neurotoxins. But which toxins, exactly? Why don’t I feel any better after a cleanse? If anyone could find out the chemical structure of the toxin, then we could make and anti-toxin for it, right?

    Then they said it was my diet. So I eliminated foods one at a time until I was just about only eating air! None of the things I eliminated made me feel any better: wheat, sugar, milk products, root vegetables, etc.

    Then they said it was all in my head. So I took SSRI antidepressants. This was a very bad idea. I had very adverse reactions to these medications. They told me I should keep taking them anyway until the adverse reactions went away. One of them made light so bright that my eyes and head hurt even with the shades closed or in the middle of the night! One of them made sound so loud that when I turned on the water to take a shower I had to quickly turn it off because of the roar of the water! Yet another one made me obsessively talk to myself for hours and hours and I couldn’t shut my head up!

    Even though I reported these very strange and adverse effects to each psychiatrist, they STILL wanted to try more antidepressants! Are they crazy?

    Then they said it was inflammation. I take enough Advil to kill a small horse and even that doesn’t touch the kind of pain I’m in.

    For me, I felt better (pain-wise) before I ever took any antibiotics. It was around week 6 of my first antibiotic regimen 5 years ago that I began to experience so much pain, that I didn’t even know it was possible for a person to be in that much pain.

    Unfortunately, I was told it was a herx and that it would go away soon. Now, 5 years later, I am still in an incredible amount of pain – so much that I find I cannot adequately describe it to doctors or family members.

    So, if it’s not a herx, and it’s not mold, and it’s not heavy-metals, and it’s not inflammation, and it’s not my diet, and it’s not in my head, then what the holy heck is it?

    Why is my body in soooooo much pain? Why doesn’t any of the stuff that works for all these other Lyme people on the Lyme message boards ever work for me???

    And why do I feel like I am in so much MORE pain than people report on these message boards?

    I don’t know, but I think I feel a lot like you do.

    • Branwen November 4, 2013 at 1:37 pm #

      Hi VM,
      I have had this effect with certain antibiotics (Penicillins and Penicillin cross-over antibiotics) LOTS of unrelenting, throbbing excruciating pain! I don’t react like this to every antibiotic; I am on Doxycycline and Azithromycin for Lyme Disease, and my pain levels have much improved! I was told that I probably had an allergy to Penicillin, and since it was a mold…maybe I have mold allergies (aged cheese and peanuts effects me this way too)…I was told it could be a yeast issue/candida…has that ever been suggested to you? Have you tried a variety of unrelated antibiotics to see if there are some you can tolerate? Has intestinal permeability been suggested to you as well? WIth that, the mucousal lining of the intestine has eroded, leaving small openings in the intestine from which toxins (from whatever you ingest) escape and circulate into the bloodstream. It can result in a tremendous amount of inflammation in joints and muscles, which will cause alot of pain. I had to revise my diet, as you have done; Gluten-free, Dairy-free, and (almost) Sugar-free (I’m getting there, but haven’t been able to give up sweetened coffee yet). If you experience pain shortly after eating, this could be a problem for you…and it may also be responsible for some of the reaction you are having, as you can develop alot of food and chemical sensitivities from intestinal permeability, as is my understanding. For this, Aloe Vera (whole leaf) helps to heal the intestines, as well as Slippery Elm. And take lots of quality probiotics (they typically require refridgeration!)
      I have been where you are, pseudo-paralysed from the pain..I couldn’t even move a fraction of an inch without the most unbearable pain, a pain so intense I can’t describe it.
      I’m wondering if you have an allergy to some of the antibiotics, so maybe you can discuss this with your Dr. and you could be tested to find out if there are any that you can tolerate.
      I’m also wondering if you have tried, or ever considered, trying a natural/ herbal protocol? I’m so sorry and I hope that you can find the answer to this…I have to mention that whenever I have any surgical procedure or magnesium citrate supplementation, my body responds exactly the same way….I am bedridden with unspeakable pain from three to six months at a time. Please let us know what you find out! Best of luck!!!

      • vm November 23, 2013 at 10:09 pm #

        Thanks for responding, Branwen!

        I have indeed tried about 5 different probiotics (even the expensive refrigerated kind!) but to no avail. Maybe there’s something to this intestinal permeability – but I wonder, if our intestines were permeable to the bacteria in there, wouldn’t we be dead? There are some really dangerous organisms in the digestive system and it if were to leak out into the rest of the body, I don’t think we would just be sick – I think we would be dead!

        But, of course, I don’t know. But I do feel that there is something to “permeability” in the body in general. My doctor has put me on Desmopressin (which is synthetic vasopressin). It is supposed to help the body retain water. I was always wondering why even after drinking tons of water, my skin and mouth would be so dry?

        My doc says that if the body doesn’t keep up the right salt to water balance that the water can leak right out of the cells, so that no matter how much water you drink, the cells are not retaining it.

        (Warning: if you have a salt balance problem in your body already, desmopressin could be really dangerous – like death dangerous!)

        So far, this desmopressin has helped slightly – my tongue is no longer coated – I know everybody thinks that is candida, but I took antibiotics for candida years ago and and it never even touched my coated tongue problem. But this stuff has! It hasn’t solved that problem permanently, but maybe after a while it will?

        Desmopressin has also helped this other weird problem I haven’t heard many people talk about but when I lay down for long periods of time (and I do that quite often as you can imagine), it feels as it something pools down along my spine. If, in fact, my cells have a leaky water problem, then desmopressin should help this – and it does! So, that was interesting. And now on to address the next half-million things wrong with me…

        To answer your original question – I have tried many many different and varied types of antibiotics and natural antimicrobials – and they ALL hurt like hell. I don’t know why. But they do. And now that I’ve been off them for a year, I’m starting to feel slowly – veeeeerrrrryyyy slowly better.

        I’ve even tried Aloe vera!

        My next kick is Jasmin Auriculatum in some Green tea. I’ll let you know if it does anything!

        Best of luck to you, Branwen!

  6. Lisa November 9, 2013 at 8:03 am #

    I have chronic Lyme Disease, discovered after years and years of severe leg and arm pain, extreme fatigue, weight gain, migratory joint pain, insomnia, and inexplicable “stupid moments”, which I now know is “brain fog”. I was tested multiple times for everything from leukemia to rare genetic disorders, and was tested for Lyme’s at least 1/2 a dozen times. All came back negative. Finally, I was told I have a virus in my legs and to let it “run it’s course”- this was 7 years ago.
    Two years ago, I began seeing a wonderful D.C., N.D. after I was bitten by a brown recluse and developed life-threatening MRSA. Post surgery to remove the infection, and mammoth amounts of intravenous antibiotics (including one they pulled out of the research lab), I was alive. The antibiotics wreaked complete havoc on my digestion (any food made me bloat to about an 8 month pregnant belly), and severe continual leg pain. I was told the leg pain was “nerves regenerating”. I have lost 3 jobs in 3 years because I am not my usual high functioning self, and have been paying thousands out of pocket because my insurance won’t recognize anything is wrong. It was suggested that I seek psychiatric help for my hypochondria.
    Enter my Dr. (the mentor of a Naturopath I saw who saved my spine post car accident from a titanium rod and 20 titanium screws). Dr. treated me for the brown recluse bite and other stresses post hospitalization for the MRSA. Two months ago, Dr. Irestone gave me the homeopathic remedy: Borrelia from DesBio Series Therapy. I was not told initially what it was for, as he did not want to “lead my body”. The instructions on the box, and from Dr. said that between vials 2 and 4 my symptoms would get worse before they get better. And they did! I felt every pain from my childhood traumas on up in that week and a half, but I lived with the pain, crawled around for several days, cried and cried, prayed for death or relief, and by vial 5 my body felt much more relief.
    Dr., himself, has gone through a 11 year ordeal of trying to figure out what was wrong with him, flew all over for answers, and finally was told Lyme by a Lyme specialist. I am on my 3rd pack of the homeopathic remedy, and am also taking other individualized supplements for my personal needs (digestion, sleep, joint pain). However, I am feeling closer to human every day! My legs no longer make me cry out in pain when I get out of bed in the morning, my insomnia is shorter lived, and the brain fog has more good days than bad. I only really get fever and chills when my body is fighting other elements. I did go back to fever and chills during my bad allergy season.
    Keep seeking treatments that work for you! For me, Western medicine has been supplemental to traditional. The king-sized quantities of IV antibiotics definitely saved my life, but now I follow up with my natural dr., and I have more relief from the symptoms. I am living with MRSA and Lyme’s, and I am finding what works for my body. And, I know every individual is different~ I also believe in the power of prayer. I pray to God on a daily basis, that He will guide my medical professionals to help me find relief and healing, and that He will give me the strength to live through the bad days, while increasing my good days. I pray the same for each of you, and will continue to add you to my daily prayers.
    God’s blessings!

    • vm November 23, 2013 at 9:48 pm #

      Sorry for all your pain and misery. This really sucks. I am currently having a fight with God, so we’ll leave Him out of this for now :O

      I agree that both Eastern and Western medicine has failed us all.

      But, I don’t agree that all of us are all that different from each other. I think some things work for some people and not others for a very good reason – I have not idea what that reason is, but it’s there! I just think we have not cracked the Lyme case yet and still have no idea what’s really going on in our bodies.

      Perhaps the antibiotics have actually killed off all the Lyme (for those of us on them for years anyway) and what’s left over is what’s hurting us so badly. I don’t think it’s toxins (maybe it is?) because no one has been able to say what that toxin is definitively and create an antitoxin.

      I think, perhaps, that instead it may be damage left over from the Lyme bacteria. I saw an article that talked about how it uses our own immune system to break through the blood-brain barrier and into the spine. I’m thinking that in order to do that it had to make little tiny holes in the barrier and l think pain and body malfunction could be from a bunch of tiny little holes all along the barrier.

      And maybe some people get better over time because their bodies plug those holes faster than others – or maybe they didn’t have as many as the rest of us to begin with.

      I don’t know. I could be way off base here, but hey, nobody seems to really know.

      I heard about that borrelia therapy, but didn’t think it was such a great idea to put any MORE Lyme in my body – even it IS dead.

      I still really do believe that there is one thing out there that will help us all and the idea that some variation of things will work for some and not others is really just people trying all kinds of things to make themselves feel better – and understandably so! We can’t just sit back in all this pain and do nothing!

      But the unfortunate side-effect of this approach is that we have a whole lot of anecdotal evidence and no real scientific proof of any of these things are really working. And since most of us have tried the million anecdotal things out there and are still sick (maybe some are not AS sick as we were, but still not well by far) is pretty good evidence that we have not yet found the real answer to this very painful mystery.

      Thank you, Lisa. And the best of luck to you. I will, too, add you to my prayers if I ever get back to them!

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