Quick Update: Butrans

7 Aug

butrans

 

 

Quick Update

 

So far being on the Butrans Pain Patch 5 mcg/Hour hasn’t helped any.  I am starting on the lowest dose and working my way up to 20 mcg in a couple months. I am still having to take my normal amount of pain killers (norco) which for me is 25 mg per day. I am on my second patch or week 2 of the monthly dose.

What I have noticed since starting the patch was I feel even more exhausted than usual and I was actually falling asleep around 2-3am and sleeping at least 4 hours, 2 hours uninterrupted. So I was happy to finally get some sleep for once. I just always have no energy at all from the CFS so feeling even more exhausted isn’t the greatest feeling. So it’s a good and bad thing I guess.

The maintenance dose of Doxycycline (200 mg per day) hasn’t been helping so far and there is no herxing. I don’t miss herxing but at least I felt the meds were doing there job when there was a herx after taking them.

My C-Spine is acting up again and I can feel the herniated discs pinching on a nerve. It makes it difficult to lay my head on my pillow at night because no matter which way I lay it pinches. Th pain meds don’t seem to help at all with the pain from the nerve being pinched.

I will be getting my medical marijuana card (mmj) real soon and trying some mmj products to see if they help much. I have had at least 5 doctors highly recommend medical marijuana and I have been smoking it but I haven’t tried many of the different strains they offer at the shops for different symptoms. So it’s worth a shot.

 

I hope all of my spoonie/lyme friends are having some healing and progress. If you are struggling and feel like giving up, don’t give up the fight there are better days ahead you just have to get to them. Stay strong and keep fighting don’t let the bugs win. Best wishes to all.

 

 

 

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8 Responses to “Quick Update: Butrans”

  1. SHERRY SMITH August 8, 2013 at 7:58 pm #

    Bryan dont give up I have had Lyme for 18 yrs and no one wants me, my husband left me in 2006 and took all the money……….I am a domestic Violence survior………..I praying for you……….keep al of posted. God Bless you Bryan…………………Sherry

    • 49erBry August 12, 2013 at 10:24 pm #

      I’m sorry to hear that Sherry that is all horrible. I am glad you are a survivor though. Sending my best to you.

  2. Bill August 10, 2013 at 4:49 am #

    Bryan and Sherry I am so sorry for all the suffering you both are going through. Aside from the physical and psychological pain, this disease is so isolating. Even trying to explain what he’ll we are going through is so hard to explain. I understand your suffering as I deal with so many of the same struggles day to day. Take heart from this.

    Bill

    • 49erBry August 12, 2013 at 10:23 pm #

      Bill, i truly hope you have some better days surrounded by good friends or family. Keep you head up and keep up the fight better days will come.

  3. tersiaburger August 13, 2013 at 11:27 am #

    I am so sorry for your hardship and pain. I hope the new combination of drugs will kick in and work. I may not comment often but I follow your blog and am just at such a loss of words – no words can provide you comfort. Reading your blog I feel the same helplessness that I felt with my daughter, Vicky, who died 208 days ago. Good luck and hang in there!

    • 49erBry August 17, 2013 at 11:16 pm #

      I am so sorry about Vicky. It is hard when you feel so helpless. I have many friends and loved ones suffering and I wish I could help them all somehow. Thank you for following my blog and for your kind words. I hope you find some happiness. Take care

  4. blamom August 19, 2013 at 2:22 am #

    Hey Bry, just getting over yet another reinfection. Considering it’s mid August, I’m doing good. By this time last year I was on my 3rd reinfection. Of course being cooped up in the house due to all the rain has helped. Yea for us……… Have a good day my friend and I’ll see ya next May.

    • 49erBry August 20, 2013 at 9:15 pm #

      Oh no sorry to hear that. Hope next May you are tick free. Hope you are doing well. Take care.

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