Archive | March, 2013

Update: Homeopathic Borrelia Treatment Finished

30 Mar

desert bio

 

Update: Homeopathic Borrelia Treatment Finished

I thought I would share my experience now that I have finished this treatment. If you want to know more about the treatment and where to buy it click HERE.

My memory is not the best but I believe by vial 3-4 I was herxing. This was not my usual “omg I am dying” severe herx I get while on antibiotics but it was a herx. I feel it was working. By vials 5-10 no herxing and no improvement. I can say this may work for some and maybe since I am considered a “complicated case” but my LLMD and my new LLNP that this was not aggressive enough? So I say for $49 it is worth a try.

I started back on Clindamycin and Minocycline right after since I was losing my ability to walk and really having a tough time. Within 3 days back on antibiotics I had a severe herx and spend all night in bed with my head splitting open and crying. I was so close to going to the ER but as I have said before they never help me and roll their eyes and yell at me when I mention Lyme or antibiotics. So I used all my detox methods and hoped for the best.

I am having a horrible few weeks (ore horrible than the usual horrible lol) and I cannot wait to see my new LLNP. I tried to get in earlier but he is booked as usual. I have no idea how I am writing this now but I needed a distraction from all of this.

 

– I want to wish all of you Lyme warriors a Happy Easter!! Remember to find just the smallest reason to smile through the pain and know that better days are ahead. Never give up the fight.

 

 

 

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What Lyme Looks Like: Photos Of Some Of My 2 Years Of Lyme Treatment

28 Mar

 

What Lyme Looks Like: Photos Of Some Of My 2 Years Of Lyme Treatment

This is what 2 years of Lyme treatment looks like for most with chronic lyme disease. This photo is only some of my meds, injections and a small portion of IV stuff. I couldn’t find the huge box of IV stuff. Plus early in my treatment I forgot to save my pill bottles. I always wanted to post photos of this so that is why I saved most just as a visual reference to what us Lymies go through and take to try and have even one “decent” day or quality of life.

By the way out of all of these meds only maybe 1 or 2 made me feel “okay” for a day or two enough to walk outside and smell the fresh air. Just being honest. I won’t give up hope though it took my aunt 8 years of antibiotics before she felt any relief and she’s only had lyme for 20 years to my 30 so I expect maybe 8-10 years?

 

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Quick Update – Could Not Walk, Wheelchair Soon

23 Mar

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Quick Update – Could Not Walk Wheelchair Soon

The last month has been one of the worst for me. I feel like what little progress I made in 2 years has relapsed. My spine and neuro symptoms are getting worse. I will be seeing a new LLNP/GP next week for more MRI’s on my spine and hip. Still a lot of severe pain all over and down my spine so I will be looking for something stronger than Dilaudid and Norco like maybe Fentanyl patches. I have already tried every pain killer known except for Tapentadol which seems just like what I already take. Tired of crying myself to sleep. Some of the pain is non-lyme old injuries.

Tonight I was trying to get up and walk and my brain and eyes were looking forward yet my body would not move or I would walk backwards. It was very strange to have my body and brain not on the same page. I could take steps but very short and my legs were like noodles. I started to slur my speech and talk very slow (which is not unusual). It just seems more frequent now like maybe my spinal stenosis is choking my spine finally, my neuro is worse from lyme or my old lower back injuries are doing damage.

For months now I use the walls and counter tops to hold me up as I walk. I have hyper POTS so I also faint or black out a lot. I am a “fall risk” and I feel a walker is not enough support so I would like a wheelchair. I have been doing my best to avoid a wheelchair but I think it’s time to get one for those bad days. I was already bedridden 2 years ago and could barely walk before starting treatment.

With so many medical issues (fibro, pots, lyme, lupus, spinal stenosis, c-spine herniated discs…etc) it is hard to say if this is 100% lyme related. I do believe that the lyme caused my herniated discs in my c-spine. I know a lot of my neuro issues like turrets twitches in my head, tremors, unsteady balance…are lyme and TBD related.

It’s scary to know that the rest of my life could be in a wheelchair especially if my stenosis and spine get worse but I am still at peace with all my illnesses and I will push on with a smile and continue to support others. It’s not the end of my life, it’s just a new beginning and new challenges. I want you to fight this disease with me and never let it define you or make you want to give up. Keep up the fight fellow warriors and hold your head up high.

 

– Hope you find a reason to smile each day. Take care for now….

 

 

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Lyme Video: Worldwide Lyme Protest – Australia 2013

21 Mar

Worldwide Lyme Protest – Australia 2013

Just some of the many Australians Suffering with Lyme disease but just like most doctors and US states, they do not believe Lyme exists there. Have a look.

Shared From: YouTube – AustLymeProtests

Where To Send A Tick For Testing

18 Mar

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A Tick Bit Me, Someone I Know Or My Pet Where Can I have It Tested?

I am often asked by people I meet “where can I send a tick I pulled off of myself to have it tested to see if it is a carrier for lyme disease or any other TBD“. I always tell them to send the tick dead or alive to IGeneX for testing. However I read an article HERE about a new test for only $40. After researching the web site for the other lab I read about I see various prices and testing which I will share below.

If you are scared and not sure whether you should have a tick tested that say bit your loved one I would recommend sending it in for a peace of mind and closure. You can never be too safe with ticks and I think paying the $40-$60 is worth it so later you are not paying $4000-$6000 a month for meds and watching them suffer from this horrible disease. I’m sure there are other places you can send the ticks and I know one place has slipped my mind but I don’t have the energy to search for it.

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ESU Wildlife DNA Laboratory

Contact Information

ESU Innovation Center
(570) 422-7892
(570) 422-3724 (Fax)
Director
ESU Wildlife DNA Laboratory

Jane Huffman
jhuffman@esu.edu
(570)422-7891
Web Site
 
 
 

Tick Testing Click Here

Lyme-Aid Kit Click Here

Tick Testing

The tick is tested for an infectious agent using a sensitive DNA based screening technique known as Polymerase Chain Reaction (PCR).

The tick can be submitted dead or alive.

The test result of the tick screen does not rule out or confirm the presence of the agent or exposure to the patient.

The result is intended to provide you and your physician or veterinarian with important information, when combined with other information, to help determine risk of exposure and subsequent clinical treatment and follow–up.

Diagnostic Panel I (DP01)

  • Disease: Lyme, Ehrlichiosis, Babesiosis, Bartonellosis
  • Agent: Borrelia burgdorferi, Anaplasma phagocytephilia, Babesia microti, Bartonella henselae
  • Fee: $175.00/Tick

Lyme

  • Disease: Lyme Disease
  • Agent: Borrelia burgdorferi
  • Fee: $75.00/Tick

EHRL

  • Disease: Ehrlichiosis
  • Agent: Anaplasma phagocytophilia
  • Fee: $75.00/Tick

BABE

  • Disease: Babesiosis
  • Agent: Babesia microti
  • Fee: $75.00/Tick

BART

  • Disease: Bartonellosis
  • Agent: Bartonella henselae
  • Fee: $75.00/Tick

Diagnostic Panel II (DP02)

  • Disease: Rocky Mountain Spotted Fever, Tularemia
  • Agent: Rickettsia rickettsii, Francisella tularensis
  • Fee: $100.00/Tick

RMSF

  • Disease: Rocky Mountain Spotted Fever
  • Agent: Rickettsia rickettsii
  • Fee: $75.00/Tick

TULA

  • Disease: Tularemia
  • Agent: Francisella tularensis
  • Fee: $75.00/Tick

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IGenX

Contact Information

IGeneX, Inc.
795 San Antonio Rd
Palo Alto, CA 94303
800/832-3200 Fax: 650/424-1196

NY Mets HOF Pitcher Tom Seaver Is “Winning” His Battle With Lyme Disease

16 Mar

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(Sorry readers I am too ill to write much but I have included the link)

 

NY Mets HOF Pitcher Tom Seaver Is “Winning” His Battle With Lyme Disease:

 

To Read The Story On Tom Seaver Click HERE

 

 

– Have a better day ((hug))

 

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Lyme In The Media – ABC “Fighting back against Lyme Disease”

13 Mar

 

CLICK HERE TO VISIT THE PAGE AND WATCH THE VIDEO FROM ABC GO

 

Or Visit the Link below

 

http://abclocal.go.com/wabc/story?section=news/health&id=9023346

 

Finally the Lyme epidemic is getting some public exposure. People need to know about the truth especially now that the ticks are already out waiting for the next victim.

 

 

– Lyme Awareness March 2013

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