Archive | February, 2013

Homeopathic Treatment For 30 Days

27 Feb

desert bio

 

Homeopathic Treatment For 30 Days

Although I started back on antibiotics this past week I ran out of some meds so in the meantime I will be trying something new. A friend recommended a Homeopathic treatment to me that you can purchase online. I have heard others talk about it and they had a herx from this treatment and felt better.

I always keep an open-mind and I want to try every form of treatment (antibiotics, IV, injections, Homeopathic, Herbal protocols, Diets) before I can knock them or tell my audience on this blog that they didn’t work for my situation. So with the good feedback on this product I started tonight on Vial #1.

This treatment is called Deseret Biologicals – Borrelia Series Therapy (10 Vial Kits). It comes with 10 vials that you take one vial every three days for a month. You pour the liquid (which I believe is alcohol based) under your tongue and hold it for a minute and then drink it down. It says that symptoms will worsen between vials 2-4.

Today is only day one so nothing to report yet. I will try to keep this treatment updated. I will be going back on Clindamycin and Minocycline after this treatment.

 

If you are interested in trying this treatment you can buy it HERE

 

 

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Back On Antibiotics – Herxing

26 Feb

antibiotic

 

Back On Antibiotics – Herxing

I couldn’t handle being off of antibiotics any longer. I wanted to give my body a rest after the candida scare and after the Picc and clotting. My PCP recommended taking a break also so I went with it but on my own. After (insert number of days here because I forget) I have been of antibiotics my symptoms were getting worse.

Here is some pretty solid proof that 10 days of antibiotics does not kill or “cure” chronic lyme disease and tick-borne diseases stupid IDSA/CDC. I have been on 2 years of aggressive treatment and I am nearly just as bad as when I started 2 years ago.  I would say I have progressed 5% – 10% at the most but now after stopping antibiotics I am going 2 steps back.

My neuro problems such as the turrets twitching in my head, tremors, vertigo and other issues seemed to calm down a lot better while on antibiotics. Now that I have been off I noticed they started to increase each day until recently when I had them all back full force. My head will nod on it’s own about 3-4 times (turrets twitch).

My tremors which were calm for the first time in 16 years are back and shakier than ever. My POTS and blood monitor reading is more tachy now and my reading today was 140/101 with 89 pulse and 96% oxygen. I was low with bradycardia last year and in the 50’s range. It is getting tough to walk again and I am more bedridden. The vertigo has increased (besides what mino did) and I run into walls no matter where I walk. I have to hold onto walls and objects to walk.

My brain fog and cognitive issues are also getting worse. I have no idea what day/month/year it is. I was starting to stutter daily which has never happened to me. Still have dyslexia. I cannot remember names, faces or words at all. I now just tell a story and say “that one thing” a lot. I already had bad memory short term and long term. Things were just getting worse.

So this week I started back on Suprax and Coartem. I will be back on oral Clindamycin and Minocycline soon. So far I have only herxed one time (which is as I write this). My head is splitting open, migraine and feeing very warm. But I had to get back on the antibiotics since I was in a lot more pain in my bones, muscles and body. My “stone man” was increasingly worse. I am having cold spots and neuropathy down my spine.

I have listed all of my symptoms on a previous post and there are 100’s so I won’t list them here but they are all still with me. I was hoping to go out for walks when Spring gets here but that is looking like it may not happen with this pain, vertigo and dizziness.

I will also be trying a Homeopathic treatment that should be coming in the mail real soon and I may post about it. I am also thinking about trying rifing again one day. Need to stop these bugs from having a party in my body.

I will try to update as much as I can but I haven’t had many “good” days. I hope all of my spoonie and Lymie friends are having better luck in your lyme healing journey. Keep up the fight and never ever give up life is too beautiful and there are many good days ahead. Take care for now friends.

 

– I will continue to spread Lyme awareness in Jeremiah’s name. He will be missed.

 

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Rest In Peace – Friend And Fellow Lyme Warrior

17 Feb

Jeremiah K

 

Rest In Peace – Friend and Lyme Warrior

I literally just heard the news so I am at a loss for words. It’s been a rough week and this really saddened me to the breaking point.

Jeremiah Katches was a good friend, father, husband, photographer, lyme disease sufferer and lover of life’s beauty. He was one of the only Lyme disease sufferers I knew who was near by in California. We never had a chance to meet in person because one of us was always too ill and neither of us could leave the house.

I just talked to Jeremiah on Thursday night and by Friday he was gone.  His last message was “I love u brother an don’t give up fighting …. I’ll keep u in my prayers an pray so hard something changes for u for the best”. That is the kind of person he was, always caring and thoughtful even in his suffering.

I wish doctors could help us and that even a psychologist could use their services for free to help those who are crying for help. Jeremiah was crying out for help the last few days and nobody responded to him. I had no idea until I just read his twitter. So sad and I feel like I could have helped had I known.

The first day I met Jeremiah he was always so supportive and optimistic. He talked to me about becoming a famous photographer. I hope his pain and suffering are gone and he knows that he was loved by many.

Jeremiah had been suffering from lyme and coinfections and he was vomiting frequently and had really bad insomnia like I do. I do not know how he passed away but i do know he was in a lot of pain the last few days and lyme was breaking his body down.

My thoughts and prayers are with his family, wife and two daughters. Rest in peace brother, I love you too….

 

Here is the last message from Jeremiah the day before his passing which I think speaks for us all and speaks volumes. May his death open more eyes and make people more aware:

 

“This disease like u said is destroying our lives an it doesn’t seem like anyone cares anymore. Not even our dr’s. I’m trying to stay positive just like I’m sure u are but it’s so hard to do when no one takes us serious. I’ll keep u in my prayers an pray so hard something changes for u for the best.”

 

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Read More About Jeremiah And His Story Below:

 

From lymedisease.org – HERE

From inannahouse.org – HERE

 

or visit these links (copy/paste)

 

http://lymedisease.org/news/touchedbylyme/another-fallen-lyme-warrior.html

http://www.inannahouse.org/july-2012.html

 

Sign A Petition For Jeremiah HERE

https://www.change.org/petitions/house-committee-on-veterans-affairs-allow-veterans-to-receive-prompt-and-adequate-medical-care

 

 

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Neuro Flare – Vertigo, Tipsy, Off-Balance, Tachy, Brady, POTS, Candida…

15 Feb

slip-man-hi

 

Neuro Flare – Vertigo, Tipsy, Off-Balance, Tachy, Brady, POTS, Candida, Insomnia…

First off … Happy Valentines Day to all of those who are lucky enough to have someone in your life who cares for you and you found love.

My Valentines was a rough one. First it started with my old friend insomnia keeping me up all night and all month nearly. Many people use the word ‘insomnia’ to describe staying up one hour past bed their bed time but to us true sufferers it means we stay up for days with little to no sleep at all. I couldn’t take staring at the ceiling in bed anymore so I got up and laid in my chair watching NCIS reruns all day. Then the tremors started getting worse.

I put on my PulseOX and my heart numbers fluctuated between 100’s (tachycardia) and shot down to the 50’s (bradycardia) within 2 seconds then back up/down and repeat. This is common when suffering from Postural Orthostatic Tachycardia Syndrome (POTS) which I have been DX’d with. My Oxygen levels went from 98% (normal) and went down to 89% (bad) just reaching for the remote and stayed at 89% setting the alarm off. I wasn’t too short of breath though.

More towards the evening the Neuro problems started to get worse then usual. I felt as if I was on a boat in choppy waters. I would stand up and look like I was starting a new dance craze. The best way to describe how I was walking is like a really drunk person in a wet suit with flippers on indoors. I’m sure it looked funny but it wasn’t fun. Vertigo set in so my depth perception was off and I was really dizzy, tipsy, off-balance and had all three types of vertigo at once; pseudovertigo, subjective and objective.

“There are three types of vertigo. The first is known as objectiveand describes when the patient has the sensation that objects in the environment are moving; the second is known as subjectiveand refers to when the patient feels as if he or she is moving, and the third is known as pseudovertigo,an intensive sensation of rotation inside the patient’s head.”

My usual “stone man” set in about 6pm as I have describe this before in an earlier blog post. To keep it short I feel like I turn to stone or rust up and can’t move in severe pain. It happens like clock work every night. The only thing that takes the edge off is my pain killers and time. My stomach started to ache about this time and I had sharp pains and bubble guts. It was more of a Candida issue and not the pain of C-diff which I had last year. Won’t go into detail on that or TMI. ha ha

Here it is 1 AM and things are finally starting to settle. I still feel very tachy in my chest and in my nerves. I truly believe stopping antibiotics has allowed Lyme and coinfections like my Babesia to thrive again. I will be starting a schedule to go back on antibiotics soon, I just don’t want that C-Diff or Candida outbreak again so a lot of probiotics it is. I think this proves that my Lyme disease and coinfections are very real and still active after 2 years of aggressive antibiotics treatment, injections, Picc … etc which the CDC (not a fan) says Lyme is cured with up to 10 days of antibiotic treatment (lies).

Not complaining in this post really I just like to share my real experiences and my daily life  to help others and answer questions. I am at peace with all my illnesses and I am an optimist who just wants to spread awareness. Hope everyone had a better day/night and that your lyme/chronic illness healing journey is going well. Take care for now…

 

 

 

 

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Daryl Hall Lyme Disease Interview Pt 2 – Fox News

14 Feb

 

https://www.youtube.com/watch?feature=player_embedded&v=wwY26RIWSpU

 

Another interview with rock legend Daryl Hall about his Lyme disease and coinfections. I love when famous people can get the word out for us and spread awareness. Thank you Daryl.

 

-2013