Lyme And Fibro Flare
My body is in a tug-of-war between my Lyme disease and Fibromyalgia (FMS) both flaring up at the same time. Some say you cannot have Fibro and Lyme together but you can. I know many are misdiagnosed with Fibromyalgia and they really have Lyme disease and not Fibromyalgia so it can be confusing. You will know if you have both Fibro and Lyme since there are differences.
Doctors like to tell everyone they have Fibromyalgia if they don’t know what is wrong with them. It is a general term which basically means chronic wide spread pain. Fibromyalgia Syndrome (FMS) is used when they diagnose the condition. I’m not great at explaining things with my Lyme brain so just pretend this sounded very scientific and smart.
To get an accurate diagnoses of Fibromyalgia you should see numerous doctors and get different opinions. I went to a rheumatologist (recommended), neurologist , Primary Doctor and a Movement Disorder Specialist. You can even go to an Endocrinologist and rule out thyroid issues and other issues before hand. Most likely if you have Fibro or Lyme you will have a thyroid issue and low Vitamin D levels. Get blood work and many panels because I found so many issues I would have never even thought to check.
I had all the pressure points of Fibromyalgia and every symptom which again many are the same as Lyme disease symptoms. My primary first diagnosed me with FMS, then two different rheums, a neuro and then a movement disorder doctor. At that time I knew I had many more symptoms than just Fibro but my Rheum refused to listen or care. I was diagnosed with Lyme and tick-borne diseases a year later.
It is hard to explain the differences in the Lyme and Fibro flare. I think the Lyme is more angry and in the brain at times (migraines daily, pressure, pain) and the Fibro seems to feel like someone is poking a fire poker in all the pressure points non-stop. They Fibro also seems to make the muscles in my case hurt worse than the Lyme flare or just daily bad day does. Of course there are 100’s of symptoms but they are all much worse than a normal bad day of pain, fatigue…etc.
The common factor tat realy set my 30 year Lyme and co’s off and my recently diagnosed (3 years old) Fibro was Stress! I was working as a higher up manager for a major retail chain/pharmacy and trying to keep a 2 million dollar profit coming in. I had been injured at work two times in the same month my stress was at an all time high since the CEO’s were coming for visits.
At no fault of mine a contractor dropped about 600 lbs of totes full of liquor on top of me. I was trapped under the pile and tweaked my leg. Being the model employee I never told anyone (my mistake) but basically at my job if you get hurt you get fired.
The next week an employee dropped heavy totes on me knocking me backwards kinking my back and my neck. Again I pretended it never happened although it did hurt for weeks I was tough and shook it off. I wish I would have filed for workers comp but I was dedicated and loyal although the company could care less that I got sick and went out disabled.
So the combination of stress and two back-to-back injuries set the Fibro and Lyme into a rage in my body and that is when I became disabled. It hit me hard and I was bedridden for weeks and could barely talk. Nearly 4 years later and now I am able to walk around the house and get out 1-2 times a year.
So even though a few people have been rude and yell at me saying “you don’t have Fibro” I know I do. I am in Fibro support groups and they are so much different than Lyme support groups. I can tell the subtle differences in Fibro and Lyme symptoms. So yeah they are both painful and a living nightmare. With both of them came Chronic Fatigue Syndrome (CFS) which is another horrible thing to have and another story for another time.
Worpress is acting up and deleted some things I am writing so I hope it makes sense. Hope everyone is sleeping or having a better night. Take care