Archive | October, 2012

Lyme And Fibro Flare

29 Oct

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Lyme And Fibro Flare

My body is in a tug-of-war between my Lyme disease and Fibromyalgia (FMS) both flaring up at the same time. Some say you cannot have Fibro and Lyme together but you can. I know many are misdiagnosed with Fibromyalgia and they really have Lyme disease and not Fibromyalgia so it can be confusing. You will know if you have both Fibro and Lyme since there are differences.

Doctors like to tell everyone they have Fibromyalgia if they don’t know what is wrong with them. It is a general term which basically means chronic wide spread pain. Fibromyalgia Syndrome (FMS) is used when they diagnose the condition. I’m not great at explaining things with my Lyme brain so just pretend this sounded very scientific and smart.

To get an accurate diagnoses of Fibromyalgia you should see numerous doctors and get different opinions. I went to a rheumatologist (recommended), neurologist , Primary Doctor and a Movement Disorder Specialist. You can even go to an Endocrinologist and rule out thyroid issues and other issues before hand. Most likely if you have Fibro or Lyme you will have a thyroid issue and low Vitamin D levels. Get blood work and many panels because I found so many issues I would have never even thought to check.

I had all the pressure points of Fibromyalgia and every symptom which again many are the same as Lyme disease symptoms. My primary first diagnosed me with FMS, then two different rheums, a neuro and then a movement disorder doctor. At that time I knew I had many more symptoms than just Fibro but my Rheum refused to listen or care. I was diagnosed with Lyme and tick-borne diseases a year later.

It is hard to explain the differences in the Lyme and Fibro flare. I think the Lyme is more angry and in the brain at times (migraines daily, pressure, pain) and the Fibro seems to feel like someone is poking a fire poker in all the pressure points non-stop. They Fibro also seems to make the muscles in my case hurt worse than the Lyme flare or just daily bad day does. Of course there are 100’s of symptoms but they are all much worse than a normal bad day of pain, fatigue…etc.

The common factor tat realy set my 30 year Lyme and co’s off and my recently diagnosed (3 years old) Fibro was Stress! I was working as a higher up manager for a major retail chain/pharmacy and trying to keep a 2 million dollar profit coming in. I had been injured at work two times in the same month my stress was at an all time high since the CEO’s were coming for visits.

At no fault of mine a contractor dropped about 600 lbs of totes full of liquor on top of me. I was trapped under the pile and tweaked my leg. Being the model employee I never told anyone (my mistake) but basically at my job if you get hurt you get fired.

The next week an employee dropped heavy totes on me knocking me backwards kinking my back and my neck. Again I pretended it never happened although it did hurt for weeks I was tough and shook it off. I wish I would have filed for workers comp but I was dedicated and loyal although the company could care less that I got sick and went out disabled.

So the combination of stress and two back-to-back injuries set the Fibro and Lyme into a rage in my body and that is when I became disabled. It hit me hard and I was bedridden for weeks and could barely talk. Nearly 4 years later and now I am able to walk around the house and get out 1-2 times a year.

So even though a few people have been rude and yell at me saying “you don’t have Fibro” I know I do. I am in Fibro support groups and they are so much different than Lyme support groups. I can tell the subtle differences in Fibro and Lyme symptoms. So yeah they are both painful and a living nightmare. With both of them came Chronic Fatigue Syndrome (CFS) which is another horrible thing to have and another story for another time.

 
Worpress is acting up and deleted some things I am writing so I hope it makes sense. Hope everyone is sleeping or having a better night. Take care

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Text To Donate For Jewels – 24 Hours Only

22 Oct

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Text To Donate For Jewels – 24 Hours Only

From NOW until 10PM MST on Tuesday, October 23rd ONLY, there is a text-to-donate fundraiser for Juliana King!! All you have to do is text WISH to 80077 and $5 will be donated to Juliana! You can text up to 5 times for a total of $25. You MUST confirm the text with a YES when prompted or else it won’t count!!

You will see the charge on your phone bill from mGive which is the same provider who does text-to-donate for the American Red Cross.

Please share this with everyone you can! This is such an easy and small way to help support someone who inspires us all! Invite your friends on here, post on Twitter, Instragram, blogs, etc!! I would LOVE to make this as huge as possible to help Juliana out!

 

About Juliana (Jewels)

Jewels is a mom, a wife, a friend, a sis, a Lyme warrior and she has been bedridden since 2010. She has chronic Lyme, Babesia, Bartonella, an Immune deficiency (she can’t have visitors and basically lives in a bubble and on oxygen) and she is a cancer survivor. She has been there to support so many even during her darkest days and now it is time to show our support for her.

Visit Jewels Blog HERE

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Recent photo after her port surgeries. She was in pain. 😦

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Anti-Inflammatory Meal – Curried Cauliflower Soup

22 Oct

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Curried Cauliflower Soup – Recipe by Dr. Andrew Weil

I saw this soup while watching Dr. Oz one day on foods for helping inflammation. I liked all of the ingredients in the soup so I printed out the recipe and had the soup tonight. It was a very tasty and filling soup. The spices are not too overwhelming for those who think curry sounds too spicy. This does have nuts in it for those of you with food allergies you can leave out certain ingredients and use other ingredients in their place. This is the perfect soup for these cold nights and a bonus anti-inflammatory.

 

From Dr. Oz Web Site:

This recipe from Dr. Andrew Weil encapsulates the philosophy of his cookbook True Food. It’s made with real ingredients that conform to a healthy nutritional philosophy consistent with the best scientific evidence regarding foods that heal. Add a side of cod and basmati rice for a perfect anti-inflammatory meal.

 

Ingredients

(Makes 10 cups)

1/3 cup raw cashews

3/4 cup water

2 tsp extra virgin olive oil

1 medium onion, diced

1 large head cauliflower, cut into 1-inch pieces

1 14-oz can light coconut milk

2 tbsp curry powder

1 tsp ground turmeric

1 tsp ground cumin

1 tsp evaporated cane sugar

1/4 tsp ground cinnamon

1/4 cup chopped fresh cilantro

Salt

Directions

Put the cashews in a blender and blend until finely ground. Add ¾ cup water and blend for 2 minutes.

Pour the cashew mixture through a fine-mesh strainer into a bowl, pressing on the solids with the back of a spoon. Discard the solids.

In a large pot, heat the olive oil over low heat. Add the onion and sauté until golden.

Add the cauliflower, coconut milk, strained cashew milk, curry powder, turmeric, cumin, sugar, cinnamon, and salt as needed. Add enough water to cover.

Bring to a low boil, reduce the heat, and simmer until the cauliflower is tender, about 10 minutes.

Blend the soup with an immersion blender until the desired consistency is reached. If using a standing blender, allow the mixture to cool for 20 minutes. Pour the soup into the blender. Hold the lid down firmly with a clean, folded towel over it. Start on low speed and blend until the soup is smooth. Return to the pot and reheat if serving hot.

Ladle into bowls and garnish with the caramelized onions and cilantro before serving.

 

 

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Parasites And Lyme Disease

19 Oct

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Parasites And Lyme Disease

I have talked to a lot of people who have asked “do I have parasites” or said “I don’t have parasites“. I was one of those who said “I don’t have any parasites, just Lyme“. Boy was I wrong, I ended up of having two different types of intestinal worms, liver flukes and probably other things I could not see with the human eye.

Parasites can come in many forms and all can do different harm to the human body. Some parasites can be fatal or chronic but some can be treated and cured. Anyone can get infected with a parasite anywhere in the world and never know it. You can get a parasite from ingesting it in food or water, breathing it in, through skin contact and more. Even a scratch from a house cat can give you all kinds of different things such as Bartonella or Hookworms.

If you have Lyme disease or any other disease and a low immune system or no immune system then I highly recommend avoiding eating Sushi or undercooked fish or meat. That is a good way to get a tapeworm or other worms that can do damage to your body. Those intestinal worms can help keep you from healing properly and make you depressed even more.

**There is a ton of information on parasites but I am covering some basics because my brain cannot handle finding all the information or writing it, so speak to your doctor or search the internet for more information.

What Do Parasites Have To Do With Your Lyme Disease

I have heard from numerous LLMDs and other experts that in order to start treating and healing your Lyme disease you must first try to heal your tick-borne diseases (coinfections) and parasites first. It is said that 90% of people in the world have some form of a parasite. So it is extremely likely this means you.

For intestinal worms I recommend doing a MetaMetrix stool sample from your doctor or you can do it at home and mail it in. Have you notice anything funny looking in your toilet when you go to the bathroom? Do you have any red marks on your skin that don’t seem to go away? Does your skin itch a lot? These can all be signs of parasites but there are many more signs.

You can get all sorts of nasty critter from vacations in places like Mexico, Africa or anywhere in the world but especially countries with poor sanitation. Parasites can live within the intestines for years without causing any symptoms.

Signs and Symptoms:

  • Abdominal pain
  • Diarrhea
  • Nausea or vomiting
  • Gas or bloating
  • Dysentery (loose stools containing blood and mucus)
  • Rash or itching around the rectum or vulva
  • Rash or Itching
  • Fevers
  • Stomach pain or tenderness
  • Feeling tired
  • Weight loss
  • Passing a worm in your stool
  • Depression
  • Nightmares
  • Meningitis
  • And the list goes on……..
Getting a parasite is almost unavoidable but you can help prevent getting them. Here are some the ways you can get parasites and you can see why 90% of us have them:
  • Swimming in ponds, lakes and even swimming pools
  • Eating raw fish (Sushi) and undercooked fish
  • Getting your feet or hands in soil
  • Breathing in dust
  • Skin contact
  • Insect bites
  • Animal scratches or bites
  • Etc….

Treatment

There are different prescriptions for each parasite so I cannot name one that will work in your case. For my intestinal worms and liver flukes I took Ivermectin which I have posted before and it seemed to kill them all. I had no side effects so I would recommend it. It is really gross to think about it and you may be embarrassed to bring it up with your doctor but it is something you don’t want to let sit for years.

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Blood Results – Mycoplasma pneumoniae, Chlamydophila pneumoniae & ANA

16 Oct

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Blood Results – Mycoplasma pneumoniae, Chlamydophila pneumoniae & ANA

 

Phone Call From LLMD

I had my phone appointment today with my LLMD and I received my blood test results finally. First we went over that my Babesia is far from dying off and it’s really angry and my Bartonella is causing havoc again. I will continue treatment for Bab and Bart and add in a new RX which I will list below. I am having the usual low oxygen/air-hunger, soaking night sweats, and my ankle pain is back along with the hundreds of other symptoms.

So for now my main focus is killing off (if that is possible) my Babesia and Bartonella along with other bugs while still treating the Lyme disease. As I have mentioned before and the name still slips my mind but I have the strain of Babesia which is harder to kill than the other species. After two years of antibiotics and no progress for Lyme, Bab or Bart you start to wonder if they will ever go away.

I took notes while on the phone but my fatigue was so bad so I hope I can read my notes. I am stopping Suprax, continue Clindamycin, adding this and pulsing that which I will try to mention below.

Although I have all of this I still enjoy the beauty of life and what I have. It is truly the little things that mean so much to me. Fall, football and the holidays are here so I am happy. Now if I can only find a girlfriend to keep me warm during these cold months I will be all set.

 

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Blood Test Results

 

I tested recently for my routine CBC but I also tested for Mycoplasma pneumoniae and Chlamydophila pneumoniae which I have always assumed I have had for 30 years and I finally have Medicare so I could afford to test for it. The CBC and routine blood work are to check my enzymes and organs and see how they are holding up while on antibiotics which everyone should do monthly or bi-monthly. We also tested my blood for my thyroid such as T3 and for my Anti-nuclear antibody (ANA) count.

 

So like always I received all bad news on the results.

  • Mycoplasma pneumoniae – Positive
  • Chlamydophila pneumoniae – Positive
  • T3 count – High
  • ANA – High

 

I have Hypothyroidism so my thyroid is slow and counts are usually low so having a high T3 sounds like my thyroid is out of whack. This is nothing that worries me but my T3 has never been high and my LLMD said a new study says having a high T3 (while so sick) is good so we will let it remain high.

My ANA count being high can mean a lot of different things. My primary doctors have always suspected I have Lupus since it runs in the family so it could be Lupus. It could also mean Rheumatoid Arthritis (RA) which is what my pediatrician told my mom I would have when I got older when I was a child. I had Osteomyelitis when I was a baby and I lived in the hospital with an IV in my ankle bone marrow for a few months. The high ANA count could also be from fighting an infection which I am so it may be nothing but just joint pain. We are not really sure what to make of it.

Mycoplasma pneumoniae and Chlamydophila pneumoniae both can cause pneumonia, lung issues and possible lung cancer. In 1999 I literally nearly died from elderly pneumonia. I had only 10% of one lung left to breath with. At that time the doctors all said “how the heck did you get elderly pneumonia at your age of 24 years old?”. Now I know why since I have been living with both of these pneumonia causing bugs in me for years. My primary doctors have never tested me for either pneumoniae and never followed up after I had pneumonia.

So today wasn’t really unexpected news since I knew all along I have way more than I have tested for so far. I feel as if I am a walking petri dish so I figure there are more bugs I haven’t tested for yet. It just feels like getting kicked when you are already down when every time you have a test they find a new problem and never good news. So more bugs to kill off, time to get my SK boots on!

 

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Treatment Plan:

A-Bart (20 drops twice a day – herbal dropper for Bartonella)

A-Bab (herbal dropper for Babesia)

Cryptolepis (3 droppers full – herbal dropper for Babesia)

Ketoconazole 2% (apply to Candida area)

Clindamycin 300mg (2 pills 2 times daily for Babesia)

Coartem (4 caps twice a day for 2 weeks, pulsing 3/3 – used for Babesia/Malaria)

Biaxin (for my 2 pneumoniae bugs)

Coartem (for inflammation, Lupus, RA and Malaria)

Artemisinin (for Babesia and parasites)

Meriva 500 (2 pills twice a day for inflammation)

Fluconazole 200mg (1 pill per day for candida/yeast caused by abx)

Folapro (for my MTHFR)

Glutathione (for my MTHFR)

VSL#3 (continue taking 3-4 times daily to keep from getting C-Diff)

Florastor (probiotic to help with abx)

Cholestyramine (a binder to help with intestinal issues)

*I will continue to take Milk Thistle, Chanca Piedra (which are both important for cleaning out the liver/kidneys), 600 mg DHA, Vit B-Complex, Vit C, Vit B12, and a few other supplements.

Stopped This Med:

Suprax 400mg (1 pill daily)

 

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Watch Under Our Skin For Free

14 Oct

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Watch Under Our Skin For Free

Under Our Skin is a movie I have highly recommended in the past. I own the DVD and this was one of the first movies I saw that helped me diagnose my Lyme disease. If you are suffering from Lyme disease or even if you think you may have it then this film is a must watch. If you haven’t seen it yet then now is your chance, this movie will open your eyes to Lyme disease and most of the struggles that go with it.

Currently Under Our Skin can be views on Hulu, Netflix and other streaming services but if those are too much of a hassle for you then just visit the link below, click play and enjoy. This film is most likely free for a limited time so watch it while it is available. I recommend buying the film and sharing it with family and friends.

Link to Under Our Skin to watch for free:

CLICK HERE

or click the link below (copy & paste  if it doesn’t work)

http://articles.mercola.com/sites/articles/archive/2012/10/13/under-our-skin-documentary.aspx

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Must Watch Show – Monsters Inside Me

13 Oct

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Must Watch Show – Monsters Inside Me

Monsters Inside Me has returned for a third season that started on October 5, 2012.  If you suffer from Lyme disease, tick-borne diseases or parasites then this show is a must watch. It can gross you out but it will explain a lot about parasites and bugs inside of you. Again if you are grossed out really easy you may not want to watch but it is re-enacting so they don’t show the real parasites most of the time.

In the first two season they have already covered Babesia. I hear they were going to cover Lyme and Bartonella but cut those two out. They do mention Lyme disease and tick-borne diseases often.

The show airs on Animal Planet channel Fridays @ 8PM E/P

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