Some Of My Symptoms – From Head To Toe

1 Jul


My Daily Symptoms From Head To Toe:

A lot of people ask me about my symptoms. I can say after reading the long check list at my doctor’s office and reading all the symptoms associated with Lyme and co’s from numerous web sites that I have 98% of all the symptoms. The only symptoms I don’t have are breast pain, lactation and menstrual symptoms for obvious reasons (I’m a male).

I will start from head to toe and try to remember and list my symptoms. Almost all of these are daily except the ones that aren’t say “often”:


Brain pressure


Migraines (often)

Ears ringing, buzzing, popping

Sensitive to noises/sound

Facial pain

Sensitive teeth to hot and cold

Extremely sensitive mouth, can’t eat anything unless it is warm or room temp (hot and normal food temp will burn my skin in my mouth and cold I cannot handle)

Cuts in gums

Swollen glands under jaw

Shocking pain for each new bite of food

Eyes hurt

Floaters in eyes

Blurry vision/double vision

Dry eyes

Sensitive to movement

Cysts form on face like zits

Parasites on forehead like 100’s of zits


Dry nose and loss of smell

Loss of taste (often)

Herpes/Cold sores on mouth

Sores in mouth and on tongue

Strep throat (often)

Some hair loss

Tippy feeling (my body sways all four directions)




Sensitive to smell



Seeing spots (bright orange and black)

Passing out

Feeling like I’m drunk or high on drugs

Cognitive issues:

All the normal cognitive issues

Long-term memory loss (lost most childhood, teen and 20’s and 30’s memories)

Short-term memory loss (usually after 24 hours I forget)

Dyslexia (from Lyme or Fibro)

Brain fog

Loss for words

Can’t read

Hard to write

Hard to speak (often)


Swollen neck lymph glands

2 herniated discs (caused by Lyme)

Spinal stenosis

Burning skin, numb skin, tingling skin

Chronic pain



Stiff neck

Sore bones and muscles

Pops, Cracks of neck

Turrets twitches (bobble head)

Shoulders and arms:

Some of my worst chronic pain in muscles and bones (Fibro and Lyme)

Stiff shoulders

Limited mobility of limbs

Numb, burning, tingling skin

Sensitive to touch

Chest and Ribs:

Pain and soreness in ribs

Muscle pain in chest/breast area

Heart skips/palps

Shortness of breath/ air hunger


This is where most of the worst pain is (Fibro and Lyme)

Old surgery scars are always inflamed and sensitive

Stiff back

Back pain

Pain down spine

Muscle and bone pain

Bartonella zits on back

Bartonella stretch marks



Stomach pain

Sensitive belly button

Stretch marks from Bartonella



Waist down to toes:

Chronic knee pain is the worst of my pains

Hard to bend legs

Hard to walk

Sciatic nerve pain

Ankles always hurt

Bottom of feet sore


Redness in skin (feet, thighs)

Pops, cracks, locking of knees

Chronic hip pain

Pain in hip if I lay on my side even on cushions from the pressure

Muscle pain

Paraesthesia (tingling, numbness, limbs fall asleep)

Sea legs


Very sensitive knees (with reflex hammer)

Knees freeze up and stop working in very cold temperatures

Feet are very sensitive to heat like hot pavement or wearing flip flops hurts


Here’s an older list from last year. Some may repeat. I know I left out many symptoms since there are 100’s but of course I am struggling to remember them all. I will try to add as I go.

My daily Lyme disease symptoms (some more sever than others):


Head, Face, Neck


  • Pressure in head
  • Headache, mild or severe
  • Migraines
  • Twitching of facial or other muscles
  • Facial flushing
  • Stiff or painful neck
  • Sore throat, clearing throat a lot, phlegm ( flem ), hoarseness, runny nose


  • Double or blurry vision
  • Increased floating spots
  • Pain in eyes, or swelling around eyes
  • Oversensitivity to light (daily)
  • Flashing lights/Peripheral waves/phantom images in corner of eyes


  • Decreased hearing in one or both ears, plugged ears
  • Buzzing in ears
  • Pain in ears, oversensitivity to sounds
  • Ringing in one or both ears

Digestive and Excretory Systems

  • Diarrhea
  • Constipation
  • Irritable bladder (trouble starting, stopping) or Interstitial cystitis
  • Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)

Musculoskeletal System

  • Bone pain, joint pain or swelling, carpal tunnel syndrome
  • Stiffness of joints, back, neck, tennis elbow
  • Muscle pain or cramps, (Fibromyalgia)

Respiratory and Circulatory Systems

  • Shortness of breath, can’t get full/satisfying breath, cough
  • Chest pain or rib soreness
  • Night sweats or unexplained chills
  • Heart palpitations or extra beats
  • Endocarditis, Heart blockage

Neurologic System

  • Tremors or unexplained shaking
  • Burning or stabbing sensations in the body
  • Fatigue, Chronic Fatigue Syndrome, Weakness, peripheral neuropathy or partial paralysis
  • Pressure in the head
  • Numbness in body, tingling, pinpricks
  • Poor balance, dizziness, difficulty walking
  • Increased motion sickness
  • Lightheadedness, wooziness

Psychological well-being

  • Irritability
  • Unusual depression
  • Disorientation (getting or feeling lost)
  • Feeling as if you are losing your mind
  • Over-emotional reactions, crying easily
  • Never enough sleep or insomnia
  • Difficulty falling or staying asleep
  • Panic attacks, anxiety

Mental Capability

  • Memory loss (short or long term)
  • Confusion, difficulty in thinking
  • Difficulty with concentration or reading
  • Going to the wrong place
  • Speech difficulty (slurred or slow)
  • Stammering speech, stuttering
  • Forgetting how to perform simple tasks

Reproduction and Sexuality

  • Loss of sex drive

General Well-being

  • Malaise
  • Extremely sensitive to cold and heat in body and mouth
  • Neck glands cause shocking pains
  • Phantom smells
  • Extreme fatigue
  • Unexplained weight gain, loss
  • Swollen neck glands/lymph nodes
  • Unexplained fevers (high or low grade)
  • Symptoms seem to change, come and go
  • Pain migrates (moves) to different body parts
  • Early on, experienced a “flu-like” illness, after which you have not since felt well.
  • Low body temperature


Here is my Fibromyalgia symptoms list before being diagnosed also with Lyme and co’s. I had all 15 pressure points and 3 specialists and a family doctor diagnosed me with Fibromyalgia but knew I had more. As you can see the symptoms are the same as Lyme but there are differences such as Fibro Flares that can occur more frequently than Lyme flares and hurt more of just the muscles where Lyme and co’s is muscle and bone and then there are the pressure points.

My Fibromyalgia Symptoms (Daily – Pain scale 8-10):


  • Widespread Pain (All known pressure points)
  • Morning Stiffness
  • Fatigue, lethargy
  • Vision Problems
  • Nausea
  • Sleep Disorders
  • Dizziness
  • Chronic Headaches
  • Cold and Flu like Symptoms
  • Joint, bone and muscle pain and stiffness
  • “Fibrofog”: Cognitive or Memory Impairment
  • Skin Complaints
  • Chest Symptoms (tightness in chest, chest pain)
  • Anxiety, depression, panic attacks
  • Muscle Twitches and Weakness
  • Memory Loss
  • Back/spine area in sever pain daily
  • Hands, feet and legs fall asleep or go numb
  • Feeling of death
  • Can’t walk due to sever pain in legs, knee joints and shaking legs
  • Cannot write with a pen on paper due to carpal tunnel and hands in pain or cramping up
  • Hard to speak at times
  • IBS
  • Sensitivity to noise, bright lights, medications, certain foods, heat and especially cold or air conditioning
  • Reduced tolerance for exercise and muscle pain after exercise
  • A feeling of swelling (without actual swelling) in the hands and feet
  • Weakness in the limbs
  • Heavy feeling throughout body and in my limbs as if my arms weigh 50lbs each.


Here is a symptoms list I compiled over the years. May be duplicates:

Lyme Disease Symptoms List


1. Unexplained fevers, sweats, chills, or flushing

2. Unexplained weight change–loss or gain

3. Fatigue, tiredness, poor stamina

4. Unexplained hair loss

5. Swollen glands: list areas____

6. Sore throat

7. Testicular pain/pelvic pain

8. Unexplained menstrual irregularity

9. Unexplained milk production: breast pain

10.Irritable bladder or bladder dysfunction

11.Sexual dysfunction or loss of libido

12.Upset stomach

13.Change in bowel function-constipation, diarrhea

14.Chest pain or rib soreness

15.Shortness of breath, cough

16.Heart palpitations, pulse skips, heart block

17.Any history of a heart murmur or valve prolapse?

18.Joint pain or swelling: list joints_____________

19.Stiffness of the joints, neck, or back

20.Muscle pain or cramps

21.Twitching of the face or other muscles


23.Neck creeks and cracks, neck stiffness, neck pain

24.Tingling, numbness, burning or stabbing sensations, shooting pains

25.Facial paralysis (Bell’s Palsy)

26.Eyes/Vision: double, blurry, increased floaters, light sensitivity

27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity

28.lncreased motion sickness, vertigo, poor balance

29.Lightheadedness, wooziness


31.Confusion, difficulty in thinking

32.Diffculty with concentration, reading

33.Forgetfuiness, poor short term memory

34.Disorientation: getting lost, going to wrong places

35.Difficulty with speech or writing

36.Mood swings, irritability, depression

37.Disturbed sleep-too much, too little, early awakening

38.Exaggerated symptoms or worse hangover from alcohol

The following signs/symptoms may be present in those infected with Babesiosis:





Drenching sweats


Emotional lability


Dark urine



Nausea and vomiting








Shortness of breath

Bleeding tendencies, bruising




Pulmonary edema


Low to normal range leukocyte counts

Possible elevated levels of dehydrogenase, bilirubin,



Approximately 25%- 66% of Babesia patients are known to be co-infected with Lyme disease. These symptoms may continue for long periods of time, decrease, then return. A low Babesiosis titer (IgG) often indicates a chronic infection.

An acute or current infection may show a higher reading on the IgM test initially. There are over 100 species of Babesia in the United States but only ONE or TWO species are currently checked by commercial labs.



GENERAL: Fatigue, Restlessness, Combative behavior, Myalgias, Malaise, Liver and/or Spleen

involvement, Abdominal pain, Infectious Mononucleosis-like Syndrome, Granulomatous Hepatitis

BRAIN: Encephalopathy may occur 1-6 weeks after the initial infection and is fairly common in patients

with Bartonella.

Note: Approximately 50 percent of patients who develop Encephalopathy can be affected

by seizures (from focal to generalized, and from brief and self-limited to status epilepticus). Headaches, Cognitive Dysfunction, and CNS Lesions may be evident.

RASH AND LYMPHADENITIS: Erythematous papules (red splotches or slightly raised red spots) may

develop. Such papules occasionally occur on the lower limbs but are more common on the upper limbs, the

head, and neck. The papules may appear on the skin or mucous membranes.

Bartonella may also cause subcutaneous nodules, with some bone involvement possible. The nodules may show some hyperpigmentation, be tender, fester, and/or be enlarged or swollen, but not always.

EYES: Conjunctivitis, Bartonella Neuroretinitis, Loss of Vision, Flame Shaped Hemorrhages, Branch

Retinal Artery Occlusion with Vision Loss, Cotton Wool Exudates, Parinaud’s Oculoglandular Syndrome,

and Papilledema.

BONES AND MUSCLES: Osteomyelitis, Myositis, Osteolytic Lesions (softening of bone), Myelitis,

Radiculitis, Transverse Myelitis, Arthritis, Chronic Demyelinating Polyneuropathy.

HEART: Endocarditis, Cardiomegaly.

BABESIA SYMPTOMS: (these are just the ones I have but there are a few more)


generalized weakness
intermittent fever (low grade)
gastrointestinal (GI) symptoms like nausea, vomiting, diarrhea, and belly pain
muscle pain
joint pain
unusual weight gain
decreased appetite
sensitivity to light, touch, sound, or smells
shortness of breath – air hunger
night sweats and hot flashes
arm and leg pain
swollen spleen
dark urine



24 Responses to “Some Of My Symptoms – From Head To Toe”

  1. food, health and happiness July 1, 2012 at 11:27 am #

    hey i was reading your symptoms. i am wondering about your skin symptoms. my skin got real bad and it turned out to be morgellons (in addition to the other infections..lyme and company et

    • 49erBry July 2, 2012 at 1:09 am #

      I don’t think I have morgellons I don’t really have many of the symptoms or strange things on my skin. Most of it is caused by my neck issues and bartonella. I know a lot of people have morgellans and might not know it though.

      • Rosy August 23, 2014 at 12:12 am #

        Help I am scared.
        My name is Rosy, and I have not yet seen a doctor regarding this issue. For years I have been on pain killers for a ankle surgery gone wrong. Because of this I am not sure when some symptoms might have started.
        For the last 3 months I have started cycling off the meds and have started noticing some (now alarming) symptoms of, well sounds like Lyme.
        My neck has been bothering me for approximately 3 months. Not always, but it’s in the base of my neck and hurts in all sorts of ways. I’ve noticed that my arms and fingers especially seem to have very poor circulation and numbness.
        My skin has never troubled me before, even in my teens, and I seem to have tiny pimple like bumps on my ribs, back, a little under my chin, sides of face, and chest. Theses pimples started off fairly sporadic but I’m bumpy every other centimeter on my right shoulder down to the mid rib area.
        I’m an artist, and with that my sleep schedule varies. I stay up all night sometimes weekly to paint and sleep all day. Then move it back to sleeping at night. So I’m was shrugging off not being able to fall asleep as that.
        However, more so recently I have been sleeping unusually long and never feeling well rested. I am incredibly moody (shrugged that off as dependence on the pain killers) and have been doubting myself an awful lot lately. Confusion and being incredibly sensitive have been very apparent.
        Two days ago I had the first of light sensitivity and since then I see a lot of floating sports mostly black some orange. And I am having hard time wearing my glasses because of the pressure on my ears.
        Also the last few months I have had a lot of head aches, but it feels like my brain is literally swelling. Very tension heading like, and sometimes as bad as a migraine.
        Lastly my appetite has slowly become non existent. Over the last few weeks I have had days when everything just sounds awful. So I look for anything that sounds even remotely okay and try it. That’s when I have to force myself to eat it, but it’s just repulsive to me. Slowly over the last few weeks I have destroyed all my favorite foods this was, and am now contemplating juicing because I just can’t take this anymore.
        It’s late Friday night, I can’t sleep, and I am driving myself crazy trying to find out what’s happening to me. I haven’t seen a doctor yet, but as you know I won’t be able to until Monday. Does anyone have any advice or input if Lyme disease is what’s (potentially) going on here?
        I have not noticed a tick bite but three years ago I had a very weird equilibrium episode, I felt like my head was in a fish bowl and I swear I couldn’t hear at least not much. I went to the ER got a shot and some antibiotics and that was it. I don’t know if that is relevant to this experience I’m having.
        Like I said at the beginning I have been on painkillers for so many years. I’m so scared that all this time it’s been hiding something from me. Please help.

      • 49er Bryan August 23, 2014 at 1:39 am #

        I will try to catch up with you soon I am not doing so well sorry. Hang in there

  2. Rita Scott July 9, 2012 at 7:10 pm #

    Hi, your symptoms sound like mine…. i know that I contacted Lyme and Babesia Duncani in Nov 2011, but I really believe I got Lyme about 4 years ago. At least my strange body pain and issues started then. How are you now?

    • 49erBry July 9, 2012 at 8:18 pm #

      I am still as miserable as when I started treatment. Lyme is breaking down my body. It’s in my brain, spinal cord and doing damage. I’m sure it’s in all of my organs. It is in cyst form so it’s hard to kill. I expect a long long road just to have better days. We just have to keep our head up and stay optimistic. I do know of others who are feeling much better.

  3. Sonya Rose August 26, 2012 at 5:06 pm #

    You’re right about keeping our heads up and staying optimistic. Sometimes, it’s so tough to do, and we need A LOT of inspiration/motivation/support.

    I stumbled across your blog, researching “double vision” and “chronic Lyme disease”. I’m very happy that I did.

    I’ve had the most difficult time with battling late stage/chronic lyme. I’m also a breast cancer patient/survivor. Between genetics (BRCA2 positive) and our environment (the crimes against humanity), it’s hard to stay afloat … while still keeping focused, reaching for our dreams.

    It’s very beautiful and humbling to reach out like this… just really special. Keep it up, while you can.

    I look forward to your posts. God bless!

    • 49erBry August 26, 2012 at 5:42 pm #

      Thank you very much. I have been too ill and the CFS, memory loss is getting worse so it is hard to keep up with the blog. My motto in life is to “never give up” no matter what the situation. Life is a wonderful gift and we have to make the most of it and enjoy even the tiniest things in life.

      I am so sorry you have to battle Lyme and cancer. I’m happy to know you are a survivor. I have a few friends with stage 3-4 cancers who are fighters. It can be hard to stay positive but you have to find the right people to keep you positive and make you smile. There are so many negative people who give up on you when you are sick. I hope you are feeling better.

      Please feel free to write to me or friend me if you would like. You can find my info in the about me section. Maybe I can be of some help. As far as double vision you need to relieve some of the pressure in your brain. I tried meds, pinella tincture and mangosteen. I haven’t had the double vision lately but who knows.

      I hope you have a wonderful Sunday. Take care.

      • Susan Peters August 31, 2012 at 10:10 pm #

        Hello, I was reading about your battle with Lyme. I ALSO have chronic late stage Lyme Disease. I have been batteling it for 12 years now, with times of some remission to times with bad “Lyme Flares” that last for months on end. How are you doing, and what are you currently treating?? I would like to establish another Lyme friendship for support and encouragement. Susan

      • 49erBry September 1, 2012 at 12:21 am #

        Hi Susan, sorry to hear you have Lyme also. Right now I am treating the Lyme, Babs and Bart with antibiotic and herbal tinctures. No progress and I haven’t been able to get out of a constant flare for about 3 years now. If my Lyme flare goes away for a day my Fibro flare will act up. As I have said in the blog I have had Lyme for 30 years so I don’t expect to feel better right away I know it will take year. I do have a lot of friends in the Lyme community who have improved nearly 90% or better but those are people who were bitten and treated for 1-2 years. So there is always hope. Stay strong and keep up the fight, things can only get better since we are already in a living nightmare. Best wishes and healing

      • Ann January 31, 2014 at 9:14 pm #

        You are in my prayers

      • 49erBry February 1, 2014 at 1:19 am #

        Thank you

  4. Eric November 17, 2012 at 2:55 pm #

    can someone help me I have weakness in my legs I get headaches and blurry vision and some chess burning and I’m always really week can someone please help me

  5. Cathryn December 2, 2012 at 7:55 pm #

    All those symptoms. In Australia the Drs do not recognize Lyme Disease. It’s sad there are people suffering with this and cannot get help. My dr would not even consider testing for it. If cats and dogs can get Lyme disease, it would make sense that humans can. Bali offers oxygen treatment which has had great results for Lyme sufferers. Thanks for sharing and I wish you well

  6. Tari November 12, 2013 at 8:26 am #

    Wow, I have all those symptoms to include the lactating breasts!!! I seem to be getting worse and worse every day and my doctor thinks it has something to do with pituitary gland and wants to do a CT scan and insure is declining it saying it is not medically necessary… I am so tired of this fight. I am miserable and with the confusion and short term and cognitives issues going on it is hard to fight. I was diagnoised with a rare cancer in January and then radiation in Feb and surgery in March to remove a tumor in my upper back thigh that got 10cm…that to was rare and no one thought it was possible and if it wasn’t me being so persistant I would be dead right now. Its bad enough they had to take my whole sciatic nerve leaving me paralyzed from the knee down. Why are the insurance companies dictating our care…If a doctor says he needs something so he can make a diagnoisis then they should have to comply and not stall things….I am at 100% with my insurance now till January and I think that is part of it and I feel like they are compromising my health and well being by denying the doctors what they need and trying to stall things….
    Where are our medical rights??? and where is the preventaive care???

  7. hayat March 28, 2014 at 2:59 am #

    I feel intermittent light pain and pressure and hissing sound in my left ear.sometimes my vision of left eye is blurred.whenever I eat something, hissing is more in left ear.i do have pain in my spinal lower part and hip when I drive more.i have anxiety.what do you think is cause of problems in my left ear.

    • 49erBry March 28, 2014 at 11:22 pm #

      You have tinnitus but as far as the cause I cannot say what the cause is from. Have you been diagnosed with anything? I used to get my worst tinnitus when I had bad head pressure from my lyme. There are supplements you can take for tinnitus

      • Lisa May 29, 2014 at 7:03 pm #

        I have had issues with my back for awhile but for the past two weeks I have been really sick. I feel very weak,I don’t hsve much of a appetite(which is very unusual for mr cause I usually eat all day),I feel like I have a bobble in my chest, I have been coughing,congested, my body is in constant pain, my stomach is very sensitive to anything too hot or cold and I’m constantly having hot flashes. I went to the emergency department at the hospital and they just gave me antibiotics and sent me home but the medicine is doing nothing for me. . Im not sure what is wrong with me but I am nerves resding all of these symptoms because about a year ago we moved out a friends house that we were staying st because it was infested with ticks. What is your opinion ofmy symptoms?

      • Lisa May 29, 2014 at 7:07 pm #

        The back issues I have been diagnosed with is unspecified fibromyalgia and sacralization in my spine

      • Lisa May 29, 2014 at 7:23 pm #

        I also forgot that I am getting treated for anxiety and depression also And sometimes noise bothers me to the point where I will watch t.v. of mute.

  8. กระดูกทับเส้น September 22, 2014 at 4:04 am #

    Just adhere to some of these suggestions and alter your every day
    behavior to consider some of the tension from your own back.
    These electrons then flow into the external circuit and form the electric current.
    Again and again, this perplexing problem causes lower back
    pain that can occur unexpectedly and can go on for an extended time.

    • Corinne Coster March 1, 2015 at 8:24 pm #

      Hi, I’m sorry about all your stories, maybe some people here would like to check 2 names Dr Tent, google and you’ll find his videos, He’s a chiropractor using nutrition & supplement to help his patients, and he helped some get rid of parasites.
      Another name is Natasha Campbell and her GAPS diet, which is similar to the first doctor. Many alernative practitioners seem to emphasize a drastic change in diet, especially avoiding all sugars and helping the body by eating meat, fat & fermented product that would kill the unhealthy bacteria/parasite and repopulate with healthy ones.

      Prayers to you all who are suffering, may you be well and find ways to relieve your pain.


  1. Signs Of Diabetes Light Headed | Diabetes - InstaHealth - February 13, 2015

    […] Some Of My Symptoms – From Head To Toe | Lyme Inside … – Sep 22, 2014 · My Daily Symptoms From Head To Toe: A lot of people ask me about my symptoms. I can say after reading the long check list at my doctor’s office and …… […]

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