Movement Disorders In My Hands
I have had really bad tremors in my arms and hands as long as I can remember. I can feel the jerking, twitching movement deep into my arms and tissue as if an earthquake is going off in my body. I was once thought to have Parkinson’s disease as I’m sure many of you have been misdiagnosed with.
My doctor when I was 13 said I would live my life looking like Katharine Hepburn with severe shaking. Every time I saw Hepburn in a movie growing up and saw her shaking I was scared to know that would be me one day.
I worked in retail at age 18 and when I would ring up a customer and hand the change back I would drop or what looked like throwing their change back. I cannot count how many times someone asked why I was so nervous. I had to explain to them that it was not nerves. When I do get nervous the tremors are severe.
Over the years I was prescribed pills which should have helped wit the tremors such as Beta Blockers. One doctor thought he struck gold when he prescribe me Beta Blockers. He was so excited and thought he had cured me tremors since he thought my heart and pulse caused the tremors. Turns out they did not help.
My old Neurologist thought I had some movement disorders. I now know that the Lyme, Fibro and coinfections can cause tremors. Now I know I am not alone and that there are so many others just like me in the Lyme community. Shaking and tremors are common symptoms.
For the past 4 years a new problem has come about. Not only do I have the tremors but now I throw or drop things a lot. I will be brushing my teeth and holding the tooth brush and my hand will jerk and there goes the tooth brush flying across the bathroom. I drop my razor while shaving and shampoo bottles go flying in the shower.
When I will nearly knock over something or drop it and go to catch it my tremors/jerks are worse and I end up making a bigger mess. It is like the old instinct to catch say my water bottle from falling over and spilling it kicks in but then my hands do not react the way I want them to.
If I sit certain ways in my chair my fingers will go crazy and shake violently. If I try to touch my pinky finger to my thumb the picky finger will shake rapidly.Holding my arms and fingers out straight, my fingers shake side to side very rapidly. I usually just hold my hands into fists all the time.
I call my hands my idle hands after the movie. In the movie this guys hands have a mind of their own and he cannot control them.
I have noticed my depth perception is off also. I will reach across a table for an item and end up hitting or knocking over 1-3 other items I thought my arm cleared. I will reach for things and stub my fingers into walls or hard objects. I stubbed two toes last year on different days and broke both of them. I swear my feet were a good 6-8″ away from the objects my toes smashed into.
One of the many reasons I have stopped driving a car is due to my depth perception. I stopped driving from going in to a trance, dizziness, slow reaction time, feeling of movement when the car is parked and the list goes on. I feel depth perception is very important while driving and I am afraid I may hit another car or run into something.
I have bumped my bad knees into tables or chairs I thought were further away. I feel as if I was in a glass shop with delicate china plates an cup I may break a bunch of things. I used to be very precise and never run into things or knock anything over but in the past few years it is increasingly getting worse.