Archive | July, 2011

Social Network Support for ill Young Adults – healKick

21 Jul

healKick

Being very sick and confined to my home, I spend a lot of time watching TV and sitting in my chair. When I feel well enough and have some energy I will go online. My favorite place to meet others like me and find support groups is on Facebook. Some other great social networks to interact with others who share your pain and suffering are Twitter and a site called healKick.

What is healKick?

“healKick is a social network for young adult patients 40-&-under with neuro-immune illnesses such as:

Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, Chronic Lyme Disease, Fibromyalgia, Rheumatoid Arthritis, Lupus, Sarcoidosis, Reflex Sympathetic Dystrophy, Multiple Sclerosis, Multiple Chemical Sensitivity, Mold-Related Illness

Meet and chat with other patients in their twenties and thirties using our Members Map, instant messaging, microblogging, or forums.”

For more information please visit:

http://www.healkick.com/

Herxing….

18 Jul

 

After a battle with the insurance company and other paperwork I finally started my latest treatment last month. One month in on Mepron/ Rifampin/ Artemisinin/ Zithromax and I have been herxing for at least 2 weeks straight.  I would compare my herx reaction to when I was in the hospital and nearly died from pneumonia. The pain and herx level is different with each person. I am feeling like I am near death so I cannot write much. I hope to be better and writing more soon….

 

What is Herxing?

The Herxheimer reaction occurs when large quantities of toxins are released into the body as bacteria (typically spirochetes) die during antibiotic treatment.

Typically the death of these bacteria and the associated release of endotoxins occurs faster than the body can remove the toxins. It is manifested by fever, chills, headache, myalgia (muscle pain), and exacerbation of skin lesions. The intensity of the reaction reflects the intensity of inflammation present.