I took the long drive to Redwood City to see my LLMD on Monday. When I arrived in his office my doctor told me I was positive for Lyme, Bartonella, Babesia and a mysterious intestinal parasite.
I was currently taking Doxycycline. I was told not to take the Doxy when I got home. The doctor told me he wants to start an aggressive treatment and this treatment needed my okay so legally he could start it.
The con is that if I catch pneumonia in the next few years my doctor fears there will be no antibiotic to help cure me. I have already had elderly pneumonia at a young age that nearly killed me. The pills I will be taking are for pneumonia and my body will get used to them therefore in the future they will not fight off pneumonia. Plus with already having elderly pneumonia I double my chances of facing death with catching pneumonia again.
The doctor wants to kill of the Bartonella and Babesia first before moving to treating the Lyme itself. He is also treating the intestinal parasite at the same time.
Here is my new treatment:
Mepron (1tsp per day) *FYI this stuff costs $1658.00 without insurance
Zithromax 500mg (1 per day)
Rifampin 300mg (two pills per day)
Artemisinin (2 caps twice per day)
Immunovir / IMN-V (20 drops twice per day)
*Update April, 2012 – Our good friend Paul updated his web site for dating. Thank you Paul.
Click HERE to meet others with chronic illnesses or find love.
I have tried datingdisabled.net and not one person has sent a message except for fake profiles trying to scam me. POF and eHarmony haven’t been too successful. I mentioned I cannot be spontaneous on my profile and that seemed to scare away potential dates. Gary’s dating site seems to have gone stale. As of now I have no idea where to go for dating with Lyme or a disability that is safe, secure and free (since we are all on fixed to no income).
I am single and find it hard to date. I am on all the major sites like Match, eHarmony…. but it is hard to explain to a potential date that I have Lyme. They don’t understand that we can’t just be spontaneous or go out to a loud restaurant, drink alcohol, and try to have a good time. I was searching for dating sites for disabled people or Lyme disease and came across Lymedate.
The site is a year old and there aren’t many members but if we spread the word maybe it will catch on. The site is ran by “Gary” who many may know from his YouTube videos and on Facebook “Salt/C for Lyme Disease”. I am a new member on the site and hope to see more females in my age range or more active members. If you are single and want to chat with other Lymies please check it out.
Please take a moment to educate yourself on Lyme disease and be aware that this is an epidemic. Lyme sufferers like myself are going through a living hell and paying for huge medical bills. Lyme is not covered by insurance so doctor visits, meds and testing are not covered. We are all different but most of us do not and cannot leave the house. We live in constant pain and some are even dying from Lyme.
Please always check for ticks or any bites that leave a bulls eye rash. Mosquitoes, spiders, dust mites, fleas and many other insects can give you Lyme or coinfections. It can also be passed congenitally. Be alert, be aware and spread the news that it is Lyme awareness month. It is time us Lyme disease sufferers get some help and relief. Thank you.