Day One – Getting my life back

9 Mar


by Bryan Sanders March 09, 2011


Day One

Hello world,

My name is Bryan and I was just diagnosed with Lyme disease. I am 35 years old and single (boo). I do also suffer, and I do mean suffer, from Fibromyalgia which is a real syndrome. I have many other medical issues but I will get into those at another time.

I am believed to have been given Lyme disease  in either the early 1980’s or late 1990’s when I was bitten by deer ticks numerous times. There were two ticks that I know of that their heads were left in my body. I did not get the usual rash at the time. Lyme caused a snowball effect during my life and new medical issues popped up almost every few years. Lyme disease can hide in your cells and tissue and surface later in life as in my case.

Yesterday, I went on a long exhausting trip  to see a Lyme specialist in Redwood City, CA. After a 2 hour consultation I was diagnosed with having Borreli (Lyme Disease) and two coinfections called Babesiosi and Bartonella. The news was overwhelming but I am finally happy to know why I am progressively getting worse each month and having new symptoms.

Today I started the treatment which is considered aggressive. I am taking Zithromax (macrolide antibiotic) which is usually only taken for 5 days but in my case I am taking it for 3 weeks. I will need antibiotics for years or possibly the rest of my life. I am in the later stages of Lyme disease. I find it difficult to walk, think, read, write or do most of the things we take for granted.

Gulp

After taking all of the pills I have listed below and the nasty powdered drinks I feel fine so far. I do have sharp stomach pains but that was to be expected. So far I have no diarrhea and don’t feel the need to go. I know soon I will have to make my new home in the bathroom. There is also the possibility of a Herxheimer reaction. Yeah, not so fun.

I am hopeful and my goal is to feel better by next year. The aggressive treatment plan can cause more pain and agony and possible vision loss, involuntary movements and the possibility I will not be able to continue my blog. If I fall silent you will know why.

The next step is to maybe have a pick line inserted into my arm to my heart. I have another follow-up in 3 weeks and I will keep you updated. I am not the best writer in the world but this is a personal journal for me as well as me sharing my experiences with you. If you have any questions or just want to chat feel free to comment.

FYI

The visit and prescriptions are costly. For some reason my insurance and I believe all insurance carriers do not cover Lyme disease. Therefore I spent $1200 out-of-pocket just for the first visit and first treatment plan.

Today I started taking the following:

  • Zithromax (1 cap daily for 3 weeks)
  • Probiotics (2 caps twice per day of 25 billion CFUs)
  • UltraInflamX (powder)
  • Intestimax (powder, taste like seafood and made of shrimp shells)
  • Adrenal Essence (2 caps twice per day)
  • Vitamineral greens (pill)

*I would like to mention that dyslexia is my latest symptom so bare with any spelling errors or misused words.


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3 Responses to “Day One – Getting my life back”

  1. Sarah C March 17, 2011 at 6:10 pm #

    It all sounds familiar. And I developed dyslexia too! Hang in there and don’t give up! You are not alone.

    • sliccc1 March 17, 2011 at 6:27 pm #

      Thanks. I’ll check out your blog. I’m still in the research stage and buying books. Any recommendations?

  2. Curtiss Thompson May 21, 2012 at 4:00 am #

    thetickslayer.com

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