Help With Income
I hate asking for anything but… Someone who means the world to me has an Arbonne store (web page) to sell product so she can make an income while going to college. She is a cancer survivor, a fighter and is very ill like myself so she had to recently quit her job taking care of a disabled person. She has a huge heart and is the sweetest girl I know. She needs some help to keep her store going and make some income.
They sell health and beauty products but also nutritional stuff. There is product for dehydration, protein, vitamins, fiber & more on the site. Anything will help her out for now. She needs some sales by Tuesday. I’m going to help her out also. Thank you in advance.
Here is the link to her store: ARBONNE
Quick Update On Me:
I’ve been taking Malarone for my Babesia about two weeks now. I’ve been herxing every night since I started it. My Babesia was getting worse so we are focusing on the Babesia for now and I stopped antibiotics for the month since it was too much on my liver. It’s hard to detox while on so many antibiotics. I haven’t been feeling so well since I got back from CT. The LDI isn’t doing anything yet. I still haven’t found my right LDI dose.
We have my 3 year old baby niece living here now so I try to do what I can to entertain her. We watch a lot of SpongeBob. She helps me take my meds amd is my little helper.
I truly hope you all have a good doctor and are being taken care of. Keep hope alive. We got this!
I would highly recommend registering and taking the two Lyme disease surveys so we can get the impact of Lyme disease out there. It took me maybe 10 minutes from bed on my tablet.
Sign up here: https://www.mylymedata.org
Very rough past few weeks. I had my follow-up visit with my LLMD on Thursday. She gave me a higher dose of LDI and told me to stay on malarone (for Babesia) and stay off my antibiotics for now since malarone is making me herx. My Babesia is acting up recently but just won’t go away. I’ve had it since I was at least 12-13 and old soak my bed in sweat, still do. The malarone seems to be working but I hate herxing when I already feel so ill. My insurance wouldn’t cover Mepron like expected.
I will be doing 9.5c and 9c of LDI this month. I just took 10c and I don’t feel any difference. I think my target dose will be 7c but we will see. My doctor said she doesn’t want to just move me to 7c from 10c and have me herxing even worse. She said some patients are herxing or reacting from 14c-20c which is very low dose or diluted.
The good news was my H. Pylori test came back negative. H. Pylori can cause stomach ulcers, risk for stomach cancer and can cause non-stop vomitting if not treated in time. My other tests the lab did the wrong test so we don’t have the results. I’m upping my dose of Ketotefin for Mast Cell and rashes. I also take Benadryl daily.
I did my monthly IVIG infusion on Friday. So far my brain hurts a little bit not as bad as usual (knock on wood). I’m still herxing from the malarone so it could be from that. Just resting up as much as I can in my chair. My nurse slowed the infusion rate on my pump so hopefully that will help. I’m not feeling so well so I will update soon.
I thank you all for the support and messages. I hope you all are keeping up the fight and try to have the best Holidays you can. Stay strong.
Sorry I haven’t posted in a while. I’m trying to move to the East Coast and move together with my girlfriend who I mentioned in an earlier post almost died from renal failure. She’s very sick also and was born with only one kidney and that kidney shut down recently so we are scared. She’s doing better but gets exhausted very easy. She also has Lyme, similar illnesses to kind and she is a childhood cancer survivor. I need to be with her and protect her and love her. It’s hard to comfort a loved one through the phone or be there for them.
I’m selling things and trying to make some extra cash. I will barely have enough money to survive but I’m looking for a cheap rental in the Middletown Connecticut area. I need a 1-2 bed 1-2 bath apartment or other housing in the $500 a month range and any utilities paid would be nice. It will take a year or longer before I can qualify for disabled housing. My girlfriend plans on moving in with me so we can take care of each other. I don’t have any family or friends to help me so I’m on my own with this move. My parents are retired, moving to another state and we recently had my niece’s baby move in with us so they barely have enough for themselves to live on.
I started a campaign on GoFundMe trying to raise some money for medical bills and medical help. I’m afraid I have a $8000 IVIG coming soon but I hope not. Here is the link below if you are interested:
I took another dose of LDI last week and again I feel no difference or progress. I didn’t notice any herx or side effects. I don’t feel any better or worse just my usual. I’m most likely still not at the right dose yet. So far I have tried 13c, 12.5c, 12c, 11.5c, 11c, 10.5c and 10c. I usually need higher doses of meds so I figure 7-8c will be my range. I hear a lot of good things about LDI but some of my friends say they feel no difference or had a bad herx using it.
I will be seeing my LLMD next week and getting blood results and an update to see if I still have H. Pylori. I will try to remember to post an update. For those who don’t know what LDI/LDA is, you may want to ask your Lyme doctor about it.
Hope you are all fighting with everything you’ve got! Hang in there
Had my IVIG infusion on Tuesday. Everything went as usual. Two days later I started having the severe brain pressure. Every time I stand up or bend over it is a stabbing pain in my head and I can’t think for a moment. Takes about 10 seconds for it to calm. I haven’t been feeling so well since I got back from CT. I have been sleeping a lot and healing.
I took my second dose of LDI a couple weeks ago. So far I don’t notice any difference at all but I think I’m on the wrong dose. I took 13c and 12.5c so far but usually I need the high doses so maybe I will feel something on say 7c. I’m requesting a higher dose soon.
Had a lot of personal, family issues going on so I’m quiet. Hope you are all hanging in there. Never give up!
I had received a text over a month ago from my ex-girlfriend. She told me she was dying of renal failure and asked if I could be by her side and she wanted to spend her last days hanging out with me. She is the girl I always talk about and I’ve always been in love with her so of course I booked the next flight out. I had just had my IVIG infusion the day before and I have never been on a plane that long of a flight or while I’ve been so sick. But when you love and care about someone you do anything you can for them. Basically I spent a month on the East Coast sleeping in a hotel room 16 hours a day. I had to visit the ER and that a whole other story but I was made fun of and treated poorly. Had the “worst vitals” thatER doc had ever seen yet he only gave me 1 liter of saline and sent me home. Told me to follow up with my own doctor back in Cali if I needed to come back. I wanted to go to the ER 2-3 more times but knew they wouldn’t help me. I almost go into an accident in my rental car driving myself home. I was alone and had no caretakers. Too much to explain. But my ex is doing much better and is alive. She told me she’s always been in love with me and we are back together and she wants me to move with her in the next few months. I hope it works out this time she is my everything.
I went to my LLMD appointment a few days ago. The doctor still believes my mast cell and babesia are a big issue and I need to treat them. I’m going back on Mepron again soon but A-Bab for now. She still believes I have Ehlers–Danlos syndrome (EDS) and I am producing too much spinal fluid in my brain. So she put me on a new med to help my head pressure/headaches called AcetaZolamide. I will continue my LDI, Minocycline and Tinidazole for my Lyme. I will be adding LDA, testing for connective tissue disorder and to see if my H Pylori is gone.
On the ride home there was traffic and I vomited/dry heaved all the way home. My poor mom had to keep pulling off the freeway. I’m still recouping.
going through a lot right now with my health, love and life so I’m taking a break for a while. Getting IVIG soon and will post an update.