Tag Archives: air hunger

One Item Every Lymie Should Have

20 Apr

amazon

 

One Item Every Lymie Should Have

If I could recommend one piece of medical equipment every lymie should have, it would be the pulse ox . My Lyme Sister recommended it to me. If you have lyme you most likely have coinfections including Babesia which steals our oxygen. We also have symptoms of air-hunger with having lyme.

Being chronically ill and so fatigued all the time it may be that you have low oxygen or your heart is off. This device will give you your oxygen and pulse on one little machine you put on your finger tip. I didn’t buy the brand above but just showing an average good ones to get. There are some lemon brands so make sure to read reviews before you buy it.

 

 

 

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Blood Results – Mycoplasma pneumoniae, Chlamydophila pneumoniae & ANA

16 Oct

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Blood Results – Mycoplasma pneumoniae, Chlamydophila pneumoniae & ANA

 

Phone Call From LLMD

I had my phone appointment today with my LLMD and I received my blood test results finally. First we went over that my Babesia is far from dying off and it’s really angry and my Bartonella is causing havoc again. I will continue treatment for Bab and Bart and add in a new RX which I will list below. I am having the usual low oxygen/air-hunger, soaking night sweats, and my ankle pain is back along with the hundreds of other symptoms.

So for now my main focus is killing off (if that is possible) my Babesia and Bartonella along with other bugs while still treating the Lyme disease. As I have mentioned before and the name still slips my mind but I have the strain of Babesia which is harder to kill than the other species. After two years of antibiotics and no progress for Lyme, Bab or Bart you start to wonder if they will ever go away.

I took notes while on the phone but my fatigue was so bad so I hope I can read my notes. I am stopping Suprax, continue Clindamycin, adding this and pulsing that which I will try to mention below.

Although I have all of this I still enjoy the beauty of life and what I have. It is truly the little things that mean so much to me. Fall, football and the holidays are here so I am happy. Now if I can only find a girlfriend to keep me warm during these cold months I will be all set.

 

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Blood Test Results

 

I tested recently for my routine CBC but I also tested for Mycoplasma pneumoniae and Chlamydophila pneumoniae which I have always assumed I have had for 30 years and I finally have Medicare so I could afford to test for it. The CBC and routine blood work are to check my enzymes and organs and see how they are holding up while on antibiotics which everyone should do monthly or bi-monthly. We also tested my blood for my thyroid such as T3 and for my Anti-nuclear antibody (ANA) count.

 

So like always I received all bad news on the results.

  • Mycoplasma pneumoniae – Positive
  • Chlamydophila pneumoniae – Positive
  • T3 count – High
  • ANA – High

 

I have Hypothyroidism so my thyroid is slow and counts are usually low so having a high T3 sounds like my thyroid is out of whack. This is nothing that worries me but my T3 has never been high and my LLMD said a new study says having a high T3 (while so sick) is good so we will let it remain high.

My ANA count being high can mean a lot of different things. My primary doctors have always suspected I have Lupus since it runs in the family so it could be Lupus. It could also mean Rheumatoid Arthritis (RA) which is what my pediatrician told my mom I would have when I got older when I was a child. I had Osteomyelitis when I was a baby and I lived in the hospital with an IV in my ankle bone marrow for a few months. The high ANA count could also be from fighting an infection which I am so it may be nothing but just joint pain. We are not really sure what to make of it.

Mycoplasma pneumoniae and Chlamydophila pneumoniae both can cause pneumonia, lung issues and possible lung cancer. In 1999 I literally nearly died from elderly pneumonia. I had only 10% of one lung left to breath with. At that time the doctors all said “how the heck did you get elderly pneumonia at your age of 24 years old?”. Now I know why since I have been living with both of these pneumonia causing bugs in me for years. My primary doctors have never tested me for either pneumoniae and never followed up after I had pneumonia.

So today wasn’t really unexpected news since I knew all along I have way more than I have tested for so far. I feel as if I am a walking petri dish so I figure there are more bugs I haven’t tested for yet. It just feels like getting kicked when you are already down when every time you have a test they find a new problem and never good news. So more bugs to kill off, time to get my SK boots on!

 

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Treatment Plan:

A-Bart (20 drops twice a day – herbal dropper for Bartonella)

A-Bab (herbal dropper for Babesia)

Cryptolepis (3 droppers full – herbal dropper for Babesia)

Ketoconazole 2% (apply to Candida area)

Clindamycin 300mg (2 pills 2 times daily for Babesia)

Coartem (4 caps twice a day for 2 weeks, pulsing 3/3 – used for Babesia/Malaria)

Biaxin (for my 2 pneumoniae bugs)

Coartem (for inflammation, Lupus, RA and Malaria)

Artemisinin (for Babesia and parasites)

Meriva 500 (2 pills twice a day for inflammation)

Fluconazole 200mg (1 pill per day for candida/yeast caused by abx)

Folapro (for my MTHFR)

Glutathione (for my MTHFR)

VSL#3 (continue taking 3-4 times daily to keep from getting C-Diff)

Florastor (probiotic to help with abx)

Cholestyramine (a binder to help with intestinal issues)

*I will continue to take Milk Thistle, Chanca Piedra (which are both important for cleaning out the liver/kidneys), 600 mg DHA, Vit B-Complex, Vit C, Vit B12, and a few other supplements.

Stopped This Med:

Suprax 400mg (1 pill daily)

 

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Babesia And Night Sweats

15 May

Water Bed

I don’t own a water bed but most of the time it feels like I do. I have been battling severe night sweats for about 23 years now. I was always an excessive sweater even on a cool day. My doctors told me my body just “cools down by sweating” even though I would sweat in the rain or snow. I now know a little annoying parasite called Babesia is the reason behind all of the sweating and air hunger.

I remember as a teenager thinking “how will I ever get a girlfriend or get married if I soak the bed with sweat every night”. Later in life this did turn out to be somewhat of an issue with my girlfriend. No cuddling at night for me. I’m single now so it is no longer an issue I guess.

I cannot count how many times I have woke up after 1 hour of sleep or 6 hours at the most to find myself in a puddle of sweat. My sheets and mattress are soaked to the core. I have even sweated through the sheets on a night that was 30-50 degrees in my old crappy house.

I can feel constant beads of sweat on my forehead and dripping down my body. If I take the sheets off and lay under the ceiling fan I get the chills. So I can never win. I get the chills often but sweats the most. I dread summer and I stay out of the sun and hot places.

When I used to work as a manager I had to wear button up shirts with a tie. I would always have sweat marks all over my shirts no matter what time of the year it was and even when I wasn’t doing anything physical. It was embarrassing and looked unprofessional.

I will say that my sweat has no odor to it and it is almost like plain old water. I have been on Babesia meds for a year and a half. This stupid parasite just wont die. One day I hope to wake up like a normal person in my nice dry cozy bed. Let’s hope this happens soon.

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