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Some Of My Symptoms – From Head To Toe

1 Jul

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My Daily Symptoms From Head To Toe:

A lot of people ask me about my symptoms. I can say after reading the long check list at my doctor’s office and reading all the symptoms associated with Lyme and co’s from numerous web sites that I have 98% of all the symptoms. The only symptoms I don’t have are breast pain, lactation and menstrual symptoms for obvious reasons (I’m a male).

I will start from head to toe and try to remember and list my symptoms. Almost all of these are daily except the ones that aren’t say “often”:

Head:

Brain pressure

Headaches

Migraines (often)

Ears ringing, buzzing, popping

Sensitive to noises/sound

Facial pain

Sensitive teeth to hot and cold

Extremely sensitive mouth, can’t eat anything unless it is warm or room temp (hot and normal food temp will burn my skin in my mouth and cold I cannot handle)

Cuts in gums

Swollen glands under jaw

Shocking pain for each new bite of food

Eyes hurt

Floaters in eyes

Blurry vision/double vision

Dry eyes

Sensitive to movement

Cysts form on face like zits

Parasites on forehead like 100’s of zits

Dizziness

Dry nose and loss of smell

Loss of taste (often)

Herpes/Cold sores on mouth

Sores in mouth and on tongue

Strep throat (often)

Some hair loss

Tippy feeling (my body sways all four directions)

Nightmares

Depression

Anxiety

Sensitive to smell

Insomnia

CFS

Seeing spots (bright orange and black)

Passing out

Feeling like I’m drunk or high on drugs

Cognitive issues:

All the normal cognitive issues

Long-term memory loss (lost most childhood, teen and 20’s and 30’s memories)

Short-term memory loss (usually after 24 hours I forget)

Dyslexia (from Lyme or Fibro)

Brain fog

Loss for words

Can’t read

Hard to write

Hard to speak (often)

Neck:

Swollen neck lymph glands

2 herniated discs (caused by Lyme)

Spinal stenosis

Burning skin, numb skin, tingling skin

Chronic pain

Neuropthy

Radiculopathy

Stiff neck

Sore bones and muscles

Pops, Cracks of neck

Turrets twitches (bobble head)

Shoulders and arms:

Some of my worst chronic pain in muscles and bones (Fibro and Lyme)

Stiff shoulders

Limited mobility of limbs

Numb, burning, tingling skin

Sensitive to touch

Chest and Ribs:

Pain and soreness in ribs

Muscle pain in chest/breast area

Heart skips/palps

Shortness of breath/ air hunger

Back:

This is where most of the worst pain is (Fibro and Lyme)

Old surgery scars are always inflamed and sensitive

Stiff back

Back pain

Pain down spine

Muscle and bone pain

Bartonella zits on back

Bartonella stretch marks

Stomach:

IBS

Stomach pain

Sensitive belly button

Stretch marks from Bartonella

Vomiting

Nausea

Waist down to toes:

Chronic knee pain is the worst of my pains

Hard to bend legs

Hard to walk

Sciatic nerve pain

Ankles always hurt

Bottom of feet sore

Swelling

Redness in skin (feet, thighs)

Pops, cracks, locking of knees

Chronic hip pain

Pain in hip if I lay on my side even on cushions from the pressure

Muscle pain

Paraesthesia (tingling, numbness, limbs fall asleep)

Sea legs

RLS

Very sensitive knees (with reflex hammer)

Knees freeze up and stop working in very cold temperatures

Feet are very sensitive to heat like hot pavement or wearing flip flops hurts

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Here’s an older list from last year. Some may repeat. I know I left out many symptoms since there are 100′s but of course I am struggling to remember them all. I will try to add as I go.

My daily Lyme disease symptoms (some more sever than others):

 

Head, Face, Neck

 

  • Pressure in head
  • Headache, mild or severe
  • Migraines
  • Twitching of facial or other muscles
  • Facial flushing
  • Stiff or painful neck
  • Sore throat, clearing throat a lot, phlegm ( flem ), hoarseness, runny nose

Eyes/Vision

  • Double or blurry vision
  • Increased floating spots
  • Pain in eyes, or swelling around eyes
  • Oversensitivity to light (daily)
  • Flashing lights/Peripheral waves/phantom images in corner of eyes

Ears/Hearing

  • Decreased hearing in one or both ears, plugged ears
  • Buzzing in ears
  • Pain in ears, oversensitivity to sounds
  • Ringing in one or both ears

Digestive and Excretory Systems

  • Diarrhea
  • Constipation
  • Irritable bladder (trouble starting, stopping) or Interstitial cystitis
  • Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)

Musculoskeletal System

  • Bone pain, joint pain or swelling, carpal tunnel syndrome
  • Stiffness of joints, back, neck, tennis elbow
  • Muscle pain or cramps, (Fibromyalgia)

Respiratory and Circulatory Systems

  • Shortness of breath, can’t get full/satisfying breath, cough
  • Chest pain or rib soreness
  • Night sweats or unexplained chills
  • Heart palpitations or extra beats
  • Endocarditis, Heart blockage

Neurologic System

  • Tremors or unexplained shaking
  • Burning or stabbing sensations in the body
  • Fatigue, Chronic Fatigue Syndrome, Weakness, peripheral neuropathy or partial paralysis
  • Pressure in the head
  • Numbness in body, tingling, pinpricks
  • Poor balance, dizziness, difficulty walking
  • Increased motion sickness
  • Lightheadedness, wooziness

Psychological well-being

  • Irritability
  • Unusual depression
  • Disorientation (getting or feeling lost)
  • Feeling as if you are losing your mind
  • Over-emotional reactions, crying easily
  • Never enough sleep or insomnia
  • Difficulty falling or staying asleep
  • Panic attacks, anxiety

Mental Capability

  • Memory loss (short or long term)
  • Confusion, difficulty in thinking
  • Difficulty with concentration or reading
  • Going to the wrong place
  • Speech difficulty (slurred or slow)
  • Stammering speech, stuttering
  • Forgetting how to perform simple tasks

Reproduction and Sexuality

  • Loss of sex drive

General Well-being

  • Malaise
  • Extremely sensitive to cold and heat in body and mouth
  • Neck glands cause shocking pains
  • Phantom smells
  • Extreme fatigue
  • Unexplained weight gain, loss
  • Swollen neck glands/lymph nodes
  • Unexplained fevers (high or low grade)
  • Symptoms seem to change, come and go
  • Pain migrates (moves) to different body parts
  • Early on, experienced a “flu-like” illness, after which you have not since felt well.
  • Low body temperature

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Here is my Fibromyalgia symptoms list before being diagnosed also with Lyme and co’s. I had all 15 pressure points and 3 specialists and a family doctor diagnosed me with Fibromyalgia but knew I had more. As you can see the symptoms are the same as Lyme but there are differences such as Fibro Flares that can occur more frequently than Lyme flares and hurt more of just the muscles where Lyme and co’s is muscle and bone and then there are the pressure points.

My Fibromyalgia Symptoms (Daily – Pain scale 8-10):

 

  • Widespread Pain (All known pressure points)
  • Morning Stiffness
  • Fatigue, lethargy
  • Vision Problems
  • Nausea
  • Sleep Disorders
  • Dizziness
  • Chronic Headaches
  • Cold and Flu like Symptoms
  • Joint, bone and muscle pain and stiffness
  • “Fibrofog”: Cognitive or Memory Impairment
  • Skin Complaints
  • Chest Symptoms (tightness in chest, chest pain)
  • Anxiety, depression, panic attacks
  • Muscle Twitches and Weakness
  • Memory Loss
  • Back/spine area in sever pain daily
  • Hands, feet and legs fall asleep or go numb
  • Feeling of death
  • Can’t walk due to sever pain in legs, knee joints and shaking legs
  • Cannot write with a pen on paper due to carpal tunnel and hands in pain or cramping up
  • Hard to speak at times
  • IBS
  • Sensitivity to noise, bright lights, medications, certain foods, heat and especially cold or air conditioning
  • Reduced tolerance for exercise and muscle pain after exercise
  • A feeling of swelling (without actual swelling) in the hands and feet
  • Weakness in the limbs
  • Heavy feeling throughout body and in my limbs as if my arms weigh 50lbs each.

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Here is a symptoms list I compiled over the years. May be duplicates:

Lyme Disease Symptoms List

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1. Unexplained fevers, sweats, chills, or flushing

2. Unexplained weight change–loss or gain

3. Fatigue, tiredness, poor stamina

4. Unexplained hair loss

5. Swollen glands: list areas____

6. Sore throat

7. Testicular pain/pelvic pain

8. Unexplained menstrual irregularity

9. Unexplained milk production: breast pain

10.Irritable bladder or bladder dysfunction

11.Sexual dysfunction or loss of libido

12.Upset stomach

13.Change in bowel function-constipation, diarrhea

14.Chest pain or rib soreness

15.Shortness of breath, cough

16.Heart palpitations, pulse skips, heart block

17.Any history of a heart murmur or valve prolapse?

18.Joint pain or swelling: list joints_____________

19.Stiffness of the joints, neck, or back

20.Muscle pain or cramps

21.Twitching of the face or other muscles

22.Headache

23.Neck creeks and cracks, neck stiffness, neck pain

24.Tingling, numbness, burning or stabbing sensations, shooting pains

25.Facial paralysis (Bell’s Palsy)

26.Eyes/Vision: double, blurry, increased floaters, light sensitivity

27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity

28.lncreased motion sickness, vertigo, poor balance

29.Lightheadedness, wooziness

30.Tremor

31.Confusion, difficulty in thinking

32.Diffculty with concentration, reading

33.Forgetfuiness, poor short term memory

34.Disorientation: getting lost, going to wrong places

35.Difficulty with speech or writing

36.Mood swings, irritability, depression

37.Disturbed sleep-too much, too little, early awakening

38.Exaggerated symptoms or worse hangover from alcohol

The following signs/symptoms may be present in those infected with Babesiosis:

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Fatigue

Arthralgias

Myalgia

Drenching sweats

Headaches

Emotional lability

Depression

Dark urine

Splenomegaly

Dizziness

Nausea and vomiting

Cough

Dyspnea

Fever

Chills

Hepatosplenomegaly

Jaundice

Malaise

Shortness of breath

Bleeding tendencies, bruising

Thrombocytopenia

Hemoglobinuria

Hyperesthesia

Pulmonary edema

Encephalopathy

Low to normal range leukocyte counts

Possible elevated levels of dehydrogenase, bilirubin,

transaminase*

Anorexia

Approximately 25%- 66% of Babesia patients are known to be co-infected with Lyme disease. These symptoms may continue for long periods of time, decrease, then return. A low Babesiosis titer (IgG) often indicates a chronic infection.

An acute or current infection may show a higher reading on the IgM test initially. There are over 100 species of Babesia in the United States but only ONE or TWO species are currently checked by commercial labs.

BARTONELLA SYMPTOMS

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GENERAL: Fatigue, Restlessness, Combative behavior, Myalgias, Malaise, Liver and/or Spleen

involvement, Abdominal pain, Infectious Mononucleosis-like Syndrome, Granulomatous Hepatitis

BRAIN: Encephalopathy may occur 1-6 weeks after the initial infection and is fairly common in patients

with Bartonella.

Note: Approximately 50 percent of patients who develop Encephalopathy can be affected

by seizures (from focal to generalized, and from brief and self-limited to status epilepticus). Headaches, Cognitive Dysfunction, and CNS Lesions may be evident.

RASH AND LYMPHADENITIS: Erythematous papules (red splotches or slightly raised red spots) may

develop. Such papules occasionally occur on the lower limbs but are more common on the upper limbs, the

head, and neck. The papules may appear on the skin or mucous membranes.

Bartonella may also cause subcutaneous nodules, with some bone involvement possible. The nodules may show some hyperpigmentation, be tender, fester, and/or be enlarged or swollen, but not always.

EYES: Conjunctivitis, Bartonella Neuroretinitis, Loss of Vision, Flame Shaped Hemorrhages, Branch

Retinal Artery Occlusion with Vision Loss, Cotton Wool Exudates, Parinaud’s Oculoglandular Syndrome,

and Papilledema.

BONES AND MUSCLES: Osteomyelitis, Myositis, Osteolytic Lesions (softening of bone), Myelitis,

Radiculitis, Transverse Myelitis, Arthritis, Chronic Demyelinating Polyneuropathy.

HEART: Endocarditis, Cardiomegaly.

BABESIA SYMPTOMS: (these are just the ones I have but there are a few more)

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generalized weakness
intermittent fever (low grade)
fatigue
insomnia
gastrointestinal (GI) symptoms like nausea, vomiting, diarrhea, and belly pain
headaches
muscle pain
joint pain
unusual weight gain
decreased appetite
sensitivity to light, touch, sound, or smells
shortness of breath – air hunger
night sweats and hot flashes
chills
arm and leg pain
swollen spleen
dark urine

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New Treatment – June 2012

25 Jun

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LLMD Visit – June 2012

Took a long, exhausting car ride to my LLMD today. I was put on a new treatment as expected. I am staying away from the heavy dose of the usual antibiotics for now since I have no insurance until September and to take a break from antibiotics. I asked for herbal treatment and that is what I have received.

I will be on only one antibiotic which I have already been on before so it’s no big deal. I seem to do pretty good on herbal treatments and do not herx or have huge die off. So I hope this one works a little better and kills these bugs.

(On a side note; the visit cost me $625.00 out-of-pocket and insurance does not help cover any of these meds or the doctor visit for those unfamiliar with what us Lymies go through with insurance)

 

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MTHFR!

I also finally got the results of my MTHFR test back and it was not god news as I hoped. I have tested positive for both mutant genes but I do not have a copy of the test to share the specific genes and information just yet. I will share that information when I get a copy of the test.

 

What is MTHFR?

“Methylenetetrahydrofolate reductase (MTHFR) is an enzyme that in humans is encoded by the MTHFR gene.[2] Methylenetetrahydrofolate reductase catalyzes the conversion of 5,10-methylenetetrahydrofolate to 5-methyltetrahydrofolate, a cosubstrate for homocysteine remethylation to methionine. Genetic variation in this gene influences susceptibility to occlusive vascular disease, neural tube defects, colon cancer and acute leukemia, and mutations in this gene are associated with methylenetetrahydrofolate reductase deficiency.”

 

Basically my body is and has not been producing a correct enzyme which can give me risks of getting blood clots, occlusive vascular disease, neural tube defects, colon cancer and acute leukemia. In other words I have to take 2 more pills for life along with my thyroid pill. Each mutation of the gene can be handed down from one parent each or one may mutate on its own. Or so I am told, I’m still new to this.

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Updated Treatment Plan:

Chiropractor (for herniated discs in my neck causing neuropathy)

A-BartByron White Formulas (20 drops twice per day – for Bartonella)

A-Bab - Byron White Formulas (20 drops twice per day – for Babesia)

Cryptolepis (20-30 drops per day for Babesia)

A-EB/H6 – Byron White Formulas (20 drops twice a day – for chronic Epstein-Barr virus)

Florazin (for possible fungal infection in mouth)

Nystatin (for possible fungal infection in mouth)

Artemisinin (5 days on 5 off – usual dose for parasites)

Mimosa – (from compound pharmacy -1 three times daily for parasites besides worms)

Septra DS (1 twice a day -only antibiotic I am on)

Florapro (1 per day – for my MTHFR mutant genes)

Acetylated Glutathione (1 twice a day – for my MTHFR mutant genes)

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Supplements:

Milk Thistle

Chanca Piedra

Ribose

Krill Oil

Super B Complex

B12

Vit D3

Calcium

Magnesium

Chromium Picolinate

CoQ10

Butchers Broom

Horsetail Grass

Coconut Oil

Colostrum – LD

Folic Acid

and many more…….

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Bartonella – Stretch Marks And Bumps

13 Jun

Bartonella

I have had these large red stretch marks on my body since I was a teen. I knew they were not from growing or from losing/gaining weight. They were always a mystery to me why one day they just appeared. Over time these stretch marks got bigger, redder and popped up in new places. My self esteem was very low in those days since my stomach looked like it had red tiger stripes.

I now know these stretch marks are caused by Bartonella. If you Google “Bartonella stretch marks” you will find some pictures. My stretch marks first appeared on my stomach. They run vertically from the waistline to just above my belly button. They are about 6″ long, 1/2′ wide and they are equally spaced. all together about 10 of them. They are bright red and jagged not straight lines.

The next set of stretch marks started to show up under my arm pits and the back of my arms. I have very thin, elastic type of skin so any place where the skin seem the thinnest there are marks. I have them on my inner thighs just under my groin. They also run down my back/spine and on my “love handles” which seems to be the most common place for the Bartonella marks to show up.

I also have had hundreds of little bumps on my forehead. They are almost like tiny zits that scab over and I scrub them off in the shower daily. Sometimes my forehead will be almost clear with no bumps and other times there are bumps all over and some are larger like zits. I also get these bumps down my back and they feel like sand granules all over my back. I can scrub them off with my sponge in the shower.

I am told these bumps are also Bartonella. They show up in the form of zits (with no white head). The common place for these bumps to show up are on the back and down the spine. You can get them all over the body.

My Lyme is in cyst form and biofilm and I have been noticing very hard little white zit type things on my face a lot lately. They are not zits and they will not pop. They are hard white perfectly round balls the size of a tiny zit but they do not have a reddish area surrounding them. I will see a white ball on my cheek or under my eye. They never go away.

I have taken a few out by using a needle and almost cutting them out. It takes a lot of work to get them out and some bleeding. I have to dig at them and finally the tiny hard white ball will come out. I wonder if this is a Lyme cyst?

So many wonderful little surprises with Lyme disease and coinfections.

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